Breck Gamel, is a patient advocate and blogger at http://initforbennett.com. She is a mother of three young children, including Bennett, her seven year old with cystic fibrosis. Breck advocates for patients alongside the Cystic Fibrosis Foundation. Breck is leader within the Cystic Fibrosis Learning Network and co-chairs the Cystic Fibrosis Foundation's Patient and Family Research Advisory Council.
Lisa Cypers Kamen, M.A. is an applied positive psychology coach, author,
documentary filmmaker, and radio show host specializing in sustainable wellbeing and lifestyle management. Additionally, she is an experienced spokesperson and brand ambassador for corporations including The Florida Department of Citrus and Katie K Activewear.
Lisa’s global consulting practice focuses on mission-driven addiction and trauma recovery supporting clients in balancing their minds, bodies and emotions resulting in greater overall wellbeing and the transformation of Post-Traumatic Stress (PTS) into Post-Traumatic Growth (PTG). Through her work, clients are empowered and supported to achieve increased self-mastery, optimal functioning and to reclaim their lives.
Lisa is a 'reformed clinically depressed person' who leads by example the virtues of a balanced mind, body, spirit, and soul. She is a health advocate for depression/mental health, addiction, healthy aging, optimal lifestyle, and more.
Senior Transformation Specialist and Social Firebrand, Stotsky has represented companies including GE Healthcare, e-MDs, digiChart, BCBST and HMS/MEDHOST. She received GE Healthcare's CIS Award, led EMR adoption efforts, directed rollout of the 1st HIE in the state of TN, and was a member of HIMSS Standards and Interoperability Workgroup for Stage 1 Meaningful Use.
Stotsky is consistently named as one of “20 Health IT Influencers to Watch” by Healthcare IT Leaders. Most know her as @EMRAnswers, where she has been a social firebrand since 2009. A Social Ambassador at HIMSS global conference for the last four years, she is a frequent contributor to media pubs, & discussions as a respected HC strategist. Over 19,500 targeted followers,
An outspoken advocate, and caregiver, she speaks about Patient Safety and Care Coordination, She walks as patient #117 in The Walking Gallery of Healthcare. She Is on the HC Advisory Council at Fogo Data Centers, & current Board member S4PM.
Schizophrenic speaker and author of "Lil' Broken Star" a book for children with schizophrenia to help them learn management techniques.
Rachel Star Withers is a dynamic and can help people understand what people with mental disorders go through and assist those with disorders to learn management techniques to deal with the hallucinations, delusions, depression, suicidal urges...
Rachel makes videos on her youtube page documenting her schizophrenic for the past 11 years.
I am a freelance health and science writer for hire. I help businesses get results with quality content. I create compelling content that has a proven track record of driving online engagement.
I can help you reach the right audience, create better content, raise brand awareness and make more money. I can translate complex health and science topics into plain language.
I have a Bachelor of Science degree from Butler University and graduated summa cum laude with a double major in biology and chemistry. I have extensive online writing experience. I have published on Yahoo! News, CNN iReport, Lifescript.com, The Huffington Post and many other publications.
Sarah Hackley is most known for her work as a patient advocate spreading awareness of life with chronic migraine. She has been featured on numerous health blogs and is a regular contributor for Migraine.com, where she utilizes her personal experiences and educational background in neuropsychology to educate others on issues affecting the migraine community. She also is the author of two self-empowerment books, "Finding Happiness with Migraines: A Do It Yourself Guide" and "Preparing to Fly: Financial Freedom from Domestic Abuse." She also speaks, writes, and coaches patients on how to live fully and joyfully with chronic illness. Additional information can be found on her website: www.sarahhackley.com.
