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Top Cancer Patient Advocates

Katie

Cancer Survivorship Professional, Cancer Advocate and Patient Navigator, Digital Communities Expert

Katie
Cancer
Caregiving
Cervical Cancer
Chronic Illness
Cirrhosis
Clinical Trials
Diabetes - Type 2
Liver Diseases
Lung Cancer
Thyroid Diseases
Women's Health
1 More 1 Less
Blogger
Consumer Engagement
Event Planner
Online Moderation
Other
Peer Support
Program Development
Social Media
Social Networking
North Richland Hills, TX
available as required

I am a professional cancer survivorship expert working at a leading lung cancer non profit. I have been a patient advocate for over 14 years.
I have the unique past experience of being both a cancer patient and a lung cancer caregiver and I represent the voice of the patient and caregiver in all that we do as a Foundation. I am the founder of the Lung Cancer Support Community, helped start the first lung cancer 5K and in-person support group and a recipient of numerous awards and articles. I sat on the board of Global Resource for Advancing Cancer Education, past LiveSTRONG Leader, current member of AONN, ASCO and VMCC as well as collaborate with national organizations and healthcare providers across the country gaining valuable insight and knowledge. I contribute to articles & blogs and have been asked to speak at events with a special interest in cancer survivorship, patient support, caregiving, cancer advocacy training & the use of social media to promote good works.

Alicia

Patient Advocacy, Social Media and Community Management

Alicia
Breast Cancer
Cancer
Consumer Engagement
Consumer Insights
Digital Marketing
Health Data Tracking
Influencer Marketing
Online Moderation
Peer Support
Product & App Testing
Social Media
Social Networking
Usability Testing
1 More 1 Less
Charlestown, MA
available 10-20 hours/week

Alicia has in-depth knowledge of the power of online communities and provides direction to companies looking to build platforms to interact with consumers and patients in meaningful ways.
She regularly speaks at conferences throughout the US. She has presented at Livestrong’s Rev2014, American Society for Breast Surgeons Annual Meeting, South by South West Interactive Conference (SXSWi), 140 Boston, and Social Media for Pharma. As an inspirational speaker, Alicia reaches many different audiences, providing insight into life as a 25+ year cancer survivor and support in efficient, effective ways.

Gregory

Founder & President of Greg's Mission - One on One Brain Cancer Support

Gregory
Brain Cancer
Cancer
Operations
Other
Peer Support
Social Networking
Kyle, TX
available 40+ hours/week

I was 30 years old when he was diagnosed with a Glioblastoma Multiforme (GBM), a primary brain tumor. Even though I had the support from my family and friends I didn’t know anyone that could relate to the fight I was about to embark on or beaten the same type of cancer. In 2012 I founded a non-profit called Greg’s Mission.

Greg’s Mission provides support, HOPE, education, current resources and awareness to patients suffering from brain tumors especially Glioblastoma Multiforme (a grade IV primary brain tumor) via phone, email, skype and personal visits. I have dedicated my life to making sure that no person diagnosed with a brain tumor has to go through the experience alone and that no family or caregiver goes without support.

Since founding GM I have helped over 2800 patients, families and caregivers navigate their brain tumor journey. Additionally, I volunteer at MD Anderson, Cleveland Clinic and The Children’s Brain Tumor Foundation as a patient mentor and advocate.

Lana

Freelance Health and Science Writer for Hire

Lana
Aging/Senior Health
Autoimmune Diseases
Cancer
Chronic Illness
Depression
Health Public Policy
Healthy Living
Nutrition
Pain (Chronic Pain, Joint Pain, Back Pain)
Parenting and Family Health
Women's Health
1 More 1 Less
Blogger
Clinical Research
Consumer Engagement
Consumer Insights
Copywriter
Crowdsourcing
Digital Marketing
Editor
Influencer Marketing
Peer Support
Proofreader
Public Relations
Reporter
Social Media
Social Networking
Strategy
6 More 6 Less
Indianapolis, IN
available 40+ hours/week

I am a freelance health and science writer for hire. I help businesses get results with quality content. I create compelling content that has a proven track record of driving online engagement.

