Lisa Cypers Kamen, M.A. is an applied positive psychology coach, author,
documentary filmmaker, and radio show host specializing in sustainable wellbeing and lifestyle management. Additionally, she is an experienced spokesperson and brand ambassador for corporations including The Florida Department of Citrus and Katie K Activewear.
Lisa’s global consulting practice focuses on mission-driven addiction and trauma recovery supporting clients in balancing their minds, bodies and emotions resulting in greater overall wellbeing and the transformation of Post-Traumatic Stress (PTS) into Post-Traumatic Growth (PTG). Through her work, clients are empowered and supported to achieve increased self-mastery, optimal functioning and to reclaim their lives.
Lisa is a 'reformed clinically depressed person' who leads by example the virtues of a balanced mind, body, spirit, and soul. She is a health advocate for depression/mental health, addiction, healthy aging, optimal lifestyle, and more.
As the Founder and CEO of My Purple Friends Epilepsy Awareness, Melissa Compton brings a unique perspective in providing support and services to those living with epilepsy. Melissa has epilepsy herself, so she is able to use her own experiences along with those in the community to bring the most comprehensive services. My Purple Friends Epilepsy Awareness is the largest nonprofit organization for people with epilepsy globally.
In April 2017, Melissa was appointed to the Lexington Commission For People With Disabilities by Major Jim Gray. She serves a Specific Disability Representative representing those living with epilepsy within the city of Lexington and Fayette County.
Prior to My Purple Friends Epilepsy Awareness, Melissa spent 25 years in the healthcare field serving as a Certified Lean Six Sigma Black Belt, Business Analyst, Project Manager and Software Quality Assurance Engineer.
I blog, podcast, and do live streaming videos in support of Mental Health Awareness, and those living with Anxiety, Dissociation, & PTSD. The blog, Surviving My Past is in support of all who have survived the trauma of abuse. My platform exists to help inspire those living with mental health challenges to understand how past trauma affects daily life well into adulthood and well beyond when the trauma actually occurred.
I cover topics such as how the brain is affected by trauma, DBT Skills, CBT Skills, Self Care, the importance of creating and enforcing healthy boundaries, and generally working through how to cope with daily life as a survivor of childhood sexual abuse and other types of trauma.
Author of Let's Talk! About It! Inspiring Stories From Young Adult Cancer Survivors, Motivational Speaker, TEDx Talker, Survivorship Coach, Empowerment Coach and Webinar / Workshop Leader.
A passionate professional with over ten years of healthcare operations experience, together with lived experience as a chronic pain patient and as a postpartum depression survivor, advocate and independent researcher I can bring a wealth of knowledge and insight to your next project. My expertise includes work in patient engagement and co-creation, peer support implementation, maternal mental health, mental health treatment modalities, social media outreach and engagement, online patient communities, and significant understanding in the social/cultural influences to mental health, addiction and chronic pain.
My preferred consulting engagements include planning, strategy and implementation of patient engagement, providing direction as to understanding disease pathways, stigma/shame related to mental health diagnosis and chronic pain along with research/writing opportunities.
Mindy Bartleson graduated Cum Laude from the University of Georgia with a Bachelor’s in Social Work and a minor in Sociology. She spent her studies and professional and personal involvement in chronic illness, mental health, socioeconomic status, the healthcare setting life challenges, advocacy, and more.
She identifies as a patient voice and advocate. She openly lives with type 1 diabetes, ADHD, anxiety, OCD, PCOS, endometriosis, and several other conditions. She has experience in non-profits, tech, business, writing, community involvement, and building relationships in various settings online and in person.
She blogs at “There’s More to the Story” about life, chronic illness, and mental health, and she frequently contributes to several chronic illness and mental health blogs. In addition to blogging she is involved in speaking opportunities for awareness, education, and advocacy. She also volunteers at special needs camps.
I have been living with celiac disease since 1981 and have been gluten-free long before it was trendy. I run a full-service consultancy that connects business owners with the niche target audiences including, but not limited to, gluten-free, vegan, Kosher, health and wellness, and more. Responsibilities include, but are not limited to:
Social Media and Marketing: social media management, targeted influencer marketing campaigns, press release writing and distribution, content creation for company newsletters and social media accounts, brand collaborations and giveaways
Restaurant consulting: social media management, ingredient research, gluten-free certification research and execution through third-party vendor
Events: Consumer expos and trade show consulting, set-up and break-down, live social media management, demos and tastings
Writing: blog writing, ghost writing for brands, social media content creation and scheduling.
