I am a professional cancer survivorship expert working at a leading lung cancer non profit. I have been a patient advocate for over 14 years.
I have the unique past experience of being both a cancer patient and a lung cancer caregiver and I represent the voice of the patient and caregiver in all that we do as a Foundation. I am the founder of the Lung Cancer Support Community, helped start the first lung cancer 5K and in-person support group and a recipient of numerous awards and articles. I sat on the board of Global Resource for Advancing Cancer Education, past LiveSTRONG Leader, current member of AONN, ASCO and VMCC as well as collaborate with national organizations and healthcare providers across the country gaining valuable insight and knowledge. I contribute to articles & blogs and have been asked to speak at events with a special interest in cancer survivorship, patient support, caregiving, cancer advocacy training & the use of social media to promote good works.
Alicia has in-depth knowledge of the power of online communities and provides direction to companies looking to build platforms to interact with consumers and patients in meaningful ways.
She regularly speaks at conferences throughout the US. She has presented at Livestrong’s Rev2014, American Society for Breast Surgeons Annual Meeting, South by South West Interactive Conference (SXSWi), 140 Boston, and Social Media for Pharma. As an inspirational speaker, Alicia reaches many different audiences, providing insight into life as a 25+ year cancer survivor and support in efficient, effective ways.
I was 30 years old when he was diagnosed with a Glioblastoma Multiforme (GBM), a primary brain tumor. Even though I had the support from my family and friends I didn’t know anyone that could relate to the fight I was about to embark on or beaten the same type of cancer. In 2012 I founded a non-profit called Greg’s Mission.
Greg’s Mission provides support, HOPE, education, current resources and awareness to patients suffering from brain tumors especially Glioblastoma Multiforme (a grade IV primary brain tumor) via phone, email, skype and personal visits. I have dedicated my life to making sure that no person diagnosed with a brain tumor has to go through the experience alone and that no family or caregiver goes without support.
Since founding GM I have helped over 2800 patients, families and caregivers navigate their brain tumor journey. Additionally, I volunteer at MD Anderson, Cleveland Clinic and The Children’s Brain Tumor Foundation as a patient mentor and advocate.
I am a freelance health and science writer for hire. I help businesses get results with quality content. I create compelling content that has a proven track record of driving online engagement.
I can help you reach the right audience, create better content, raise brand awareness and make more money. I can translate complex health and science topics into plain language.
I have a Bachelor of Science degree from Butler University and graduated summa cum laude with a double major in biology and chemistry. I have extensive online writing experience. I have published on Yahoo! News, CNN iReport, Lifescript.com, The Huffington Post and many other publications.
I am a freelance journalist specializing in researching and writing about health related issues. My interest in this field began when I was diagnosed with a little known chronic blood disorder (ITP) and had to do the research to find out exactly what I had. I am also a full-time caregiver for my disabled husband and have interviewed health professionals and other caregivers to succeed at this task.
I have used my skill at searching out answers to write articles for newspapers, blogs, websites, etc on various health related topics.
I have been working with patient communities and health activists for 20+ years, helping dozens of companies (including biotech, pharma, recruitment firms and CROs) recruit patients for clinical trials through influencer-driven innovative digital programs. If you're interested in adding a patient influencer strategy to your recruitment efforts, please contact me.
I am a nurse and respiratory therapist. My daughter has a progressive heart disease and while being her healthcare support I have found myself being an advocate for many others. I am now doing this as a career. My mission is to be able to accompany the client through their illness or wellness to a meaningful experience.
Office visit companion
Care plan review and advising
Locating specialist for needed care
Audit medical billing and/or intervention as requested
Coordinate home care to aid in keeping client grounded in their environment
Evaluating facility needs if home care is not feasible
Acquiring durable medical equipment when applicable
Brigitte is a Certified Health Coach, also certified through the International Health Coach Association, and formally educated in Corporate Wellness training. Her articles have been featured on Wellness.com, Sharecare.com, and Huffington Post lifestyle.
Brigitte is a two-time cancer survivor, yoga enthusiast, and motivational speaker.
Standard options that can be customized for your company:
* Lunch and Learn Onsite Workshops
* Live Online Programs
* Stress Management Solutions
* Importance of "moving" and stretching
* Health and Safety Fairs
* Motivational Speaking
I am a Freelance Medical Writer and Patient/Research Advocate with clinical and research laboratory background (BS, Medical Technology; MS, Microbiology and Immunology). I have a particular interest in immunotherapy and have participated in a clinical trial investigating a dendritic cell vaccine for breast cancer (DCIS)
Strategic communicator with more than 7 years of experience building relationships, trust, and community online, particularly around young adult cancer advocacy. I am an experienced public speaker, giving keynotes, survivor speeches, serving on panels, and leading workshops on issues around survivorship, financial challenges, dating and sexuality, and career advancement. My audiences have ranged from medical and insurance professionals, fellow survivors, college students, and fundraising engagements.
Traci Patterson has a dynamic background from a perspective that few if any other instructors, practitioners or clinical hypnotist can offer. Her background as a chronic pain patient diagnosed with Complex Regional Pain Syndrome (CRPS), someone that was treated with/utilized hypnosis to get into remission, and is now treating other chronic pain patients is rare. She has patients, teens to geriatrics, which contact her globally searching for answers and relief.
Through an evidence based, non-invasive, drug free treatment protocol; HCT; chronic pain patients are dramatically decreasing pain, regaining functional levels (many are gaining remission), increasing restorative sleep, decreasing stress and anxiety, and regaining their lives.
If you or someone you know is living with chronic pain please contact us for a free confidential consultation. If you are part of an organization looking for speakers on chronic pain, health/wellness or motivation - call today!