I can help you reach the right audience, create better content, raise brand awareness and make more money. I can translate complex health and science topics into plain language.

I have a Bachelor of Science degree from Butler University and graduated summa cum laude with a double major in biology and chemistry. I have extensive online writing experience. I have published on Yahoo! News, CNN iReport, Lifescript.com, The Huffington Post and many other publications.

Greta

Experienced in Researching and Writing Content about Health Related Topics

Greta
Addison's Disease
ADHD (Attention Deficit/Hyperactivity Disorder)
Aging/Senior Health
ALS (Amyotrophic Lateral Sclerosis)
Alternative Medicine
Alzheimer's Disease
Anemia
Anxiety
Arthritis
Autoimmune Diseases
Blood Disorders
Breast Cancer
Cancer
Caregiving
Carpal Tunnel Syndrome
Cholesterol
Chronic Illness
Colorectal (Colon) Cancer
Crohn's Disease
Developmental Disabilities
Diabetes
Disabilities
Fibromyalgia
Heart Disease
Heart Health
Hemophilia
Learning Disorders
Lupus
Migraine
Non-Hodgkin's Lymphoma
Other
Parkinson's Disease
Rare Diseases
Restless Legs Syndrome
Stroke
Thyroid Diseases
26 More 26 Less
Blogger
Consumer Insights
Copywriter
Influencer Marketing
Marketing
Peer Support
Proofreader
Reporter
Social Media
Social Networking
Green Sea, SC
available 10-20 hours/week

I am a freelance journalist specializing in researching and writing about health related issues. My interest in this field began when I was diagnosed with a little known chronic blood disorder (ITP) and had to do the research to find out exactly what I had. I am also a full-time caregiver for my disabled husband and have interviewed health professionals and other caregivers to succeed at this task.

I have used my skill at searching out answers to write articles for newspapers, blogs, websites, etc on various health related topics.

Fabio

Influencer-Powered Clinical Trial Recruitment Expert

Fabio
ADHD (Attention Deficit/Hyperactivity Disorder)
Aging/Senior Health
Alzheimer's Disease
Anxiety
Aphasia
Arthritis
Asthma
Atrial Fibrillation
Autoimmune Diseases
Bipolar Disorder
Blood Disorders
Bone Cancer
Brain Cancer
Brain Health
Breast Cancer
Cancer
Caregiving
Cervical Cancer
Cholesterol
Chronic Illness
Clinical Trials
Colorectal (Colon) Cancer
Crohn's Disease
Cushing's Disease
Cystic Fibrosis
Dementia
Depression
Diabetes
Diabetes - Type 1
Diabetes - Type 2
Duchenne Muscular Dystrophy
Epilepsy
Fibromyalgia
Gastrointestinal Diseases
Gaucher's Disease
GIST
Heart Disease
Heart Health
Hepatitis C
HIV/AIDS
IBD (Inflammatory Bowel Disease)
Irritable Bowel Syndrome
Liver Cancer
Lung Cancer
Lupus
Lymphoma
Melanoma
Men's Health
Menopause
Mental Health
Migraine
Multiple Sclerosis
Myeloma
Neuromuscular Disorders
Non-Hodgkin's Lymphoma
Ovarian Cancer
Pain (Chronic Pain, Joint Pain, Back Pain)
Pancreatic Neuroendocrine Tumors
Parenting and Family Health
Parkinson's Disease
Pregnancy
Prostate Cancer
Psoriasis
Psoriatic Arthritis
Rare Diseases
Rheumatoid Arthritis
Schizophrenia
Seasonal Allergy
Seizures
Sexual Health
Sickle Cell Disease
Sleep and Sleep Disorders
Stroke
Ulcerative Colitis
Women's Health
65 More 65 Less
Costa Mesa, CA
available 40+ hours/week

I have been working with patient communities and health activists for 20+ years, helping dozens of companies (including biotech, pharma, recruitment firms and CROs) recruit patients for clinical trials through influencer-driven innovative digital programs. If you're interested in adding a patient influencer strategy to your recruitment efforts, please contact me.