Every leader has a story to tell—stories that will not only engage, inform, surprise, delight, and impact their audience, but that will also deliver on outcomes. And I am the conduit between organization and community.
I help community members find the subject and medium that best fits their unique identity, and then I navigate them to high-quality services that meets their objectives.
Currently, I am a HIV Prevention Coordinator, PrEP Specialist at Chicago House and Social Service Agency, where I’ve collaborated with companies such as Act Against AIDS, NMAC, VIIV Healthcare, Howard Brown Health Center, UCSF, and many more domestic and international organizations.
My specialties include public speaking, leadership development, digital media, community relations, brand awareness, and multi-channel marketing campaigns.
I became ill in 2001 and over 4 years saw 51 specialists that could not diagnose my illness. I was handed a Medline study from Christopher Reeves' Neurologist and was told to find the surgeon that performed that study. It lead me to Pittsburgh & Dr Peter Jannetta, Godfather of Modern Neurosurgery. He saved me from becoming a quadriplegic & worse. I never imagined I would develop multiple Rare Diseases at 31 yrs old, I had to learn to live a new limited life and the only way to start was with knowledge, then with helping others when I was well enough, and I have never stopped. I am a Leader in the Rare Disease Community, a Healthcare Activist, and Lobbyist. I have been fortunate to work with 1000's of Rare Disease Patients, Health and Disease Organizations and Foundations, Healthcare Stakeholders, and learned from them all. Now I try and improve Healthcare one day and project at a time.
Schizophrenic speaker and author of "Lil' Broken Star" a book for children with schizophrenia to help them learn management techniques.
Rachel Star Withers is a dynamic and can help people understand what people with mental disorders go through and assist those with disorders to learn management techniques to deal with the hallucinations, delusions, depression, suicidal urges...
Rachel makes videos on her youtube page documenting her schizophrenic for the past 11 years.
I am all about family and love spending as much time with them as possible. My 2nd passion is bringing awareness to Type II diabetes. It is near and dear to my heart. Since being diagnosed I have lost 100 pounds.
March 2007 is a special chapter in my life. It was the month my struggle to control my diabetes took on a whole new light. I reached my goal weight set by my doctor and was able to be taken off all artificial means to control my diabetes.
My diabetes is now under control through diet and exercise. With weight-loss and exercise, Type II Diabetes can be managed or prevented. My success at controlling my diabetes has led to a new found dedication and passion in educating others on how to eat right & exercise. It brings me great joy to share my story with others and in doing so inspire them to “get up and get moving!”
I am a diabetes advocate for the American diabetes association. I am a passionate public speaker with experience speaking to youth, at gyms, offices,
I am a medical/health & wellness freelance writer, online community/health advocate and legal assistant. Having lived with rheumatoid arthritis and fibromyalgia since 2008, I have used my experiences to share expert advice on living successfully with chronic illness.
You can find my most recent work at Pain News Network, Alliance Health, Upwell, Mango Health, New Life Outlook, Medical News Today, News Medical and The Mighty.
As a medical/health and wellness writer, I write about various chronic illness topics, including but not limited to, parenting and single parenting, staying gainfully employed, living life to the fullest, managing stress, the emotional challenges of illness, including learning to cope, and day-to-day self-management of illness.
As a patient advocate/health activist, I have worked with both Alliance Health and healtheo360.
You can find samples of my work and more about my experiences at my personal website. https://lbarhumwritingportfolio.wordpress.com
Since the planning stages of Claire’s Place Foundation, Melissa Nordquist has spent countless hours working for the cause and, of course, raising her two children, Claire (the foundation’s namesake) and Ellie. Founding CPF has been a way for Melissa to give back and share her experience with other families living with cystic fibrosis. "Many years as a single parent with a special needs child has taught me how to juggle the hours needed to care for a disease like cystic fibrosis and earn a living. We have always been blessed with a supportive family and a wonderful group of friends. It is my hope that we can provide the same type of support to families walking this path alone."
