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Top Healthcare Social Media Experts

Katie

Cancer Survivorship Professional, Cancer Advocate and Patient Navigator, Digital Communities Expert

Katie
Cancer
Caregiving
Cervical Cancer
Chronic Illness
Cirrhosis
Clinical Trials
Diabetes - Type 2
Liver Diseases
Lung Cancer
Thyroid Diseases
Women's Health
1 More 1 Less
Blogger
Consumer Engagement
Event Planner
Online Moderation
Other
Peer Support
Program Development
Social Media
Social Networking
North Richland Hills, TX
available as required

I am a professional cancer survivorship expert working at a leading lung cancer non profit. I have been a patient advocate for over 14 years.
I have the unique past experience of being both a cancer patient and a lung cancer caregiver and I represent the voice of the patient and caregiver in all that we do as a Foundation. I am the founder of the Lung Cancer Support Community, helped start the first lung cancer 5K and in-person support group and a recipient of numerous awards and articles. I sat on the board of Global Resource for Advancing Cancer Education, past LiveSTRONG Leader, current member of AONN, ASCO and VMCC as well as collaborate with national organizations and healthcare providers across the country gaining valuable insight and knowledge. I contribute to articles & blogs and have been asked to speak at events with a special interest in cancer survivorship, patient support, caregiving, cancer advocacy training & the use of social media to promote good works.

Gabe

Gabe Howard, Mental Health Writer, Speaker, and Activist

Gabe
Addiction
Anxiety
Bipolar Disorder
Depression
Eating Disorders
Mental Health
Obesity
Blogger
Crowdsourcing
Executive Coach
Influencer Marketing
Marketing
Peer Support
Public Relations
Social Media
Social Networking
reynoldsburg, OH
available as required

Gabe Howard is a professional public speaker, award-winning writer, and award-winning activist as well a person living with bipolar and anxiety disorders.

Diagnosed in 2003, he has made it his mission to put a human face on mental illness, confronting the fear, discrimination, and stigmatization people diagnosed with these illnesses often face.

Gabe has been the recipient of multiple prestigious awards in the mental health community. His writing has been featured in a number of health sites online. He has worked with several respected advocacy organizations and worked with hundreds of families and individuals.

He currently hosts The Psych Central Show Podcast sponsored by PsychCentral.com, writes for bipolar Magazine, and is the author of the blog, Don't Call Me Crazy.

Barby

President International Pain Foundation, Author, 850+ media appearances, Webfluential Verified Content Creator

Barby
Alternative Medicine
Arthritis
Autoimmune Diseases
Breast Cancer
Caregiving
Chronic Illness
Clinical Trials
Complex Regional Pain Syndrome
Depression
Dystonia
Endometriosis
Epilepsy
Eye Health/Diseases
Food Allergy
Gastrointestinal Diseases
Heart Disease
IBD (Inflammatory Bowel Disease)
Learning Disorders
Migraine
Pain (Chronic Pain, Joint Pain, Back Pain)
Rare Diseases
Reflex Sympathetic Dystrophy
Thyroid Diseases
Ulcerative Colitis
Women's Health
15 More 15 Less
Blogger
Business Development
Editor
Event Planner
Health Data Tracking
Influencer Marketing
Marketing
Mobile App Design
Mobile App Development
Online Moderation
Operations
Peer Support
Product & App Testing
Project Management
Public Relations
Reporter
Social Media
Social Networking
Strategy
9 More 9 Less
San Tan Valley, AZ
available less than 10 hours/week

I advocate for all challenged with chronic pain as well as their family, caregivers, healthcare professionals & public. My speaking engagements, media interviews, and books on chronic pain inspire patient engagement filled with HOPE & motivation. I have been battling chronic pain since 1997. First with endometriosis. Then in 2002, I developed Reflex Sympathetic Dystrophy (RSD), RA, hypothyroid, migralepsy, TMJ and more. My content creation offers practical advice, tips and tricks for better daily living and resolutions to the challenges of living with chronic pain. I have had a medical journey with twist and turns and now educate others on navigating the minefield of the healthcare system. I serve on multiple pain advisory boards and coalitions. WEGO Awards 2012 Ms Congeniality, 2016 Lifetime Achievement, 2016 Best Team Performance. For more information on me check out www.barbyingle.com

Josh

Social Video Producer, Positive Speaker, New Media Social Activation Using Health Innovators, Strategy Development,

Josh
HIV/AIDS
Consumer Engagement
Digital Marketing
Event Planner
Influencer Marketing
Marketing
Mobile App Design
Mobile App Development
Online Moderation
Other
Peer Support
Program Development
Project Management
Public Relations
Reporter
Social Media
Social Networking
Strategy
7 More 7 Less
Nashville, TN
available as required

