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Top Psoriasis Patient Experts

Jessica

Health Activist, Writer, TEDx Speaker (www.jessicagimeno.com)

Jessica
Asthma
Autoimmune Diseases
Bipolar Disorder
Chronic Illness
Pain (Chronic Pain, Joint Pain, Back Pain)
Polycystic Ovarian Syndrome
Psoriasis
Strategy
Des Plaines, IL
available less than 10 hours/week

I write and speak about mental illness, chronic pain, and women's health issues. I launched my website, Fashionably ill ®, in 2012 and am a contributor to The Huffington Post and Ask a Bipolar. I frequently speak at conferences, universities, and other events - my 2015 TEDx Talk, "How to Get Stuff Done When You Are Depressed," recently surpassed 250,000 views. I have a book on the same subject as my TEDx Talk coming out. I used to work in mental health nonprofit. In my free time, I give makeovers to women with illnesses including cancer, MS, lupus, among others. My skills include: writing copy for campaigns (awareness or policy campaigns), story telling, and public speaking. NBC News did an extensive profile on my advocacy work. I live well with bipolar 2, myasthenia gravis, polycystic ovarian syndrome, asthma, and psoriasis. I graduated from Northwestern University with a B.S. in Communications & a Second Major in Political Science.

Leanne

Writer/Editor/Lifestyle Blogger/Influencer about Psoriatic Arthritis, Rheumatoid Arthritis, Chronic Pain, and Psoriasis

Leanne
Asthma
Diabetes - Type 1
Psoriasis
Psoriatic Arthritis
Rheumatoid Arthritis
Blogger
Copywriter
Editor
Online Moderation
Peer Support
Proofreader
Social Media
Usability Testing
Hebron, KY
available 10-20 hours/week

I have expertise in writing informative and inspiring articles about living with chronic illnesses. In addition, I have a background in English education which makes my editing and proofreading skills sharp. I have been blogging for 5+ years and work very hard to advocate for PsA awareness.

Jean-Ezra

Co-Founder, Consumer Health Information

Jean-Ezra
Pain (Chronic Pain, Joint Pain, Back Pain)
Psoriasis
Consumer Engagement
Consumer Insights
Health Data Tracking
Redondo Beach, CA
available less than 10 hours/week

I am a public health professional with analytics experience working for hospital systems and health insurance companies. I am very familiar with how these entities determine and process coverage, coding and payment of services. I'm offering my expertise to help patients navigate the complex healthcare system as a virtual health companion. I will produce a detailed guide on coverage, payment and services patients can expect for their healthcare journey, and suggest the best pathways to mitigate headaches and stress!

Lori-Ann

Patient Leader, Psoriasis, Psoriatic Arthritis, Ehlers-Danlos Hypermobility

Lori-Ann
Ehlers Danlos Syndrome
Psoriasis
Psoriatic Arthritis
Blogger
Copywriter
Editor
Peer Support
Proofreader
Reporter
Social Media
The Colony, TX
available as required

Experienced writer and speaker passionate about living well with psoriasis, psoriatic arthritis & Ehlers-Danlos Hypermobility Syndrome.

Lilly

Autoimmune Patient Leader, Head of Patient Advocacy at Clara Health, Board Member at AARDA

Lilly
Chronic Illness
Crohn's Disease
Psoriasis
Psoriatic Arthritis
Blogger
Consumer Engagement
Consumer Insights
Digital Marketing
Influencer Marketing
Marketing
Other
Public Relations
Social Media
Social Networking
Strategy
1 More 1 Less
Boston, MA
available less than 10 hours/week

Lilly's reason for being was ignited in 2011 when she was diagnosed with two autoimmune conditions - Crohn's disease and Psoriatic Arthritis. From this time forward, she has dedicated her personal and professional life to patient advocacy. In addition to running a blog and social media dedicated to advocacy and the patient experience, she launched the 50 Cents for 50 Million campaign to raise awareness and funds for patients battling autoimmune diseases. She now serves on the board of the American Autoimmune Related Diseases Association (AARDA) and is the Head of Patient Advocacy at Clara Health, a startup making it easier for patients to get access to breakthrough treatments and clinical trials.