MaDonna

Advocating Healthcare Consultants

MaDonna
Addiction
ADHD (Attention Deficit/Hyperactivity Disorder)
Aging/Senior Health
Alternative Medicine
Arthritis
Autoimmune Diseases
Birth Defects
Bone Diseases
Cancer
Caregiving
Children's Health
Diabetes
Healthy Living
Heart Disease
Heart Health
Infertility
Men's Health
Pain (Chronic Pain, Joint Pain, Back Pain)
Parenting and Family Health
Pregnancy
Rare Diseases
Sexual Health
Sleep and Sleep Disorders
Smoking Cessation
Thyroid Diseases
Women's Health
16 More 16 Less
Health Data Tracking
Program Development
Public Relations
Peewee Valley, KY
available 31-40 hours/week

I am a nurse and respiratory therapist. My daughter has a progressive heart disease and while being her healthcare support I have found myself being an advocate for many others. I am now doing this as a career. My mission is to be able to accompany the client through their illness or wellness to a meaningful experience.

Services include:
Office visit companion
Care plan review and advising
Locating specialist for needed care
Audit medical billing and/or intervention as requested
Coordinate home care to aid in keeping client grounded in their environment
Evaluating facility needs if home care is not feasible
Acquiring durable medical equipment when applicable

Brigitte

Founder, The WorkWell Initiative

Brigitte
Alternative Medicine
Brain Cancer
Breast Cancer
Cancer
Fitness
Healthy Living
Melanoma
Menopause
Nutrition
Women's Health
Blogger
Business Development
Copywriter
Editor
Influencer Marketing
Proofreader
Acworth, GA
available as required

Brigitte is a Certified Health Coach, also certified through the International Health Coach Association, and formally educated in Corporate Wellness training. Her articles have been featured on Wellness.com, Sharecare.com, and Huffington Post lifestyle.

Brigitte is a two-time cancer survivor, yoga enthusiast, and motivational speaker.

Standard options that can be customized for your company:
* Lunch and Learn Onsite Workshops
* Live Online Programs
* Stress Management Solutions
* Importance of "moving" and stretching
* Health and Safety Fairs
* Motivational Speaking

Marie

Freelance Medical Writer/Patient Advocate

Marie
Alzheimer's Disease
Breast Cancer
Cancer
Leukemia
Lymphoma
Myeloma
Clinical Research
Copywriter
Editor
Marketing
Peer Support
Project Management
Public Relations
available as required

I am a Freelance Medical Writer and Patient/Research Advocate with clinical and research laboratory background (BS, Medical Technology; MS, Microbiology and Immunology). I have a particular interest in immunotherapy and have participated in a clinical trial investigating a dendritic cell vaccine for breast cancer (DCIS)

Allison

Effective Patient Advocate and Dynamic Communications Professional

Allison
Anxiety
Cancer
Health Public Policy
Lymphoma
Polycystic Ovarian Syndrome
Post-Traumatic Stress Disorder
Blogger
Consumer Engagement
Consumer Insights
Copywriter
Crowdsourcing
Digital Marketing
Editor
Influencer Marketing
Marketing
Online Moderation
Peer Support
Product & App Testing
Public Relations
Social Media
Social Networking
Strategy
Usability Testing
UX/User Design
8 More 8 Less
MEDFORD, MA
available as required

Strategic communicator with more than 7 years of experience building relationships, trust, and community online, particularly around young adult cancer advocacy. I am an experienced public speaker, giving keynotes, survivor speeches, serving on panels, and leading workshops on issues around survivorship, financial challenges, dating and sexuality, and career advancement. My audiences have ranged from medical and insurance professionals, fellow survivors, college students, and fundraising engagements.