An action catalyst empowering people traveling together toward best health (patients, caregivers, and clinicians) Danny wears many hats in healthcare: pt with MS, caregiver, nurse, informaticist and QI leader. His current work focuses on communication at transitions of care, person-centered health planning, informed decision-making, and technology supporting solutions created by and for people at the center. He advises entrepreneurs about strategy, infrastructure, and user-friendly workflows and technology. He teaches and coaches front-line managers. He serves as a patient/caregiver stakeholder representative on Technical Expert Panels for Shared Decision Support and PCORnet and sits on the Steering Committee for the AHRQ-supported Clinical Decision Support Learning Network. He reviews PCORI research funding applications and serves as co-chair of PCORI’s Communication and Dissemination Advisory Panel. He blogs weekly at www.health-hats.com.
I offer B2B companies in the healthcare space content that is well-researched, audience-focused, and compelling. My goal is to help you grow your business using effective content marketing strategies. As a nurse with clinical, sales, and marketing experience, I specialize in product and technology solutions designed to improve the delivery of healthcare.
Mindy Bartleson graduated Cum Laude from the University of Georgia with a Bachelor’s in Social Work and a minor in Sociology. She spent her studies and professional and personal involvement in chronic illness, mental health, socioeconomic status, the healthcare setting life challenges, advocacy, and more.
She identifies as a patient voice and advocate. She openly lives with type 1 diabetes, ADHD, anxiety, OCD, PCOS, endometriosis, and several other conditions. She has experience in non-profits, tech, business, writing, community involvement, and building relationships in various settings online and in person.
She blogs at “There’s More to the Story” about life, chronic illness, and mental health, and she frequently contributes to several chronic illness and mental health blogs. In addition to blogging she is involved in speaking opportunities for awareness, education, and advocacy. She also volunteers at special needs camps.
Private clinical practice to aid in managing transitions, stresses, and crises. Focus on providing alternative care solutions to aid in the successful diagnosis and treatment of individuals who may have experienced grief and loss. Treatment modalities include hypnotherapy, past life regression, life cycle coaching and grief mediation. Animal therapy available including both equine and canine ESAs. Key Note Speaker including Harvard and West Point and TV personality..
Contract Clinical Trial Management: Provides direction, strategic management, oversight, training and support to the team to ensure team delivers quality projects to its clients, and achieves or exceeds clinical trials project goals. Provides industry expertise and leadership to project team on multiple and complex national and international clinical trials, typically in phases Ib, IIb, IIIb, II and III. Acts as the point of escalation between the client and the project team to ensure a successful outcome..
I am a volunteer mentor and coach for the National Psoriasis Foundation, providing guidance for those who are newly diagnosed. I have lived with psoriasis for more than 15 years. I started my blog, Homegrown Houston, as a platform for fashion, marriage and motherhood while offering a style resource for those living with psoriasis. I live by the motto, “I don't let psoriasis define who I am. I define who I am and how I live my life.”
I like working to create community plans targeted toward getting better healthcare outcomes at lower costs. This includes key stakeholders and partnerships across public interest and media groups and healthcare providers and payers.
I write about health IT and data products including artificial intelligence in healthcare.
I build partnerships with payers and providers and community grant based programs.
I am a physician suicide loss survivor and advise as a patient expert focused on digital health solutions to mental health complications. I also consult as a suicide loss survivor and parent of children who have lost a parent.
I have experience with social media strategy for initiatives and companies including community planning.
I also teach yoga to children in German.
Cindy Herrick is a mom, teacher, musician, researcher, entrepreneur, maternal mental health (MMH) advocate. Her own experience with severe maternal mental health illness in 2012 sparked her desire to bring awareness and change to the maternal mental health system. She has been involved in several MMH and postpartum depression advisory panels and has been advocating for legislature and policy change on a state and national level. Cindy's main interest have been on developing patient centered evidenced based research and documenting the benefit of structured peer specialist training in the work of MMH. She has also been working to "mainstream" maternal mental health into the mental health system and to promote the interdisciplinary nature of the disease. She has been at the forefront of fighting the stigma against mental illness and changing the narrative on the stigmatized image of a mom struggling with mental illness.