Lilly regularly consults with healthcare companies to provide insight on the patient experience and is a powerful motivational speaker and writer that leaves her audience inspired and ready to make an impact.

Ken

Vice President, International Pain Foundation & Caregiver

Ken
Cancer
Caregiving
Celiac Disease
Chronic Illness
Complex Regional Pain Syndrome
Crohn's Disease
Depression
Diabetes
Disabilities
Dystonia
Endometriosis
Epilepsy
Eye Health/Diseases
Fibromyalgia
Fitness
Food Allergy
Gastrointestinal Diseases
Health Public Policy
Healthy Living
Heart Disease
Hemophilia
HIV/AIDS
Learning Disorders
Lupus
Men's Health
Migraine
Multiple Sclerosis
Muscular Dystrophy
Neuromuscular Disorders
Nutrition
Oral Health
Osteoporosis
Other
Pain (Chronic Pain, Joint Pain, Back Pain)
Post-Traumatic Stress Disorder
Psoriasis
Reflex Sympathetic Dystrophy
Rheumatoid Arthritis
Seizures
Sexual Health
Sjogren's Syndrome
Skin Cancer
Skin Health/Diseases
Sleep and Sleep Disorders
Thyroid Cancer
Thyroid Diseases
Ulcerative Colitis
Women's Health
38 More 38 Less
Business Development
Clinical Research
Consumer Engagement
Consumer Insights
Crowdsourcing
Digital Marketing
Editor
Event Planner
Finance
Health Data Tracking
Influencer Marketing
Marketing
Mobile App Design
Mobile App Development
Online Moderation
Operations
Other
Peer Support
Product & App Testing
Product Development
Program Development
Project Management
Public Relations
Reporter
Social Media
Social Networking
Strategy
17 More 17 Less
San Tan Valley, AZ
available less than 10 hours/week

Ken Taylor has be a caregiver since 2003 for his wife who has multiple chronic pain diseases. Ken is a former licensed insurance agent. Ken worked in the banking industry for 12 years at MCM, Bank of America, Wells Fargo, and Neiheisel Law Firm. Currently, Ken is a broadcast engineer for Dish Network. Ken also serves as the VP of the International Pain Foundation, is on the board of advisers for Pain Pathways Magazine, is the graphics editor for iPain Living Magazine. Ken serves on several pain advocacy coalitions including the Consumer Pain Advocacy Task Force and State Pain Policy Advocacy Network. He is an Amazon best selling author, motivational speaker, and Reality TV Personality sharing his story of caregiving and helping others better understand the healthcare system.

Michael

Pursuing pragmatic, elegant disruption for digital health transformation through authentic collaboration.

Michael
Leukemia
Migraine
Psoriasis
Rheumatoid Arthritis
Blogger
Business Development
Consumer Engagement
Digital Marketing
Project Management
Social Media
Strategy
UX/User Design
Centreville, VA
available as required

I am seasoned professional with expertise in integrating health IT systems through innovative, cost-effective solutions that improve interoperability, scalability and performance. I offer a proven methodology and roadmap to accelerate the adoption of digital solutions that enhance and extend healthcare delivery and promote financial sustainability of healthcare systems. I have helped healthcare organizations transform and redesign healthcare delivery through better use of health IT, data and analytics. As a leukemia survivor, I am dedicated to making healthcare more patient-centered, compassionate, accessible, effective and efficient. I am passionate about re-imaging and re-inventing healthcare delivery models for best patient experiences. I strive to be a visionary, proactive, results-oriented professional who can make informed decisions, empower others, build consensus and foster a collaborative teaming environment to implement innovative solutions that deliver measurable results.

Tracy

Rare Disease EPatient Experienced in Managed Healthcare, Rare Diseases and Clinical Research Advisor.

