In addition to being a "professional patient" living with MS and chronic pain, I have a varied career that includes writing, marketing, web design, education, and consulting. My perspective as a patient makes me particularly interested in helping businesses in the healthcare industry with their messaging and methods of reaching out to, interacting with, and supporting patients.
I can also make a mean veggie stir fry and talk about books for hours.
Sarah E. Kucharski is a consultant, public speaker and advocate fostering the patient voice in medicine through storytelling, social media and design thinking for innovation. Her special interests include narrative medicine, patient engagement, the patient experience, the doctor-patient relationship, the patient-caregiver relationship, chronic illness, end-of-life issues, clinical trials, health literacy, and social media's ability to connect for peer-to-peer support and medical education.
Her professional experience includes 17 years in public relations, news reporting, magazine writing, and editing for print and online publications. She has a B.A. in journalism, a M.A. in liberal studies, and a certificate from Columbia University's Narrative Medicine program.
Hetlena has been integral in bringing lupus to the forefront of awareness in South Carolina. Her main goal is to raise awareness of and advocacy for lupus patients, like herself, in South Carolina. Hetlena now serves as the Chief Volunteer Officer of the newly transitioned LFA South Carolina Community Partner (LFASCCP). She leads and coordinates the training of support group leaders in the state of South Carolina. Her work with lupus sparked a partnership with the Institute for Partnership to Eliminate Health Disparities (IPEHD) Arnold School of Public Health of the University of South Carolina to spread the word on the development of a South Carolina Lupus Registry. Hetlena’s flagship company, The Lupus Liar, allows her to educate, advocate and raise awareness about lupus as a highly sought after speaker, critically acclaimed author, coach, presenter and trainer. She is well-versed in data management, community awareness strategies, and lupus education presentations.
I am a former news journalist, turned lupus advocate who uses her candid experiences of living with lupus, chronic illness and an invisible disease to spread awareness, particularly among underserved populations. I have the unique perspective of a patient advocate and the skills of a professional journalist and copywriter to see the whole story and public relations angles. I'm also able to make complex content digestible for the general public. I've provided lupus education through many platforms, including legislatively and through social media and radio work. I am interested in connecting with and creating effective content for healthcare companies that are looking to include an authentic, patient voice at the table.
Advocacy work includes:
Feature by the US Department of Health and Human Services’ Office on Women’s Health to highlight Lupus.
2016 WEGO Health Activist Hero Nominee
2017 Lupus Research Alliance Patient Advocate for Annual Advocacy and Hill Day in D.C.
I was diagnosed with Crohn's disease in July 2005 at age 21. After nearly 10 years in the TV business as a news anchor and reporter, I decided to share my story with the public in November 2014 when I left the anchor desk to pursue a career in Corporate Communications. I started a a blog in July 2016 (on the 11th anniversary of my diagnosis) entitled Lights, Camera, Crohns--An Unobstructed View. I share new content each Monday and aim to provide hope despite the unknowns of the disease. I became a mom in March 2017 and have shared the journey of my high risk pregnancy with my readers and online community. Between my television and PR background and my experience as a patient firsthand, I feel I have the skills necessary for speaking about the illness whether it's in front of a large crowd or on camera. I am confident in my knowledge and it does my heart good to offer hope to those who are struggling with their illness. I feel this is the perfect platform for me to help others.
In the early 90s I went from my healthcare journalism background to both print and online marketing. I have a special expertise in reaching America's aging population, their families and caregivers. For 10 years I've had a Boomers & Beyond section on my website. I write and plan for this growing arena working with Fortune 500, non-profits, hospitals and many others....helping them win awards, gain recognition. You'll see much more as you continue.
I am a freelance journalist specializing in researching and writing about health related issues. My interest in this field began when I was diagnosed with a little known chronic blood disorder (ITP) and had to do the research to find out exactly what I had. I am also a full-time caregiver for my disabled husband and have interviewed health professionals and other caregivers to succeed at this task.
I have used my skill at searching out answers to write articles for newspapers, blogs, websites, etc on various health related topics.
I am a freelance health and science writer for hire. I help businesses get results with quality content. I create compelling content that has a proven track record of driving online engagement.
I can help you reach the right audience, create better content, raise brand awareness and make more money. I can translate complex health and science topics into plain language.
I have a Bachelor of Science degree from Butler University and graduated summa cum laude with a double major in biology and chemistry. I have extensive online writing experience. I have published on Yahoo! News, CNN iReport, Lifescript.com, The Huffington Post and many other publications.
Translating my personal experience with 20 years of chronic illness to help others. Specializing in writing, strategy, product/process design, user experience, support group management, social media.
I'm a patient advocate & content writer living with type 2 diabetes. I would like to work with you to advance digital health, the patient's voice, & the understanding of daily life with a chronic health condition.
Do your interests include any of these?
• Digital health (wearables, devices, apps, etc.)
• Raising the patient voice to influence engagement, treatments & policy
• Informing medical, pharma, & healthcare professionals about the day-to-day reality of life with type 2 diabetes
Are you looking for someone with any of these skills?