Upon recognizing significant unmet needs and challenges in patients’ journeys throughout their cancer diagnosis, Dr. Grace Cordovano founded Enlightening Results, LLC in 2010. As the culmination of her life’s experiential learning and education, Dr. Cordovano is dedicated to fostering private, personalized patient advocacy services, specializing in the cancer arena. She strategically and empathetically guides her clients through survivorship or end-of-life care, ensuring they are armed with the most pertinent, medically credible, easy to understand information so as to make empowered decisions about their care. Grace is a firm believer in the continuous advancement and improvement of cancer patient experiences through the infusion of empathic design and thinking into current healthcare paradigms. A frequent questioner of the status quo, she leaves no stone or process unturned in her quest to improve overall patient experiences across the continuum of patient care.
After a lifetime working in both health communications and community organizing, Ken was diagnosed with metastatic bladder cancer. With numerous relatives that had cancer including his father; grandmother; and aunts, he was tested and found to be positive with a rare variant of the BRCA1 gene.
He now has no evidence of disease progression and has been an active advocate for patient access to data. The story of his family's struggle with cancer and his advocacy work has been featured in Newsweek ( http://www.newsweek.com/2016/07/29/war-over-cancer-patient-data-myriad-481608.html ). He has both guest blogged for the ACLU ( https://www.aclu.org/blog/privacy-technology/medical-and-genetic-privacy/henrietta-lacks-story-powerful-lesson-patients) and has been working with them as part of their Our Genes Our Data campaign ( https://www.aclu.org/cases/our-genes-our-data-patients-right-access-their-own-genetic-information).
Ken Taylor has be a caregiver since 2003 for his wife who has multiple chronic pain diseases. Ken is a former licensed insurance agent. Ken worked in the banking industry for 12 years at MCM, Bank of America, Wells Fargo, and Neiheisel Law Firm. Currently, Ken is a broadcast engineer for Dish Network. Ken also serves as the VP of the International Pain Foundation, is on the board of advisers for Pain Pathways Magazine, is the graphics editor for iPain Living Magazine. Ken serves on several pain advocacy coalitions including the Consumer Pain Advocacy Task Force and State Pain Policy Advocacy Network. He is an Amazon best selling author, motivational speaker, and Reality TV Personality sharing his story of caregiving and helping others better understand the healthcare system.
Diagnosed with AIDS in 2000, an Advocate and Activist on HIV/AIDS since 2001. Anal Cancer survivor since 2015. Colostomate since 2016. Diagnosed with Depression in 2002. PTSD due to Health Issues in 2017.
Have done Prevention Education to high schools, colleges & universities, approx 3000 students a year in Orange County, CA.
CA Certified HIV Tester & Counselor for a HIV Service Agency & Addiction Rehabilitation Homes in the area.
When I was diagnosed with breast cancer in 2009, I went looking for resources to help me through my journey. I did extensive research into both the medical and psychological experiences i would encounter because I feel that the more I know, the better I'll be able to handle whatever comes my way. When I couldn't find the resource I was looking for - a girlfriend's guide to breast cancer - I decided to write it myself. What started as a blog, became a book published by HarperCollins in 2015.
After "Bald is Better with Earrings - A Survivor's Guide to Breast Cancer" was published, I became interested in advocacy and in making sure that the patient's voice is heard. I graduated from Project Lead, am an Alamo Scholar, a Komen Advocate in Science and a state leader for Young Survival Coalition. In addition, I have a background in marketing and am used to working with C-Suite executives to further their company missions. I know I would be an asset to WEGO.
Rick Davis has been a serial social entrepreneur for over 20 years. He has established food banks overseas, as well as campaigned on social and discrimination issues. Since his own Stage 3 prostate cancer diagnosis in 2007, Rick has been recognized and honored both locally and nationally for personal & e-patient support, peer-to-peer navigation, and national advocacy,
With expertise in prostate cancer, cancer genomics, optimizing your medical team and treatment paths, and promoting exercise - Rick has changed and lengthened lives!.
Rick holds an MBA from Chicago Booth, and a BSc from University of Manchester, UK. Prior to entering the non-profit arena, he worked in banking and real estate for Chase, major developers. and high net-worth individuals with interests in professional sports, entertainment and real estate. He is an avid sculler and dab hand in the kitchen!
In 2016 Rick formed Answer Cancer Foundation https://ancan.org, home of virtual live support groups.
I am a veteran Advocate focused on educating and spreading the word about issues that are often ignored, negatively stigmatized and/or are often overlooked because the numbers involved don't warrant the attention these issues rightly deserve. My heart is in education and awareness for women's gynecological health, awareness for and education on the disease of Addiction (aka, substance use disorder) and reform in the rehab and recovery sector. I am also an advocate for reform in adoption rights and awareness and education for the Autism spectrum. I am known for my ability to "get the word out" and coming up with catchy tag lines and social media campaigns for education and awareness. I am a speaker and a writer and I have been successful in organizing/branding a worldwide social media support group for women diagnosed with a rare and aggressive form of gynecological cancer. I've taken my life experiences, the strengths of my personality and skill set and turned them into my passion!
Information and advice about all areas of life affected by a health condition, starting with initial diagnosis through end of life. Founder of web site which provides practical information including medical care, finance, insurance, government benefits, day-to-day living, work issues, and emotions. Author BE PREPARED published by St. Martin's press. All types of health conditions, including life threatening health conditions. Helps patients become more knowledgeable and in control.
10 years as a cancer patient advocate who has become recognized internationally by sharing my weekly blog on my website and in syndication on the Huffington Post. I also host a daily "in the News" feature and inspirational postings which I share through social media by way of Twitter, Facebook, Instagram, LinkedIn, Pinterest and Google+