Tracy
Acne
Acromegaly
Addison's Disease
ADHD (Attention Deficit/Hyperactivity Disorder)
Aging/Senior Health
ALS (Amyotrophic Lateral Sclerosis)
Alternative Medicine
Alzheimer's Disease
Anemia
Aneurysms
Aphasia
Arrhythmia
Arthritis
Asthma
Atrial Fibrillation
Autism Spectrum Disorders
Autoimmune Diseases
Beta Thallasemia
Birth Defects
Blood Disorders
Bone Diseases
Brain Health
Breast Cancer
Cancer
Carcinoid Syndrome
Caregiving
Celiac Disease
Cerebral Palsy
Chronic Illness
Clinical Trials
Colorectal (Colon) Cancer
Complex Regional Pain Syndrome
COPD (Chronic Obstructive Pulmonary Disease)
Crohn's Disease
Cushing's Disease
Cystic Fibrosis
Dementia
Diabetes
Disabilities
Duchenne Muscular Dystrophy
Dystonia
Ehlers Danlos Syndrome
Epilepsy
Eye Health/Diseases
Fibromyalgia
Fitness
Food Allergy
Gastrointestinal Diseases
Gaucher's Disease
GIST
Health Public Policy
Healthy Living
Hearing Disorders and Deafness
Heart Disease
Heart Health
Hemophilia
Hepatitis
HIV/AIDS
Irritable Bowel Syndrome
Liver Diseases
Lupus
Lyme Disease
Migraine
Multiple Sclerosis
Muscular Dystrophy
Myelo Dysplastic Syndrome
Neuromuscular Disorders
Nutrition
Oral Health
Organ Transplantation
Osteoporosis
Pain (Chronic Pain, Joint Pain, Back Pain)
Pancreatic Neuroendocrine Tumors
Parenting and Family Health
Parkinson's Disease
Polycystic Ovarian Syndrome
Post-Traumatic Stress Disorder
Postural Orthostatic Tachycardia Syndrome
Primary Biliary Cholangitis
Psoriasis
Psoriatic Arthritis
Pulmonary Fibrosis
Rare Diseases
Reflex Sympathetic Dystrophy
Restless Legs Syndrome
Rheumatoid Arthritis
Seizures
Severe Allergy
Sexual Health
Sickle Cell Disease
Sjogren's Syndrome
Skin Health/Diseases
Sleep and Sleep Disorders
Stroke
Thyroid Diseases
Tuberous Sclerosis Complex
Ulcerative Colitis
Wegener's Granulomatosis
Women's Health
89 More 89 Less
Blogger
Business Development
Clinical Research
Consumer Engagement
Consumer Insights
Health Data Tracking
Human Resources
Mobile App Development
Online Moderation
Peer Support
Program Development
Project Management
Social Media
Social Networking
Strategy
Usability Testing
6 More 6 Less
Chesterfield, VA
available 31-40 hours/week

I became ill in 2001 and over 4 years saw 51 specialists that could not diagnose my illness. I was handed a Medline study from Christopher Reeves' Neurologist and was told to find the surgeon that performed that study. It lead me to Pittsburgh & Dr Peter Jannetta, Godfather of Modern Neurosurgery. He saved me from becoming a quadriplegic & worse. I never imagined I would develop multiple Rare Diseases at 31 yrs old, I had to learn to live a new limited life and the only way to start was with knowledge, then with helping others when I was well enough, and I have never stopped. I am a Leader in the Rare Disease Community, a Healthcare Activist, and Lobbyist. I have been fortunate to work with 1000's of Rare Disease Patients, Health and Disease Organizations and Foundations, Healthcare Stakeholders and learned from them all. Now I try and improve Healthcare one day and project at a time.


Alisha

Writer, Health Activist, Public Speaker, Patient Recruiter, Social Media Expert, Consulting

Alisha
Acne
Addiction
Anxiety
Birth Control
Chronic Illness
Clinical Trials
Depression
Psoriasis
Rheumatoid Arthritis
Sexual Health
Sickle Cell Disease
Skin Health/Diseases
Women's Health
3 More 3 Less
Blogger
Clinical Research
Consumer Engagement
Copywriter
Digital Marketing
Event Planner
Influencer Marketing
Marketing
Online Moderation
Peer Support
Product & App Testing
Program Development
Public Relations
Reporter
Social Media
Social Networking
6 More 6 Less
College park, GA
available 10-20 hours/week

I am a multi-media relations professional, award winning writer, and a diligent community advocate. After graduating with a Bachelor’s degree in Liberal Arts in 2010, I began my career in Broadcasting; however, over the years I came to realize my true passion is in serving others through advocacy. I am attending Georgia State University in order to complete additional coursework in the Sciences. After completion, I will be pursuing a Master of Physician Assistant Studies with a focus in Dermatology.