I excel with social media, content writing, editing and .public speaking in regards to patient advocacy and sharing new information to educate others. I have experience with twitter parties, writing and editing others work and social media campaigns. My public following is large so I am able to reach a broad group of people.
Experience in healthcare practice, anesthesia, pain management, peri-operative medicine, critical care, obstetrics, all surgeries and all ages.
Well versed in helping others with health and wellness through lifestyle, nutrition, activity, mental and physical health management.
Business development, strategic oversight and advising, finance, marketing, growth, and leadership.
Looking for advising, consulting, panels, research, collaboration, and leadership sharing roles in all areas of health, wellness, clinical practice, patient care and management, technology solutions, business models, caregiver solutions, health care business, health care policy, health care reform, education, design and payment.
As a person living with the migraine disease, cluster headaches, fibromyalgia, and rheumatoid arthritis I've learned the skills, confidence, and knowledge needed to play an active role as a patient advocate. Twice, I lobbied on Capitol Hill as a migraine and cluster headache patient during Headache On The Hill. I've also had the opportunity to appear on HuffPost Live and Al Jazerra, where I spoke openly about my neurological disorders. Besides being a full-time patient, invisible illness advocate, and contributing writer for the Today Parenting Team; I am a caregiver to a teenager living with abdominal and chronic migraine. Due to my son's unpredictable health, I even learned how to work efficiently with our school district to ensure my teen has the appropriate academic accommodations.
Mental Health Advocacy, Overcoming & Managing Disabilities, Dealing with Trauma (i.e. PTSD, physical and emotional abuse), Sexual Assault Prevention, Alternative Medicine, and Establishing a Creative Mind Set.
Inspired by the integral role of the arts in my own recovery, I devised a trauma-informed program that combines storytelling performance, engaging mental health education and sexual assault prevention, which was originally devised for the National Mental Health America Conference. I've delivered this keynote/program internationally since 2012, to provide an empowered approach to wellness, to strengthen resiliency and to develop the leadership skills to transform adversity into creative growth.
• Accomplished Actress, Creative Writer, Dancer/Performer, Keynote Speaker, Private Coach, and Advocacy Program Leader.
• Strong advocate of collaborative working partnerships with client organizations to pursue and achieve shared goals.
• Freelance writer on health issues
I became ill in 2001 and over 4 years saw 51 specialists that could not diagnose my illness. I was handed a Medline study from Christopher Reeves' Neurologist and was told to find the surgeon that performed that study. It lead me to Pittsburgh & Dr Peter Jannetta, Godfather of Modern Neurosurgery. He saved me from becoming a quadriplegic & worse. I never imagined I would develop multiple Rare Diseases at 31 yrs old, I had to learn to live a new limited life and the only way to start was with knowledge, then with helping others when I was well enough, and I have never stopped. I am a Leader in the Rare Disease Community, a Healthcare Activist, and Lobbyist. I have been fortunate to work with 1000's of Rare Disease Patients, Health and Disease Organizations and Foundations, Healthcare Stakeholders and learned from them all. Now I try and improve Healthcare one day and project at a time.
I founded Taking Up Space with Kate Browne (formerly Ramp and Stair Exercise Club) as an advocacy platform for inclusive fitness. I have a PhD in autobiographical literature specializing in women’s disability and chronic illness narratives. Taking Up Space reflects my commitment to sharing diverse experiences of body size as they relate to ensuring equitable access to health and wellness resources. I also advocate for women with lipedema and lymphedema, and share my own story of diagnosis and treatment through my Lipedema Liberated coaching program.
I am available for consulting projects that require skills in using inclusive language, Universal Design, social justice in health promotion initiatives, and rhetorical analysis.
I have been working with patient communities and health activists for 20+ years, helping dozens of companies (including biotech, pharma, recruitment firms and CROs) recruit patients for clinical trials through influencer-driven innovative digital programs. If you're interested in adding a patient influencer strategy to your recruitment efforts, please contact me.