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Aging and Senior Living Health Activists

Katie

Cancer Survivorship Professional, Cancer Advocate and Patient Navigator, Digital Communities Expert

Katie
Cancer
Caregiving
Cervical Cancer
Chronic Illness
Cirrhosis
Clinical Trials
Diabetes - Type 2
Liver Diseases
Lung Cancer
Thyroid Diseases
Women's Health
1 More 1 Less
Blogger
Consumer Engagement
Event Planner
Online Moderation
Other
Peer Support
Program Development
Social Media
Social Networking
North Richland Hills, TX
available as required

I am a professional cancer survivorship expert working at a leading lung cancer non profit. I have been a patient advocate for over 14 years.
I have the unique past experience of being both a cancer patient and a lung cancer caregiver and I represent the voice of the patient and caregiver in all that we do as a Foundation. I am the founder of the Lung Cancer Support Community, helped start the first lung cancer 5K and in-person support group and a recipient of numerous awards and articles. I sat on the board of Global Resource for Advancing Cancer Education, past LiveSTRONG Leader, current member of AONN, ASCO and VMCC as well as collaborate with national organizations and healthcare providers across the country gaining valuable insight and knowledge. I contribute to articles & blogs and have been asked to speak at events with a special interest in cancer survivorship, patient support, caregiving, cancer advocacy training & the use of social media to promote good works.

Barby

President International Pain Foundation, Author, 850+ media appearances, Webfluential Verified Content Creator

Barby
Alternative Medicine
Arthritis
Autoimmune Diseases
Breast Cancer
Caregiving
Chronic Illness
Clinical Trials
Complex Regional Pain Syndrome
Depression
Dystonia
Endometriosis
Epilepsy
Eye Health/Diseases
Food Allergy
Gastrointestinal Diseases
Heart Disease
IBD (Inflammatory Bowel Disease)
Learning Disorders
Migraine
Pain (Chronic Pain, Joint Pain, Back Pain)
Rare Diseases
Reflex Sympathetic Dystrophy
Thyroid Diseases
Ulcerative Colitis
Women's Health
15 More 15 Less
Blogger
Business Development
Editor
Event Planner
Health Data Tracking
Influencer Marketing
Marketing
Mobile App Design
Mobile App Development
Online Moderation
Operations
Peer Support
Product & App Testing
Project Management
Public Relations
Reporter
Social Media
Social Networking
Strategy
9 More 9 Less
San Tan Valley, AZ
available less than 10 hours/week

I advocate for all challenged with chronic pain as well as their family, caregivers, healthcare professionals & public. My speaking engagements, media interviews, and books on chronic pain inspire patient engagement filled with HOPE & motivation. I have been battling chronic pain since 1997. First with endometriosis. Then in 2002, I developed Reflex Sympathetic Dystrophy (RSD), RA, hypothyroid, migralepsy, TMJ and more. My content creation offers practical advice, tips and tricks for better daily living and resolutions to the challenges of living with chronic pain. I have had a medical journey with twist and turns and now educate others on navigating the minefield of the healthcare system. I serve on multiple pain advisory boards and coalitions. WEGO Awards 2012 Ms Congeniality, 2016 Lifetime Achievement, 2016 Best Team Performance. For more information on me check out www.barbyingle.com

Sarah

Communications Consultant

Sarah
Caregiving
Chronic Illness
Other
Pain (Chronic Pain, Joint Pain, Back Pain)
Rare Diseases
Restless Legs Syndrome
Stroke
Thyroid Diseases
Blogger
Consumer Insights
Copywriter
Editor
Marketing
Online Moderation
Other
Peer Support
Program Development
Proofreader
Public Relations
Reporter
Social Media
Social Networking
4 More 4 Less
Charlotte, NC
available 10-20 hours/week

Sarah E. Kucharski is a consultant, public speaker and advocate fostering the patient voice in medicine through storytelling, social media and design thinking for innovation. Her special interests include narrative medicine, patient engagement, the patient experience, the doctor-patient relationship, the patient-caregiver relationship, chronic illness, end-of-life issues, clinical trials, health literacy, and social media's ability to connect for peer-to-peer support and medical education.

Her professional experience includes 17 years in public relations, news reporting, magazine writing, and editing for print and online publications. She has a B.A. in journalism, a M.A. in liberal studies, and a certificate from Columbia University's Narrative Medicine program.