Health communications is a league of its own. Let's face it: everyone is dealing with something and that is ripe for huge opportunities for health information and pharma firms. But without patient voices guiding the process, it can become a mine field for you. I'm experienced in consulting huge pharma companies (and small ones, as well) on how to communicate the sometimes simple and new social media messages, both branded and unbranded; creating health information websites; unique influencer marketing campaigns that stick; building social media strategies for educational institutions that feel one-on-one; advising nonprofits on how best to use free tools available to look like a million bucks. I've worked all the way up to The White House on their communication plans; and spoken relentlessly about building video and live interactive, fluid communication initiatives. Im Josh Robbins and after 5 years of working both sides of health conversations, I have a unique perspective. Want it?

Kayla

Writer + Marketer + Web Designer + Business Consultant + Advocate (Living with MS)

Kayla
Autoimmune Diseases
Chronic Illness
Depression
Endometriosis
Healthy Living
Multiple Sclerosis
Pain (Chronic Pain, Joint Pain, Back Pain)
Seasonal Allergy
Women's Health
Blogger
Business Development
Clinical Research
Consumer Engagement
Consumer Insights
Copywriter
Crowdsourcing
Digital Marketing
Editor
Health Data Tracking
Influencer Marketing
Marketing
Mobile App Design
Online Moderation
Peer Support
Product & App Testing
Product Development
Project Management
Proofreader
Reporter
Social Media
Social Networking
Strategy
Usability Testing
UX/User Design
15 More 15 Less
Fergus Falls, MN
available 21-30 hours/week

In addition to being a "professional patient" living with MS and chronic pain, I have a varied career that includes writing, marketing, web design, education, and consulting. My perspective as a patient makes me particularly interested in helping businesses in the healthcare industry with their messaging and methods of reaching out to, interacting with, and supporting patients.

I can also make a mean veggie stir fry and talk about books for hours.

Leanna

Rare Disease Patient in the Real World.

Leanna
Bone Diseases
Chronic Illness
Gaucher's Disease
Pain (Chronic Pain, Joint Pain, Back Pain)
Parkinson's Disease
Rare Diseases
Seasonal Allergy
Women's Health
Blogger
Clinical Research
Consumer Insights
Crowdsourcing
Digital Marketing
Other
Peer Support
Public Relations
Reporter
Social Media
Social Networking
1 More 1 Less
Egg Harbor City, NJ
available 10-20 hours/week

I work as a TV Station Manager for a local government access channel in NJ and assist with High School internships in TV Production & Advertising. I own and operate a freelance photography, video, and graphic design company (Film Reel Productions).

In my spare time, I support the Gaucher Disease community and advocate for patients and families with rare diseases/genetic disorders. I livestream weekly on ZubiaLive where reach a national audience on rare disease topics ("rare15") #rare15chat. I have experience with social media, crowdsourcing, and PR/advertising.

*Nominee for WEGO Health Award (2017):
"Healthcare Collaborator: Patient"
"Best Kept Secret"
*Patient Leader Hero*

*Technology Trainer (Talent/Producer) for TeacherCoach.com
*Vlogger/Host on ZubiaLive.net - [rare 15]

Sarah

Communications Consultant

Sarah
Caregiving
Chronic Illness
Other
Pain (Chronic Pain, Joint Pain, Back Pain)
Rare Diseases
Restless Legs Syndrome
Stroke
Thyroid Diseases
Blogger
Consumer Insights
Copywriter
Editor
Marketing
Online Moderation
Other
Peer Support
Program Development
Proofreader
Public Relations
Reporter
Social Media
Social Networking
4 More 4 Less
Charlotte, NC
available 10-20 hours/week

Sarah E. Kucharski is a consultant, public speaker and advocate fostering the patient voice in medicine through storytelling, social media and design thinking for innovation. Her special interests include narrative medicine, patient engagement, the patient experience, the doctor-patient relationship, the patient-caregiver relationship, chronic illness, end-of-life issues, clinical trials, health literacy, and social media's ability to connect for peer-to-peer support and medical education.

Her professional experience includes 17 years in public relations, news reporting, magazine writing, and editing for print and online publications. She has a B.A. in journalism, a M.A. in liberal studies, and a certificate from Columbia University's Narrative Medicine program.