• Usability testing
• Contributing to discussions about patient engagement in health care & health policy issues
• Producing informative & persuasive content
If you answered "yes," then let's talk.
I'm available & here are a few of the things I can do:
• Test digital health products or services
• Discuss issues & ideas related to patient engagement, health care, or health policy
• Strategize & write content
I have expertise in writing informative and inspiring articles about living with chronic illnesses. In addition, I have a background in English education which makes my editing and proofreading skills sharp. I have been blogging for 5+ years and work very hard to advocate for PsA awareness.
Sarah Hackley is most known for her work as a patient advocate spreading awareness of life with chronic migraine. She has been featured on numerous health blogs and is a regular contributor for Migraine.com, where she utilizes her personal experiences and educational background in neuropsychology to educate others on issues affecting the migraine community. She also is the author of two self-empowerment books, "Finding Happiness with Migraines: A Do It Yourself Guide" and "Preparing to Fly: Financial Freedom from Domestic Abuse." She also speaks, writes, and coaches patients on how to live fully and joyfully with chronic illness. Additional information can be found on her website: www.sarahhackley.com.
I started The Life of a Diabetic (thelifeofadiabetic.com) in 2007 to share my life as a person with diabetes. The goal was to help others realize that they are not alone and that, even though you have diabetes, you can live a normal life like anyone else. I then became a self-taught SEO freelancer which later ended up in me starting my own digital marketing agency in 2009, CSI Marketing Solutions.
I am able to combine my health and professional expertise to effectively use social media and search marketing strategies to raise awareness for diabetes advocacy.
I am currently a contributor to several diabetes publications and speak locally at health fairs, social media meet-ups, and diabetes related events.
I also write at ChrisStockerInc.com and VLOG on my YouTube Channel https://www.youtube.com/user/chrisstockerinc
I am available for content creation, strategy, influencer marketing, speaking (keynote or panel) and social media strategy.
I offer B2B companies in the healthcare space content that is well-researched, audience-focused, and compelling. My goal is to help you grow your business using effective content marketing strategies. As a nurse with clinical, sales, and marketing experience, I specialize in product and technology solutions designed to improve the delivery of healthcare.
Lisa Emrich is a leading patient advocate who uses her experience living with multiple sclerosis and rheumatoid arthritis to educate, empower, and inspire people living with chronic conditions. Author of the award-winning blog Brass and Ivory: Life with MS and RA, Lisa is writer, subject matter expert, and community moderator for Health Union and Remedy Health Media. An experienced speaker and consultant, Lisa gives voice to the patient at conferences and works with health companies to improve services and messaging. She also co-leads the Engagement Committee for iConquerMS™, the world’s largest MS patient-powered research network, and serves as a merit reviewer for research proposals submitted to PCORI, the Patient-Centered Outcomes Research Institute. Lisa and her husband enjoy cycling together on the rails-to-trails paths in Virginia.
Business, product and program development expertise for start-up/early stage initiatives in private, public and academic sectors. Recently, I’ve been working on projects to integrate patient perspective with business strategy/product design for patient-facing digital health platforms to improve engagement and adherence. Active patient access, equity, safety and engagement advocate.
- business development and marketing strategy
- product design, UI/UX
- program design, logic models
- creation of patient profiles
- creation of value propositions
- proof of concept strategies
- identification of distribution verticals or collaboration partners
- process improvement for delivery systems' approach to handling patient/caregiver complaints
- health policy analysis
Personally and professionally, I have almost 10 years experience in patient advocacy, as both a caregiver for a Crohn's patient and an advocate for mental illness as a patient with panic disorder. Professionally, my background is in advocacy/public policy and communications, with a focus on the government and nonprofit sector. I am also an experienced reporter, ghost writer, and blogger, with writing appearing in The Huffington Post, Newsday, Hartford Courant, and more.
PASSIONATE & CREATIVE WRITER, EDITOR, CONTENT STRATEGIST
Deliver quality, professional communication skills in a fast-paced environment. Successfully write marketing, communications, and web content for brands, brand ambassadors, products, service lines and key launches. A proven record in writing, planning, and leading communication strategies in support of business goals and objectives. A self-starter and team player, able to manage multiple projects, prioritize deadlines and plan from concept to launch and final analysis of ROI.
Strategic communicator with more than 7 years of experience building relationships, trust, and community online, particularly around young adult cancer advocacy. I am an experienced public speaker, giving keynotes, survivor speeches, serving on panels, and leading workshops on issues around survivorship, financial challenges, dating and sexuality, and career advancement. My audiences have ranged from medical and insurance professionals, fellow survivors, college students, and fundraising engagements.
I am a marketing and communications professional specializing in digital health and social media, with particular interest and experience in community management and building. I enjoy working with organizations that possess a strong sense of mission and purpose.
My areas of speciality are writing for healthcare and nonprofits, social media strategy and implementation, digital marketing, web content creation, and translating technical or medical concepts into consumer friendly language.
After graduating from Boston College with my BA in Psychology, I worked in digital health for about 5 years before leaving the full time world to start my own business. I take on freelance projects through my business, Janelle Communications LLC.
I have a passion for helping others and using digital and social media to educate groups.