Kayla

Writer + Marketer + Web Designer + Business Consultant + Advocate (Living with MS)

Kayla
Autoimmune Diseases
Chronic Illness
Depression
Endometriosis
Healthy Living
Multiple Sclerosis
Pain (Chronic Pain, Joint Pain, Back Pain)
Seasonal Allergy
Women's Health
Blogger
Business Development
Clinical Research
Consumer Engagement
Consumer Insights
Copywriter
Crowdsourcing
Digital Marketing
Editor
Health Data Tracking
Influencer Marketing
Marketing
Mobile App Design
Online Moderation
Peer Support
Product & App Testing
Product Development
Project Management
Proofreader
Reporter
Social Media
Social Networking
Strategy
Usability Testing
UX/User Design
15 More 15 Less
Fergus Falls, MN
available 21-30 hours/week

In addition to being a "professional patient" living with MS and chronic pain, I have a varied career that includes writing, marketing, web design, education, and consulting. My perspective as a patient makes me particularly interested in helping businesses in the healthcare industry with their messaging and methods of reaching out to, interacting with, and supporting patients.

I can also make a mean veggie stir fry and talk about books for hours.

Lisa

Founder of Harvesting Happiness & Creator of Harvesting Happiness Talk Radio ~ Positive Lifestyle Management

Lisa
Aging/Senior Health
Alternative Medicine
Brain Health
Caregiving
Depression
Healthy Living
Menopause
Mental Health
Parenting and Family Health
Sexual Health
Thyroid Diseases
Women's Health
2 More 2 Less
Blogger
Business Development
Executive Coach
Influencer Marketing
Marketing
Other
Program Development
Reporter
Social Media
Social Networking
Strategy
1 More 1 Less
Los Angeles, CA
available as required

Lisa Cypers Kamen, M.A. is an applied positive psychology coach, author,
documentary filmmaker, and radio show host specializing in sustainable wellbeing and lifestyle management. Additionally, she is an experienced spokesperson and brand ambassador for corporations including The Florida Department of Citrus and Katie K Activewear.

Lisa’s global consulting practice focuses on mission-driven addiction and trauma recovery supporting clients in balancing their minds, bodies and emotions resulting in greater overall wellbeing and the transformation of Post-Traumatic Stress (PTS) into Post-Traumatic Growth (PTG). Through her work, clients are empowered and supported to achieve increased self-mastery, optimal functioning and to reclaim their lives.

Lisa is a 'reformed clinically depressed person' who leads by example the virtues of a balanced mind, body, spirit, and soul. She is a health advocate for depression/mental health, addiction, healthy aging, optimal lifestyle, and more.

Breck

Cystic Fibrosis Advocate

Breck
Caregiving
Children's Health
Cystic Fibrosis
Mental Health
Parenting and Family Health
Rare Diseases
Blogger
Peer Support
Reporter
Social Media
Social Networking
Hewitt, TX
available 10-20 hours/week

Breck Gamel, is a patient advocate and blogger at http://initforbennett.com. She is a mother of three young children, including Bennett, her seven year old with cystic fibrosis. Breck advocates for patients alongside the Cystic Fibrosis Foundation. Breck is leader within the Cystic Fibrosis Learning Network and co-chairs the Cystic Fibrosis Foundation's Patient and Family Research Advisory Council.

Bob

Founder Alzheimer's Reading Room

Bob
Alzheimer's Disease
Dementia
Blogger
Clinical Research
Editor
Executive Coach
Marketing
Social Media
Strategy
Delray Beach, FL
available 31-40 hours/week

Bob is the Founder of the Alzheimer's Reading Room (ARR). Bob is a recognized expert in the Alzheimer's community,and listed as one of the top ten Alzheimer's influencer(s) on the Internet. The ARR operates for the benefit of society, contains over 5,000 articles, and has published daily since July, 2009.

Bob is a frequent lecturer, speaker, trainer and has appeared in person, or been interviewed on television and radio more than 100 times. Bob is an expert speaker on Alzheimer's caregiving.

Speaking and training engagements include: conferences, education societies, adult day services, and assisted living and memory care facilities, This includes: speaking and training (CEUs) for the Alzheimer's Association.

Patient sourcing for pharmaceutical clinical trials via sponsored programs and our proprietary email list (31,200). We have the targets and we get results.

The ARR has the largest opt-in only, curated, subscriber list of Alzheimer's community members in the world.