Breck

Cystic Fibrosis Advocate

Breck
Caregiving
Children's Health
Cystic Fibrosis
Mental Health
Parenting and Family Health
Rare Diseases
Blogger
Peer Support
Reporter
Social Media
Social Networking
Hewitt, TX
available 10-20 hours/week

Breck Gamel, is a patient advocate and blogger at http://initforbennett.com. She is a mother of three young children, including Bennett, her seven year old with cystic fibrosis. Breck advocates for patients alongside the Cystic Fibrosis Foundation. Breck is leader within the Cystic Fibrosis Learning Network and co-chairs the Cystic Fibrosis Foundation's Patient and Family Research Advisory Council.

Linda

Social Firebrand, Patient Advocate, Healthcare Transformation Specialist

Linda
Aging/Senior Health
Anxiety
Caregiving
CFS (Chronic Fatigue Syndrome)
Children's Health
COPD (Chronic Obstructive Pulmonary Disease)
Dementia
Thyroid Cancer
Blogger
Business Development
Clinical Research
Consumer Insights
Digital Marketing
Influencer Marketing
Marketing
Product Development
Social Media
Usability Testing
UX/User Design
1 More 1 Less
Nashville, TN
available 10-20 hours/week

Senior Transformation Specialist and Social Firebrand, Stotsky has represented companies including GE Healthcare, e-MDs, digiChart, BCBST and HMS/MEDHOST. She received GE Healthcare's CIS Award, led EMR adoption efforts, directed rollout of the 1st HIE in the state of TN, and was a member of HIMSS Standards and Interoperability Workgroup for Stage 1 Meaningful Use.

Stotsky is consistently named as one of “20 Health IT Influencers to Watch” by Healthcare IT Leaders. Most know her as @EMRAnswers, where she has been a social firebrand since 2009. A Social Ambassador at HIMSS global conference for the last four years, she is a frequent contributor to media pubs, & discussions as a respected HC strategist. Over 19,500 targeted followers,

An outspoken advocate, and caregiver, she speaks about Patient Safety and Care Coordination, She walks as patient #117 in The Walking Gallery of Healthcare. She Is on the HC Advisory Council at Fogo Data Centers, & current Board member S4PM.

Natalie

Former News Anchor and PR Pro with Crohn's disease

Natalie
Crohn's Disease
Blogger
Copywriter
Editor
Peer Support
Proofreader
Public Relations
Reporter
Social Media
Social Networking
St. Louis, MO
available as required

I was diagnosed with Crohn's disease in July 2005 at age 21. After nearly 10 years in the TV business as a news anchor and reporter, I decided to share my story with the public in November 2014 when I left the anchor desk to pursue a career in Corporate Communications. I started a a blog in July 2016 (on the 11th anniversary of my diagnosis) entitled Lights, Camera, Crohns--An Unobstructed View. I share new content each Monday and aim to provide hope despite the unknowns of the disease. I became a mom in March 2017 and have shared the journey of my high risk pregnancy with my readers and online community. Between my television and PR background and my experience as a patient firsthand, I feel I have the skills necessary for speaking about the illness whether it's in front of a large crowd or on camera. I am confident in my knowledge and it does my heart good to offer hope to those who are struggling with their illness. I feel this is the perfect platform for me to help others.

Gabrielle

Founder, Lupus Sistas/Lupus Advocate/Writer/Former Journalist

Gabrielle
Autoimmune Diseases
Chronic Illness
Fitness
Lupus
Rheumatoid Arthritis
Women's Health
Blogger
Copywriter
Editor
Marketing
Proofreader
Public Relations
Reporter
Social Media
Orlando, FL
available less than 10 hours/week

I am a former news journalist, turned lupus advocate who uses her candid experiences of living with lupus, chronic illness and an invisible disease to spread awareness, particularly among underserved populations. I have the unique perspective of a patient advocate and the skills of a professional journalist and copywriter to see the whole story and public relations angles. I'm also able to make complex content digestible for the general public. I've provided lupus education through many platforms, including legislatively and through social media and radio work. I am interested in connecting with and creating effective content for healthcare companies that are looking to include an authentic, patient voice at the table.
Advocacy work includes:
Feature by the US Department of Health and Human Services’ Office on Women’s Health to highlight Lupus.
2016 WEGO Health Activist Hero Nominee
2017 Lupus Research Alliance Patient Advocate for Annual Advocacy and Hill Day in D.C.