Currently I am a health media entrepreneur. I provide services for a variety of clients which include social media management, article writing, patient recruitment, advocacy, patient engagement, public speaking, consulting services, and much more. I am currently looking for additional temporary or long-term freelance work in the above areas.

Judith

Awareness Advocate

Judith
Anemia
Anxiety
Aphasia
Arthritis
Autoimmune Diseases
Chronic Illness
Depression
Fibromyalgia
Mental Health
Migraine
Pain (Chronic Pain, Joint Pain, Back Pain)
Psoriasis
Rheumatoid Arthritis
3 More 3 Less
Blogger
Online Moderation
Social Media
Social Networking
Tura Beach Australia, MT
available 10-20 hours/week

I make awareness graphics and have a United Advocacy Australia Facebook Page to raise awareness of various Diseases. If it raises awareness then that is good for patients living with these conditions.
I use multiple social Media channels Facebook,Pinterest,Twitter,Tumblr,
LinkedIn,Instagram and Google+. I believe in working together to make a difference and volunteer with the International Foundation for Autoimmune Arthritis and The International Pain Foundation I am also a member of the #CureArthritis Team for the Arthritis National Research Foundation. I am an ambassador for the Blue Ribbon Project as well. I have contributed in the IPain Living Magazine from the International Pain Foundation.
I am also a writer and have just recently finished writing for Real Life Diaries Living With Rheumatic Disease due for Release during 2017. I am a Passionate Chronic Illness Advocate and together we can all make a difference by uniting in the fight. Eg #UniteInthefightagainstArthritis.

Kirsten

Sexuality Educator, Activist, and Writer

Kirsten
Anemia
Anxiety
Arthritis
Birth Control
Caregiving
Chronic Illness
Depression
Fibromyalgia
Food Allergy
Health Public Policy
Mental Health
Migraine
Obesity
Oral Health
Pain (Chronic Pain, Joint Pain, Back Pain)
Post-Traumatic Stress Disorder
Psoriasis
Rare Diseases
Rheumatoid Arthritis
Seasonal Allergy
Sexual Health
Sleep and Sleep Disorders
Women's Health
13 More 13 Less
Blogger
Consumer Engagement
Editor
Event Planner
Marketing
Online Moderation
Other
Peer Support
Product & App Testing
Public Relations
Reporter
Social Media
Social Networking
3 More 3 Less
Madison, WI
available 31-40 hours/week

I am a Wisconsin-based writer living with multiple physical and mental chronic illnesses. My passion is to help patients and organizations alike learn more about illnesses, stigmas attached to them, and how to improve quality of life for all. I have written for and worked with a number of organizations from Creaky Joints to Self Care Catalysts and Healthline to Achieve Clinical. Not Standing Still's Disease helps to display issues related to my personal health. Chronic Sex focuses on how illness and disability affect little-discussed things like relationships and sexuality. ORCHIDS - the Org for Research on CHronic Illness, Disability, and Sexuality - focuses on how to improve research around sex and illness/disability.

I would like to offer services including but not limited to:
Writing/Editing
Speaking
Consultation
Workshop/Panel work
Focus group work
Social Media promotion
Forum/website moderation
Research promotion/dissemination/assistance

Summer

Advocate seeking opportunities to share my story

Summer
Anxiety
CFS (Chronic Fatigue Syndrome)
Chronic Illness
Depression
Endometriosis
Fibromyalgia
Pain (Chronic Pain, Joint Pain, Back Pain)
Psoriasis
Psoriatic Arthritis
Blogger
Consumer Engagement
Consumer Insights
Peer Support
Social Media
Social Networking
Vidalia, LA
available 10-20 hours/week