Linda

Social Firebrand, Patient Advocate, Healthcare Transformation Specialist

Linda
Aging/Senior Health
Anxiety
Caregiving
CFS (Chronic Fatigue Syndrome)
Children's Health
COPD (Chronic Obstructive Pulmonary Disease)
Dementia
Thyroid Cancer
Blogger
Business Development
Clinical Research
Consumer Insights
Digital Marketing
Influencer Marketing
Marketing
Product Development
Social Media
Usability Testing
UX/User Design
1 More 1 Less
Nashville, TN
available 10-20 hours/week

Senior Transformation Specialist and Social Firebrand, Stotsky has represented companies including GE Healthcare, e-MDs, digiChart, BCBST and HMS/MEDHOST. She received GE Healthcare's CIS Award for outstanding achievement in Sales directed the the rollout of the 1st HIE in the state of Tennessee, and was a working member of HIMSS Standards and Interoperability Workgroup for Stage 1 Meaningful Use.

Stotsky is consistently named as one of “20 Health IT Influencers to Watch” by Healthcare IT Leaders. Most know her as @EMRAnswers, where she has been a social firebrand since 2009. A Social Ambassador at HIMSS national conference for the last three years, she is a frequent contributor to HealthcareIT News and,HIMSS Media,,

An outspoken advocate, and caregiver, she speaks about Patient Safety and Care Coordination, She walks as patient #117 in The Walking Gallery of Healthcare. She was recently named to the Healthcare Advisory Council at Fogo Data Centers. Volunteer e-Patient at s4PM.

Hetlena

The Lupus Liar / Living Your Best Life While Living with Lupus

Hetlena
Alternative Medicine
Anemia
Arthritis
Autoimmune Diseases
Caregiving
CFS (Chronic Fatigue Syndrome)
Chronic Illness
Lupus
Mental Health
Women's Health
Blogger
Clinical Research
Consumer Engagement
Copywriter
Editor
Event Planner
Executive Coach
Health Data Tracking
Influencer Marketing
Online Moderation
Peer Support
Program Development
Social Media
Social Networking
4 More 4 Less
Columbia, SC
available 21-30 hours/week

Hetlena has been integral in bringing lupus to the forefront of awareness in South Carolina. Her main goal is to raise awareness of and advocacy for lupus patients, like herself, in South Carolina. Hetlena now serves as the Chief Volunteer Officer of the newly transitioned LFA South Carolina Community Partner (LFASCCP). She leads and coordinates the training of support group leaders in the state of South Carolina. Her work with lupus sparked a partnership with the Institute for Partnership to Eliminate Health Disparities (IPEHD) Arnold School of Public Health of the University of South Carolina to spread the word on the development of a South Carolina Lupus Registry. Hetlena’s flagship company, The Lupus Liar, allows her to educate, advocate and raise awareness about lupus as a highly sought after speaker, critically acclaimed author, coach, presenter and trainer. She is well-versed in data management, community awareness strategies, and lupus education presentations.

Amy

Healthcare Marketer Living with MS

Amy
Multiple Sclerosis
Digital Marketing
Event Planner
Health Data Tracking
Marketing
Program Development
Project Management
Strategy
Canton, GA
available less than 10 hours/week

My experience spans nearly 20 years as a healthcare marketing professional. My MS diagnosis in 2014 has widened my understanding and helped me see how and why the patient perspective should be leveraged to affect marketing in healthcare, everything from fitness trackers to pharmaceuticals. I am willing to consider any request but I feel my most meaningful contributions would include elements of the following:

- Voice of a career-minded MS patient balancing parenthood while trying not to stumble over the sidewalk crack. I fit the healthcare target demographics - employed (and insured) female, early 40s with young children. Using my unique marketing insight, I can help create compelling messages that resonate with the intended audience.

-My MS workarounds - From fashionable footwear to blow drying my hair to managing the most out of my health plan, hacks healthy people would never imagine.

- Healthcare Marketing Today: From print ads to storytelling. A new art is emerging.

Jodi

Patient Health Advocate

Jodi
Multiple Sclerosis
Melrose, MA
available less than 10 hours/week

I was diagnosed with MS in 2008. Since then I have committed myself to being a advocate for others. I have participated in several conferences as a patient expert and am active in the online community.

Additionally, professionally I am a licensed independent clinical social worker and have worked as a medical social worker advocating for patients and families for many years. I also provide therapy in my private practice.