Hetlena

The Lupus Liar / Living Your Best Life While Living with Lupus

Hetlena
Alternative Medicine
Anemia
Arthritis
Autoimmune Diseases
Caregiving
CFS (Chronic Fatigue Syndrome)
Chronic Illness
Lupus
Mental Health
Women's Health
Blogger
Clinical Research
Consumer Engagement
Copywriter
Editor
Event Planner
Executive Coach
Health Data Tracking
Influencer Marketing
Online Moderation
Peer Support
Program Development
Social Media
Social Networking
4 More 4 Less
Columbia, SC
available 21-30 hours/week

Hetlena has been integral in bringing lupus to the forefront of awareness in South Carolina. Her main goal is to raise awareness of and advocacy for lupus patients, like herself, in South Carolina. Hetlena now serves as the Chief Volunteer Officer of the newly transitioned LFA South Carolina Community Partner (LFASCCP). She leads and coordinates the training of support group leaders in the state of South Carolina. Her work with lupus sparked a partnership with the Institute for Partnership to Eliminate Health Disparities (IPEHD) Arnold School of Public Health of the University of South Carolina to spread the word on the development of a South Carolina Lupus Registry. Hetlena’s flagship company, The Lupus Liar, allows her to educate, advocate and raise awareness about lupus as a highly sought after speaker, critically acclaimed author, coach, presenter and trainer. She is well-versed in data management, community awareness strategies, and lupus education presentations.

Lisa

Founder of Harvesting Happiness & Creator of Harvesting Happiness Talk Radio ~ Positive Lifestyle Management

Lisa
Aging/Senior Health
Alternative Medicine
Brain Health
Caregiving
Depression
Healthy Living
Menopause
Mental Health
Parenting and Family Health
Sexual Health
Thyroid Diseases
Women's Health
2 More 2 Less
Blogger
Business Development
Executive Coach
Influencer Marketing
Marketing
Other
Program Development
Reporter
Social Media
Social Networking
Strategy
1 More 1 Less
Los Angeles, CA
available as required

Lisa Cypers Kamen, M.A. is an applied positive psychology coach, author,
documentary filmmaker, and radio show host specializing in sustainable wellbeing and lifestyle management. Additionally, she is an experienced spokesperson and brand ambassador for corporations including The Florida Department of Citrus and Katie K Activewear.

Lisa’s global consulting practice focuses on mission-driven addiction and trauma recovery supporting clients in balancing their minds, bodies and emotions resulting in greater overall wellbeing and the transformation of Post-Traumatic Stress (PTS) into Post-Traumatic Growth (PTG). Through her work, clients are empowered and supported to achieve increased self-mastery, optimal functioning and to reclaim their lives.

Lisa is a 'reformed clinically depressed person' who leads by example the virtues of a balanced mind, body, spirit, and soul. She is a health advocate for depression/mental health, addiction, healthy aging, optimal lifestyle, and more.

Bob

Founder Alzheimer's Reading Room

Bob
Alzheimer's Disease
Dementia
Blogger
Clinical Research
Editor
Executive Coach
Marketing
Social Media
Strategy
Delray Beach, FL
available 31-40 hours/week

Bob is the Founder of the Alzheimer's Reading Room (ARR). Bob is a recognized expert in the Alzheimer's community,and listed as one of the top ten Alzheimer's influencer(s) on the Internet. The ARR operates for the benefit of society, contains over 5,000 articles, and has published daily since July, 2009.

Bob is a frequent lecturer, speaker, trainer and has appeared in person, or been interviewed on television and radio more than 100 times. Bob is an expert speaker on Alzheimer's caregiving.

Speaking and training engagements include: conferences, education societies, adult day services, and assisted living and memory care facilities, This includes: speaking and training (CEUs) for the Alzheimer's Association.

Patient sourcing for pharmaceutical clinical trials via sponsored programs and our proprietary email list (31,200). We have the targets and we get results.

The ARR has the largest opt-in only, curated, subscriber list of Alzheimer's community members in the world.

Tiffany

Digital Health Consultant, Patient Advocate, Public Speaker, & Freelance Writer

Tiffany
Anxiety
Autoimmune Diseases
Chronic Illness
Depression
Fibromyalgia
Lupus
Consumer Engagement
Consumer Insights
Digital Marketing
Event Planner
Influencer Marketing
Online Moderation
Peer Support
Product & App Testing
Product Development
Program Development
Project Management
Social Media
Social Networking
Strategy
4 More 4 Less
Staten Island, NY
available 10-20 hours/week

Encourages awareness and utilizes social media to help educate patients, providers, physicians, pharma, and key healthcare stakeholders on health, the e-patient movement, participatory medicine, healthcare social media, and lupus. Community manager for more than five successful social media outlets. Public speaker/panelist at numerous prestigious health conferences such as Health Datapalooza, ONC National Health IT Summit, ePharma. Advisory board member for health organizations, pharmaceutical companies focused on drug development, healthcare startups. Freelance writer & copy editor.