I have been an advocate with a number of different organizations since 2013. During that time I have contributed to dozens of publications about my life with chronic illnesses. I have received a letter of recommendation from one of the organizations that I work for and have also been described as one of the top 5 volunteers in the organization. I am very active on social media and currently have a blog that I am working on. I write stories and contribute them to a webpage along with others who suffer from psoriatic disease. I have attended: 2015 Arthritis Foundation Advocacy Summit, FDA Patient Focus Drug Development meeting, HealtheVoices Conference, National Psoriasis Foundation Capitol Hill Fly-In, NPF Volunteer Conference. I have contributed to: Women's Health, HealthCentral, HealthMonitor, HealthGrades, Psoriasis Advance,etc

I have been diagnosed, and am being treated for, psoriasis, psoriatic arthritis, endometriosis, chronic fatigue syndrome, fibromyalgia, and chronic pain.

Lynda

Award-winning creator of Grief Diaries

Lynda
Depression
Eating Disorders
Psoriasis
Editor
Human Resources
Other
Program Development
Social Media
Ferndale, WA
available less than 10 hours/week

Lynda Cheldelin Fell is an international bestselling author of over 25 books on grief, loss, healing and hope. She has earned four national literary awards, garnered standing ovations for her inspirational speeches, interviewed noteworthy newsmakers including Martin Luther King's daughter, and her articles have been published in Huffington Post, New York Daily News, Women's Health magazine and more. She is CEO of AlyBlue Media, creator of the award-winning anthology book series Grief Diaries and Real Life Diaries, creator of Grief in the Workplace curriculum, and founder of Grief Masterminds, a cutting-edge think tank for field leaders who are dedicated to large scale change that impact cultural thinking, influence and support of the bereaved at all levels of society. Learn more at www.LyndaFell.com.

Fabio

Influencer-Powered Clinical Trial Recruitment Expert

Fabio
ADHD (Attention Deficit/Hyperactivity Disorder)
Aging/Senior Health
Alzheimer's Disease
Anxiety
Aphasia
Arthritis
Asthma
Atrial Fibrillation
Autoimmune Diseases
Bipolar Disorder
Blood Disorders
Bone Cancer
Brain Cancer
Brain Health
Breast Cancer
Cancer
Caregiving
Cervical Cancer
Cholesterol
Chronic Illness
Clinical Trials
Colorectal (Colon) Cancer
Crohn's Disease
Cushing's Disease
Cystic Fibrosis
Dementia
Depression
Diabetes
Diabetes - Type 1
Diabetes - Type 2
Duchenne Muscular Dystrophy
Epilepsy
Fibromyalgia
Gastrointestinal Diseases
Gaucher's Disease
GIST
Heart Disease
Heart Health
Hepatitis C
HIV/AIDS
IBD (Inflammatory Bowel Disease)
Irritable Bowel Syndrome
Liver Cancer
Lung Cancer
Lupus
Lymphoma
Melanoma
Men's Health
Menopause
Mental Health
Migraine
Multiple Sclerosis
Myeloma
Neuromuscular Disorders
Non-Hodgkin's Lymphoma
Ovarian Cancer
Pain (Chronic Pain, Joint Pain, Back Pain)
Pancreatic Neuroendocrine Tumors
Parenting and Family Health
Parkinson's Disease
Pregnancy
Prostate Cancer
Psoriasis
Psoriatic Arthritis
Rare Diseases
Rheumatoid Arthritis
Schizophrenia
Seasonal Allergy
Seizures
Sexual Health
Sickle Cell Disease
Sleep and Sleep Disorders
Stroke
Ulcerative Colitis
Women's Health
65 More 65 Less
Costa Mesa, CA
available 40+ hours/week

I have been working with patient communities and health activists for 20+ years, helping dozens of companies (including biotech, pharma, recruitment firms and CROs) recruit patients for clinical trials through influencer-driven innovative digital programs. If you're interested in adding a patient influencer strategy to your recruitment efforts, please contact me.

Karen

Stress, Overwhelmed Family Caregivers, I'm Here For You!