Lana

Freelance Health and Science Writer for Hire

Lana
Aging/Senior Health
Autoimmune Diseases
Cancer
Chronic Illness
Depression
Health Public Policy
Healthy Living
Nutrition
Pain (Chronic Pain, Joint Pain, Back Pain)
Parenting and Family Health
Women's Health
1 More 1 Less
Blogger
Clinical Research
Consumer Engagement
Consumer Insights
Copywriter
Crowdsourcing
Digital Marketing
Editor
Influencer Marketing
Peer Support
Proofreader
Public Relations
Reporter
Social Media
Social Networking
Strategy
6 More 6 Less
Indianapolis, IN
available 40+ hours/week

I am a freelance health and science writer for hire. I help businesses get results with quality content. I create compelling content that has a proven track record of driving online engagement.

I can help you reach the right audience, create better content, raise brand awareness and make more money. I can translate complex health and science topics into plain language.

I have a Bachelor of Science degree from Butler University and graduated summa cum laude with a double major in biology and chemistry. I have extensive online writing experience. I have published on Yahoo! News, CNN iReport, Lifescript.com, The Huffington Post and many other publications.

Sarah

Author, Health Writer, and Patient Advocate for Migraine and Mental Health

Sarah
Alternative Medicine
Anxiety
Bipolar Disorder
Birth Control
Caregiving
Child Behavior Disorders
Children's Health
Chronic Illness
Depression
Disabilities
Epilepsy
Healthy Living
Learning Disorders
Mental Health
Migraine
Pain (Chronic Pain, Joint Pain, Back Pain)
Parenting and Family Health
Post-Traumatic Stress Disorder
Pregnancy
Seasonal Allergy
Seizures
Sexual Health
Skin Health/Diseases
Women's Health
14 More 14 Less
Blogger
Business Development
Consumer Engagement
Copywriter
Digital Marketing
Editor
Finance
Human Resources
Influencer Marketing
Marketing
Online Moderation
Operations
Project Management
Proofreader
Reporter
Social Media
6 More 6 Less
Dripping Springs, TX
available as required

Sarah Hackley is most known for her work as a patient advocate spreading awareness of life with chronic migraine. She has been featured on numerous health blogs and is a regular contributor for Migraine.com, where she utilizes her personal experiences and educational background in neuropsychology to educate others on issues affecting the migraine community. She also is the author of two self-empowerment books, "Finding Happiness with Migraines: A Do It Yourself Guide" and "Preparing to Fly: Financial Freedom from Domestic Abuse." She also speaks, writes, and coaches patients on how to live fully and joyfully with chronic illness. Additional information can be found on her website: www.sarahhackley.com.

Nicole

Disabled Artist, Advocate, Blogger with background in video, graphics, public policy, and advocacy through social media

Nicole
Autoimmune Diseases
Chronic Illness
Fibromyalgia
Migraine
Multiple Sclerosis
Postural Orthostatic Tachycardia Syndrome
Blogger
Online Moderation
Other
Peer Support
Product & App Testing
Social Media
Social Networking
Usability Testing
Somerville, MA
available 21-30 hours/week

I'm a Blogger and multimedia artist with a focus on my patient experience, the experiences of the chronic illness community, as well as the realities of health care access and provision in the U.S. (from the patient perspective). I use social media and my artwork (video, sculpture, photography, and digital art) to share my experience with multiple sclerosis and all that comes with it, to share tools for those living with chronic illness, and to promoting the importance of patient voices in all aspects of care, product development, medical trials, policy development and health discourse as a whole . I have technical experience with graphic design, all aspects of explainer video production, and Blog at Chronicallysomething.com, on tumblr, and participate in "Voices of MS" on twitter.

Wendy

20+ Years Leader in Patient Ed

Wendy
Aging/Senior Health
Alzheimer's Disease
Aneurysms
Caregiving
Dementia
Diabetes - Type 2
Epilepsy
Fitness
Glaucoma
Gout
Healthy Living
Melanoma
Men's Health
Menopause
Mental Health
Obesity
Osteoporosis
Sleep and Sleep Disorders
Stroke
Women's Health
10 More 10 Less
Blogger
Business Development
Consumer Engagement
Copywriter
Digital Marketing
Editor
Marketing
Online Moderation
Program Development
Public Relations
Reporter
Social Media
Strategy
3 More 3 Less
Baltimore, MD
available as required

In the early 90s I went from my healthcare journalism background to both print and online marketing. I have a special expertise in reaching America's aging population, their families and caregivers. For 10 years I've had a Boomers & Beyond section on my website. I write and plan for this growing arena working with Fortune 500, non-profits, hospitals and many others....helping them win awards, gain recognition. You'll see much more as you continue.

