A dedicated licensed social worker in New York City and active advocate with the Arthritis Foundation with a passion for sharing her story as a patient living with Juvenile Idiopathic/Rheumatoid Arthritis since a toddler and being a voice for children and young people struggling with navigating their lives and medical care with rheumatoid arthritis including addressing the shortage of pediatric rheumatologists across the nation. She has advocated on Capital Hill and her state of New York's capital as a voice for patients. Additionally, a certified yoga instructor and a recent graduate of the Yoga for Arthritis teacher training program that she is bringing to her current clients and developing an accessible program with her current employer.
I am available for speaking engagements, patient panels, writing, fundraising, advocacy, blogging, and much more.
Based in the San Francisco Bay Area, Silvia Young is a motivational speaker, survivor of stage 4 endometriosis, infertility and co-occurring invisible diseases, and an advocate for women's health and patient’s rights. Silvia had an award-winning career in Public Relations, but due to health, now channels her efforts on women's health education and advocacy focused on Guest Lecturing at Universities and Colleges. Constantly researching, Silvia curates for her Hub www.UniteEndo.org, directs campaigns like YouTube Channel 31 FemTruths, and organizes grassroots, social-media, advocacy efforts like UniteEndo California, where she mobilized the California endometriosis community for 2016 elections and ongoing progressive policy reform. A creative at heart, Silvia dabbles in design presenting her favorites through 'House of Young' selling at local boutiques and pop-up shops. Her latest collection will be sold online starting 6/1/17, a percentage of proceeds donated to Planned Parenthood.
I am a nurse and respiratory therapist. My daughter has a progressive heart disease and while being her healthcare support I have found myself being an advocate for many others. I am now doing this as a career. My mission is to be able to accompany the client through their illness or wellness to a meaningful experience.
Office visit companion
Care plan review and advising
Locating specialist for needed care
Audit medical billing and/or intervention as requested
Coordinate home care to aid in keeping client grounded in their environment
Evaluating facility needs if home care is not feasible
Acquiring durable medical equipment when applicable
Mindy Bartleson graduated Cum Laude from the University of Georgia with a Bachelor’s in Social Work and a minor in Sociology. She spent her studies and professional and personal involvement in chronic illness, mental health, socioeconomic status, the healthcare setting life challenges, advocacy, and more.
She identifies as a patient voice and advocate. She openly lives with type 1 diabetes, ADHD, anxiety, OCD, PCOS, endometriosis, and several other conditions. She has experience in non-profits, tech, business, writing, community involvement, and building relationships in various settings online and in person.
She blogs at “There’s More to the Story” about life, chronic illness, and mental health, and she frequently contributes to several chronic illness and mental health blogs. In addition to blogging she is involved in speaking opportunities for awareness, education, and advocacy. She also volunteers at special needs camps.
I went from pediatric cardiac patient to pediatric cardiac nurse, and somewhere along the way I was diagnosed with a slew of other diseases- systemic lupus (with many overlapping autoimmune diseases), cervical cancer, and had a double mastectomy after a pre-cancerous lump was found in my breast. Fun times.
When my nursing career had to be put on hold due to my deteriorating health, I began a new career as a patient advocate/influencer. I started my blog, Luck Fupus, in 2012, and have since used that as a platform to travel the country and share my (crazy) story, discuss hot button topics like patient centricity and transparency, and be the voice for patients. I've received scholarships to attend and speak at a variety of healthcare conferences including Stanford MedicineX, PCORI Annual Summit, MMM Transforming Healthcare, Patients as Partners and many more.
I am new to the blogging, key speaker scene with a passion for health advocacy in the ulcerative colitis, ostomy, chronic illness, multiple surgery, anxiety, depression and infertility areas.