Traci

Founder and Director, Advanced Pathways | CRPS & Chronic Pain Expert | Helping chronic pain patients regain their lives!

Traci
Anxiety
Cancer
Complex Regional Pain Syndrome
Depression
Fibromyalgia
Migraine
Other
Pain (Chronic Pain, Joint Pain, Back Pain)
Post-Traumatic Stress Disorder
Reflex Sympathetic Dystrophy
Irvine, CA
available 31-40 hours/week

Traci Patterson has a dynamic background from a perspective that few if any other instructors, practitioners or clinical hypnotist can offer.  Her background as a chronic pain patient diagnosed with Complex Regional Pain Syndrome (CRPS), someone that was treated with/utilized hypnosis to get into remission, and is now treating other chronic pain patients is rare.  She has patients, teens to geriatrics, which contact her globally searching for answers and relief.

Through an evidence based, non-invasive, drug free treatment protocol; HCT; chronic pain patients are dramatically decreasing pain, regaining functional levels (many are gaining remission), increasing restorative sleep, decreasing stress and anxiety, and regaining their lives.

If you or someone you know is living with chronic pain please contact us for a free confidential consultation. If you are part of an organization looking for speakers on chronic pain, health/wellness or motivation - call today!
(714)717-6633

Grace

Clarity Provider | Healthcare Navigating Solutionist | Patient Experience Innovator

Grace
Brain Cancer
Breast Cancer
Cancer
Caregiving
Cervical Cancer
Colorectal (Colon) Cancer
Kidney Cancer
Leukemia
Liver Cancer
Lung Cancer
Lymphoma
Melanoma
Non-Hodgkin's Lymphoma
Ovarian Cancer
Prostate Cancer
Skin Cancer
Thyroid Cancer
Uterine Cancer
8 More 8 Less
Blogger
Consumer Engagement
Executive Coach
Peer Support
Social Media
Social Networking
Strategy
Usability Testing
UX/User Design
West Caldwell , NJ
available 21-30 hours/week

Upon recognizing significant unmet needs and challenges in patients’ journeys throughout their cancer diagnosis, Dr. Grace Cordovano founded Enlightening Results, LLC in 2010. As the culmination of her life’s experiential learning and education, Dr. Cordovano is dedicated to fostering private, personalized patient advocacy services, specializing in the cancer arena. She strategically and empathetically guides her clients through survivorship or end-of-life care, ensuring they are armed with the most pertinent, medically credible, easy to understand information so as to make empowered decisions about their care. Grace is a firm believer in the continuous advancement and improvement of cancer patient experiences through the infusion of empathic design and thinking into current healthcare paradigms. A frequent questioner of the status quo, she leaves no stone or process unturned in her quest to improve overall patient experiences across the continuum of patient care.

Ken

BRCA+ Metastatic Cancer Patient Focused on Finding Hope and Patient Access to Data

Ken
Cancer
Peer Support
Cambridge, MA
available as required

After a lifetime working in both health communications and community organizing, Ken was diagnosed with metastatic bladder cancer. With numerous relatives that had cancer including his father; grandmother; and aunts, he was tested and found to be positive with a rare variant of the BRCA1 gene.

He now has no evidence of disease progression and has been an active advocate for patient access to data. The story of his family's struggle with cancer and his advocacy work has been featured in Newsweek ( http://www.newsweek.com/2016/07/29/war-over-cancer-patient-data-myriad-481608.html ). He has both guest blogged for the ACLU ( https://www.aclu.org/blog/privacy-technology/medical-and-genetic-privacy/henrietta-lacks-story-powerful-lesson-patients) and has been working with them as part of their Our Genes Our Data campaign ( https://www.aclu.org/cases/our-genes-our-data-patients-right-access-their-own-genetic-information).