Damon

Patient Advocate & Founder of the "Voices of MS" community

Damon
Multiple Sclerosis
Blogger
Consumer Engagement
Consumer Insights
Online Moderation
Product & App Testing
Social Media
Social Networking
Usability Testing
Pomona, CA
available 40+ hours/week

I am a patient advocate using my experience living with multiple sclerosis along with my degree in media studies and my creative mind to bring together a community and share the voices of people living with this chronic illness. I have worked in the customer service industry, where I was able to learn how to better serve people, and been self-employed where I was able to do more creative things such as design artwork for a small business and create crafts to sell on my own. I am now able to bring these different experiences together, along with my perspective as a patient and member of the health community, and utilize them to bring a fresh, creative approach to my work as a patient advocate. Additionally, my hobbies include creative writing, drawing, and enjoying film and television.

Cathy

Freelance Writer, Health Advocate

Cathy
Multiple Sclerosis
Basking Ridge, NJ
available as required

I am an award-winning freelance writer for my blog, AnEmpoweredSpirit.com, that focuses on living a quality life in midlife and despite disability. I am writer for other health-related websites including MultipleSclerosis.net and Multiple Sclerosis News Today. I am also the official blogger for the Consortium of Multiple Sclerosis Centers.

My expertise lies in my 30 years of living and managing an unpredictable and incurable autoimmune disease.

I received my BA in English/Business from Boston College. I also received a certificate in Patient Advocacy from the University of Miami that allows me to pay it forward to others who find themselves on the tricky journey of disease and disability.

As a freelance writer I've successfully married my love of the written word with my passion of helping others. My work not only appears on the sites listed above but also on other fine publications. I'm also a regular contributor to The Huffington Post and Mango Health.

Lisa

Patient Advocate, Writer, Community Expert

Lisa
Multiple Sclerosis
Rheumatoid Arthritis
Blogger
Consumer Engagement
Consumer Insights
Copywriter
Online Moderation
Proofreader
Social Media
Usability Testing
Falls Church, VA
available less than 10 hours/week

Lisa Emrich is a leading patient advocate who uses her experience living with multiple sclerosis and rheumatoid arthritis to educate, empower, and inspire people living with chronic conditions. Author of the award-winning blog Brass and Ivory: Life with MS and RA, Lisa is writer, subject matter expert, and community moderator for Health Union and Remedy Health Media. An experienced speaker and consultant, Lisa gives voice to the patient at conferences and works with health companies to improve services and messaging. She also co-leads the Engagement Committee for iConquerMS™, the world’s largest MS patient-powered research network, and serves as a merit reviewer for research proposals submitted to PCORI, the Patient-Centered Outcomes Research Institute. Lisa and her husband enjoy cycling together on the rails-to-trails paths in Virginia.

Danny

Founder Health Hats

Danny
Addiction
Alternative Medicine
Autoimmune Diseases
Children's Health
Developmental Disabilities
Health Public Policy
Men's Health
Mental Health
Multiple Sclerosis
Pain (Chronic Pain, Joint Pain, Back Pain)
Blogger
Business Development
Clinical Research
Consumer Engagement
Editor
Executive Coach
Mobile App Development
Peer Support
Project Management
Strategy
Usability Testing
1 More 1 Less
Arlington, MA
available 10-20 hours/week

An action catalyst empowering people traveling together toward best health (patients, caregivers, and clinicians) Danny wears many hats in healthcare: pt with MS, caregiver, nurse, informaticist and QI leader. His current work focuses on communication at transitions of care, person-centered health planning, informed decision-making, and technology supporting solutions created by and for people at the center. He advises entrepreneurs about strategy, infrastructure, and user-friendly workflows and technology. He teaches and coaches front-line managers. He serves as a patient/caregiver stakeholder representative on Technical Expert Panels for Shared Decision Support and PCORnet and sits on the Steering Committee for the AHRQ-supported Clinical Decision Support Learning Network. He reviews PCORI research funding applications and serves as co-chair of PCORI’s Communication and Dissemination Advisory Panel. He blogs weekly at www.health-hats.com.

Gustavo

Founder of AME

Gustavo
Multiple Sclerosis
Business Development
Consumer Engagement
Consumer Insights
Crowdsourcing
Digital Marketing
Event Planner
Finance
Influencer Marketing
Marketing
Public Relations
Social Media
Social Networking
Strategy
Video
4 More 4 Less
available 10-20 hours/week

Graduated in Business Administration with specialization in Creativity and Entrepreneurship, I have worked in the education, retail, trade marketing, communication and, since 2011, in the third sector.
At AME, I am responsible for developing and raising funds for new projects, from idealization, implementation and execution (follow-up).


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