Rachel

Schizophrenic Speaker and Educator

Rachel
ADHD (Attention Deficit/Hyperactivity Disorder)
Brain Health
Child Behavior Disorders
Depression
Disabilities
Fitness
Mental Health
Rare Diseases
Schizophrenia
Clinical Research
Consumer Insights
Digital Marketing
Influencer Marketing
Other
Peer Support
Product & App Testing
Program Development
Reporter
Social Media
Social Networking
Video
2 More 2 Less
Rock Hill, SC
available as required

Schizophrenic speaker and author of "Lil' Broken Star" a book for children with schizophrenia to help them learn management techniques.

Rachel Star Withers is a dynamic and can help people understand what people with mental disorders go through and assist those with disorders to learn management techniques to deal with the hallucinations, delusions, depression, suicidal urges...

Rachel makes videos on her youtube page documenting her schizophrenic for the past 11 years.

Sarah

Author, Health Writer, and Patient Advocate for Migraine and Mental Health

Sarah
Alternative Medicine
Anxiety
Bipolar Disorder
Birth Control
Caregiving
Child Behavior Disorders
Children's Health
Chronic Illness
Depression
Disabilities
Epilepsy
Healthy Living
Learning Disorders
Mental Health
Migraine
Pain (Chronic Pain, Joint Pain, Back Pain)
Parenting and Family Health
Post-Traumatic Stress Disorder
Pregnancy
Seasonal Allergy
Seizures
Sexual Health
Skin Health/Diseases
Women's Health
14 More 14 Less
Blogger
Business Development
Consumer Engagement
Copywriter
Digital Marketing
Editor
Finance
Human Resources
Influencer Marketing
Marketing
Online Moderation
Operations
Project Management
Proofreader
Reporter
Social Media
6 More 6 Less
Dripping Springs, TX
available as required

Sarah Hackley is most known for her work as a patient advocate spreading awareness of life with chronic migraine. She has been featured on numerous health blogs and is a regular contributor for Migraine.com, where she utilizes her personal experiences and educational background in neuropsychology to educate others on issues affecting the migraine community. She also is the author of two self-empowerment books, "Finding Happiness with Migraines: A Do It Yourself Guide" and "Preparing to Fly: Financial Freedom from Domestic Abuse." She also speaks, writes, and coaches patients on how to live fully and joyfully with chronic illness. Additional information can be found on her website: www.sarahhackley.com.

Sue

WEGO Health Staff

Sue
Healthy Living
Mental Health
Consumer Insights
Influencer Marketing
Proofreader
Social Media
Boston, MA
available as required

WEGO Health Staff

Whitney

Epilepsy Patient Leader, Blogger, Advisory Board, App Tester

Whitney
Chronic Illness
Disabilities
Epilepsy
Blogger
Crowdsourcing
Health Data Tracking
Product & App Testing
Social Media
Usability Testing
Plano, TX
available as required

Whitney has been living with Epilepsy for 30+ years. She has used her first hand experience with the condition to help others. Through this blog, Whitney share's her life's journey, motivating others to take control of their epilepsy, build better doctor/patient relationships, and how to practice self-care. Whitney graduated from college with a BS in Information Systems Security. The knowledge gained in the IT field gives her the flexibility to self-host and manage her website, test and manage new health apps and more. Whitney's Epilepsy Advocacy work gives the opportunity to host webinars, appear at conferences for speaking engagements, work with companies to create blog content, crowdsourcing and has given her the opportunity to sit on a number of Advisory Boards and Panels. There is no limit to helping the Epilepsy the community.

Wendy

20+ Years Leader in Patient Ed

Wendy
Aging/Senior Health
Alzheimer's Disease
Aneurysms
Caregiving
Dementia
Diabetes - Type 2
Epilepsy
Fitness
Glaucoma
Gout
Healthy Living
Melanoma
Men's Health
Menopause
Mental Health
Obesity
Osteoporosis
Sleep and Sleep Disorders
Stroke
Women's Health
10 More 10 Less
Blogger
Business Development
Consumer Engagement
Copywriter
Digital Marketing
Editor
Marketing
Online Moderation
Program Development
Public Relations
Reporter
Social Media
Strategy
3 More 3 Less
Baltimore, MD
available as required

In the early 90s I went from my healthcare journalism background to both print and online marketing. I have a special expertise in reaching America's aging population, their families and caregivers. For 10 years I've had a Boomers & Beyond section on my website. I write and plan for this growing arena working with Fortune 500, non-profits, hospitals and many others....helping them win awards, gain recognition. You'll see much more as you continue.


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