Ken

Vice President, International Pain Foundation & Caregiver

Ken
Cancer
Caregiving
Celiac Disease
Chronic Illness
Complex Regional Pain Syndrome
Crohn's Disease
Depression
Diabetes
Disabilities
Dystonia
Endometriosis
Epilepsy
Eye Health/Diseases
Fibromyalgia
Fitness
Food Allergy
Gastrointestinal Diseases
Health Public Policy
Healthy Living
Heart Disease
Hemophilia
HIV/AIDS
Learning Disorders
Lupus
Men's Health
Migraine
Multiple Sclerosis
Muscular Dystrophy
Neuromuscular Disorders
Nutrition
Oral Health
Osteoporosis
Other
Pain (Chronic Pain, Joint Pain, Back Pain)
Post-Traumatic Stress Disorder
Psoriasis
Reflex Sympathetic Dystrophy
Rheumatoid Arthritis
Seizures
Sexual Health
Sjogren's Syndrome
Skin Cancer
Skin Health/Diseases
Sleep and Sleep Disorders
Thyroid Cancer
Thyroid Diseases
Ulcerative Colitis
Women's Health
38 More 38 Less
Business Development
Clinical Research
Consumer Engagement
Consumer Insights
Crowdsourcing
Digital Marketing
Editor
Event Planner
Finance
Health Data Tracking
Influencer Marketing
Marketing
Mobile App Design
Mobile App Development
Online Moderation
Operations
Other
Peer Support
Product & App Testing
Product Development
Program Development
Project Management
Public Relations
Reporter
Social Media
Social Networking
Strategy
17 More 17 Less
San Tan Valley, AZ
available less than 10 hours/week

Ken Taylor has be a caregiver since 2003 for his wife who has multiple chronic pain diseases. Ken is a former licensed insurance agent. Ken worked in the banking industry for 12 years at MCM, Bank of America, Wells Fargo, and Neiheisel Law Firm. Currently, Ken is a broadcast engineer for Dish Network. Ken also serves as the VP of the International Pain Foundation, is on the board of advisers for Pain Pathways Magazine, is the graphics editor for iPain Living Magazine. Ken serves on several pain advocacy coalitions including the Consumer Pain Advocacy Task Force and State Pain Policy Advocacy Network. He is an Amazon best selling author, motivational speaker, and Reality TV Personality sharing his story of caregiving and helping others better understand the healthcare system.

Daniel

Founder; Lilmesican Productions, Put It Together Podcast,

Daniel
Addiction
Anxiety
Arthritis
Cancer
Depression
HIV/AIDS
Migraine
Post-Traumatic Stress Disorder
Sexual Health
Social Media
Laguna Beach, CA
available as required

Diagnosed with AIDS in 2000, an Advocate and Activist on HIV/AIDS since 2001. Anal Cancer survivor since 2015. Colostomate since 2016. Diagnosed with Depression in 2002. PTSD due to Health Issues in 2017.
Have done Prevention Education to high schools, colleges & universities, approx 3000 students a year in Orange County, CA.
CA Certified HIV Tester & Counselor for a HIV Service Agency & Addiction Rehabilitation Homes in the area.

Andrea

patient advocate, breast cancer survivor, writer

Andrea
Anxiety
Breast Cancer
Cancer
Clinical Trials
Health Public Policy
Healthy Living
Migraine
Women's Health
Blogger
Clinical Research
Consumer Engagement
Copywriter
SANTA BARBARA, CA
available 40+ hours/week

When I was diagnosed with breast cancer in 2009, I went looking for resources to help me through my journey. I did extensive research into both the medical and psychological experiences i would encounter because I feel that the more I know, the better I'll be able to handle whatever comes my way. When I couldn't find the resource I was looking for - a girlfriend's guide to breast cancer - I decided to write it myself. What started as a blog, became a book published by HarperCollins in 2015.
After "Bald is Better with Earrings - A Survivor's Guide to Breast Cancer" was published, I became interested in advocacy and in making sure that the patient's voice is heard. I graduated from Project Lead, am an Alamo Scholar, a Komen Advocate in Science and a state leader for Young Survival Coalition. In addition, I have a background in marketing and am used to working with C-Suite executives to further their company missions. I know I would be an asset to WEGO.