I would be available to provide my insight as a caregiver to a child with CF and the sole breadwinner in our household for many years. My daughter is 20 yrs old now, transitioning into adulthood which has a unique and specific set of challenges for parents & patients as well. Happy to discuss/share.
Community Development and Business Management are among the educational knowledge and skills that are utilized to support the Ostomy community. As a permanent Ostomate, Certified Patient Navigator, and Advocate, I can meet with patients in a highly diverse environment, offering care to them as a PERSON.
I can help with Pre-op visits, Post-op visits, help with access to supplies and care once released from the hospital, and other related support that may be needed along the way.
I work to bridge communications between the various medical teams, the patient, insurance, and the other caregivers and loved ones.
I can offer answers to most of the non-medical ostomy-related questions someone may have; speaking from experience as a fellow Ostomate.
I lead workshops for breast cancer survivors that focus on the inner healing process, self-acceptance, and reclaiming wholeness. I have interviewed over 70 survivors for an upcoming book. I also have experience with medical terminology.
Erin Gilmer is a patient advocate who spent her legal career in health law and policy including working with government, non profit, and startups. She advocates around the country to provide a voice for those who struggle with various health and economic issues.
*Note: While I am a licensed attorney in Texas, I am not offering legal services here via WegoHealth Experts.
I volunteered for the National Adrenal Disease Foundation for 4 years. I have learned so much about Adrenal Insufficiency by living with the disease and helping others live with the disease too. I am an expert patient. Since April 2016, I've been making educational videos, raising awareness, offering support, helping others in need (both patients and caregivers) and providing assistance where needed because there are not enough medical professionals that know enough give patients details they need and we are losing too many! I am available to assist with education and advocacy, and open to other assignments.
Due to having someone very close to me with a serious mental illness, I have been extensively trained to facilitate support groups and educate people with a mental illness and caregivers. Having suffered trauma myself, I understand both. I also strongly believe in the mind/body/spirit connection and how each greatly impacts the other. I am a great advocate and supporter.
Upon recognizing significant unmet needs and challenges in patients’ journeys throughout their cancer diagnosis, Dr. Grace Cordovano founded Enlightening Results, LLC in 2010. As the culmination of her life’s experiential learning and education, Dr. Cordovano is dedicated to fostering private, personalized patient advocacy services, specializing in the cancer arena. She strategically and empathetically guides her clients through survivorship or end-of-life care, ensuring they are armed with the most pertinent, medically credible, easy to understand information so as to make empowered decisions about their care. Grace is a firm believer in the continuous advancement and improvement of cancer patient experiences through the infusion of empathic design and thinking into current healthcare paradigms. A frequent questioner of the status quo, she leaves no stone or process unturned in her quest to improve overall patient experiences across the continuum of patient care.
Developing and managing online communities and handling issues, creative program development for specific needs, establishing and running a successful non-profit online, creating a "brand" for an organization, awareness months/weeks/days, utilizing social media, engaging patients, volunteer management. I have a number of conditions, a few leading to my need for a five organ transplant (full GI tract) in 2006. I founded G-PACT at the age of 23, 16 years ago. Since then we have grown to become the leading international non-profit for the conditions we cover. I was an art major with no business training. My ability to be creative, think outside the box, and recognize unique needs patients have and find ways to address them have all contributed to our strength. I express myself well through writing and art. I think patients need leaders who truly understand them and don't just hear facts. Patients want a cure, but they also want people who care, have humor, and are down to earth.
Chef Trevis L. Gleason has been an award–winning culinarian, consultant, and instructor. A decorated US Coast Guard veteran and former USAID Ambassador to Ukraine.
Gleason has lived with Secondary-Progressive Multiple Sclerosis since diagnosis in 2001.
Twice named #1 online influencer on the topic of MS, he was the 2010 Media Industry News winner for Best Blog and his memoir, Chef Interrupted, won the Prestige Award of the International Jury at the World Cookbook Awards in 2016. In 2012, he was named the Jimmie Heuga “MS Can Do” person of the year.
He is an Ambassador for the National MS Society, MS Society of Ireland and MS Society of the UK. He speaks to groups, both large and small, about living life fully with or without a chronic illness.
His opinions are sought after by elected officials and non-profit leaders.
Gleason lives in Seattle, Washington and County Kerry, Ireland with his wife, Caryn, and their two Irish Soft-Coated Wheaten Terriers, Sadie and Maggie