Karen
ALS (Amyotrophic Lateral Sclerosis)
Alternative Medicine
Alzheimer's Disease
Anxiety
Aphasia
Caregiving
Depression
Fitness
Healthy Living
Hearing Disorders and Deafness
Nutrition
Obesity
Psoriasis
Stroke
Thyroid Diseases
Women's Health
6 More 6 Less
Blogger
Clinical Research
Editor
Peer Support
Proofreader
New York, NY
available 10-20 hours/week

As a certified caregiving consultant and a certified yoga instructor, I offer family caregivers: (1) resources; (2) research, and (3) relaxation. It's my "Three R's for Restoring Family Careging Sanity" Look, I know what it's like. The exhaustion. The overwhelm. The fear of not quite knowing you're doing yet needing to do it anyway because if not you then who? I was a family caregiver . . . with my parents . . . in the wake of Hurricane Sandy.

Kenzie

Founder of Life According to Kenz, Writer, Rheumatoid Arthritis and Mental Health Activist, Social Work Student

Kenzie
Anxiety
Crohn's Disease
Depression
Dystonia
Endometriosis
Fibromyalgia
IBD (Inflammatory Bowel Disease)
Lyme Disease
Pain (Chronic Pain, Joint Pain, Back Pain)
Psoriasis
Rheumatoid Arthritis
1 More 1 Less
Blogger
Peer Support
Social Media
Social Networking
St Paul, MN
available 10-20 hours/week

Worked closely with other advocates and patients through various social media outlets and my own website. Mastered community engagement, led support groups/patient chats, presented at several conferences, and participated in a plethora of paid writing opportunities.

Simon

Patient Leader and Doctoral Researcher in Child and Family Health

Simon
Arthritis
Chronic Illness
Crohn's Disease
Fibromyalgia
IBD (Inflammatory Bowel Disease)
Irritable Bowel Syndrome
Psoriasis
Psoriatic Arthritis
Rheumatoid Arthritis
Seasonal Allergy
Clinical Research
Consumer Engagement
Consumer Insights
Digital Marketing
Marketing
Mobile App Development
Project Management
Social Media
Social Networking
Strategy
Leeds, ENG
available less than 10 hours/week

I am a passionate advocate and activist for people living with musculoskeletal conditions, working with a number of national and international organisations as a guest speaker, freelance consultant and adviser. I am also a doctoral researcher in child and family health in the United Kingdom, where my research interests include self-management in children with long-term conditions and public involvement in research. I hold a first class BSc (Hons) degree in Biomedical Sciences with Industrial/Professional Experience.

I am available to speak at events as an empowered patient and early career researcher. I am also available in a consultant capacity to shape research proposals, study designs, plans for public involvement and for engaging members of the public in science and medicine. I am also experienced in using social media, having presented lectures and facilitated workshops on using social media for health purposes.

Sabrina

Founder, Homegrown Houston

Sabrina
Autoimmune Diseases
Caregiving
Chronic Illness
Healthy Living
Nutrition
Parenting and Family Health
Pregnancy
Psoriasis
Seasonal Allergy
Women's Health
Blogger
Digital Marketing
Event Planner
Influencer Marketing
Marketing
Peer Support
Proofreader
Public Relations
Social Media
Social Networking
Katy, TX
available as required

I am a volunteer mentor and coach for the National Psoriasis Foundation, providing guidance for those who are newly diagnosed. I have lived with psoriasis for more than 15 years. I started my blog, Homegrown Houston, as a platform for fashion, marriage and motherhood while offering a style resource for those living with psoriasis. I live by the motto, “I don't let psoriasis define who I am. I define who I am and how I live my life.”

Arielle

Founder, The Happy Tummy

Arielle
Autoimmune Diseases
Celiac Disease
Crohn's Disease
Food Allergy
Healthy Living
IBD (Inflammatory Bowel Disease)
Irritable Bowel Syndrome
Mental Health
Oral Health
Polycystic Ovarian Syndrome
Psoriasis
Severe Allergy
Sleep and Sleep Disorders
Ulcerative Colitis
Women's Health
5 More 5 Less
Blogger
Marketing
Peer Support
Social Media
Social Networking
available less than 10 hours/week

I offer support to those suffering from chronic digestive illness through my website http://nomorebellyaches.com as well as social media.


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