Rick

Nationally Recognized Patient Advocate - Prostate Cancer, Cancer Navigation, Patient Navigation,e-Support

Rick
Brain Cancer
Cancer
Caregiving
Cholesterol
Clinical Trials
Colorectal (Colon) Cancer
Dementia
Depression
Fitness
Healthy Living
Irritable Bowel Syndrome
Osteoporosis
Prostate Cancer
3 More 3 Less
Blogger
Business Development
Executive Coach
Online Moderation
Peer Support
Project Management
Strategy
available as required

Rick Davis has been a serial social entrepreneur for over 20 years. He has established food banks overseas, as well as campaigned on social and discrimination issues. Since his own Stage 3 prostate cancer diagnosis in 2007, Rick has been recognized and honored both locally and nationally for personal & e-patient support, peer-to-peer navigation, and national advocacy,
With expertise in prostate cancer, cancer genomics, optimizing your medical team and treatment paths, and promoting exercise - Rick has changed and lengthened lives!.
Rick holds an MBA from Chicago Booth, and a BSc from University of Manchester, UK. Prior to entering the non-profit arena, he worked in banking and real estate for Chase, major developers. and high net-worth individuals with interests in professional sports, entertainment and real estate. He is an avid sculler and dab hand in the kitchen!
In 2016 Rick formed Answer Cancer Foundation https://ancan.org, home of virtual live support groups.

Colleen

Cofounder, Sorority of Hope Sisterhood /Speaker and Author

Colleen
Autoimmune Diseases
Cancer
Cervical Cancer
Neuroendocrine Cancer
Thyroid Cancer
Blogger
Consumer Engagement
Crowdsourcing
Event Planner
Peer Support
Public Relations
Social Media
available 31-40 hours/week

I am a veteran Advocate focused on educating and spreading the word about issues that are often ignored, negatively stigmatized and/or are often overlooked because the numbers involved don't warrant the attention these issues rightly deserve. My heart is in education and awareness for women's gynecological health, awareness for and education on the disease of Addiction (aka, substance use disorder) and reform in the rehab and recovery sector. I am also an advocate for reform in adoption rights and awareness and education for the Autism spectrum. I am known for my ability to "get the word out" and coming up with catchy tag lines and social media campaigns for education and awareness. I am a speaker and a writer and I have been successful in organizing/branding a worldwide social media support group for women diagnosed with a rare and aggressive form of gynecological cancer. I've taken my life experiences, the strengths of my personality and skill set and turned them into my passion!

david s.

Advisor. Writer, Speaker, Overcoming Financial and Other Barriers To Care. Lawyer

david s.
Cancer
Chronic Illness
Hepatitis C
HIV/AIDS
Parenting and Family Health
Consumer Engagement
Editor
Marketing
Program Development
Strategy
New York, NY
available 21-30 hours/week

Information and advice about all areas of life affected by a health condition, starting with initial diagnosis through end of life. Founder of web site which provides practical information including medical care, finance, insurance, government benefits, day-to-day living, work issues, and emotions. Author BE PREPARED published by St. Martin's press. All types of health conditions, including life threatening health conditions. Helps patients become more knowledgeable and in control.

Barbara

Founder, Let Life Happen

Barbara
Cancer
Blogger
Sherman Oaks, CA
available as required

10 years as a cancer patient advocate who has become recognized internationally by sharing my weekly blog on my website and in syndication on the Huffington Post. I also host a daily "in the News" feature and inspirational postings which I share through social media by way of Twitter, Facebook, Instagram, LinkedIn, Pinterest and Google+


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