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Top IBD Patient Experts

Barby

President International Pain Foundation, Author, 850+ media appearances, Webfluential Verified Content Creator

Barby
Alternative Medicine
Arthritis
Autoimmune Diseases
Breast Cancer
Caregiving
Chronic Illness
Clinical Trials
Complex Regional Pain Syndrome
Depression
Dystonia
Endometriosis
Epilepsy
Eye Health/Diseases
Food Allergy
Gastrointestinal Diseases
Heart Disease
IBD (Inflammatory Bowel Disease)
Learning Disorders
Migraine
Pain (Chronic Pain, Joint Pain, Back Pain)
Rare Diseases
Reflex Sympathetic Dystrophy
Thyroid Diseases
Ulcerative Colitis
Women's Health
15 More 15 Less
Blogger
Business Development
Editor
Event Planner
Health Data Tracking
Influencer Marketing
Marketing
Mobile App Design
Mobile App Development
Online Moderation
Operations
Peer Support
Product & App Testing
Project Management
Public Relations
Reporter
Social Media
Social Networking
Strategy
9 More 9 Less
San Tan Valley, AZ
available less than 10 hours/week

I advocate for all challenged with chronic pain as well as their family, caregivers, healthcare professionals & public. My speaking engagements, media interviews, and books on chronic pain inspire patient engagement filled with HOPE & motivation. I have been battling chronic pain since 1997. First with endometriosis. Then in 2002, I developed Reflex Sympathetic Dystrophy (RSD), RA, hypothyroid, migralepsy, TMJ and more. My content creation offers practical advice, tips and tricks for better daily living and resolutions to the challenges of living with chronic pain. I have had a medical journey with twist and turns and now educate others on navigating the minefield of the healthcare system. I serve on multiple pain advisory boards and coalitions. WEGO Awards 2012 Ms Congeniality, 2016 Lifetime Achievement, 2016 Best Team Performance. For more information on me check out www.barbyingle.com

Aaron

Graduate Student in Biomedical Research & Patient Advocate

Aaron
Crohn's Disease
IBD (Inflammatory Bowel Disease)
Osteoporosis
Blogger
Clinical Research
Editor
Other
Product & App Testing
Proofreader
Social Media
Social Networking
Jackson, MS
available 21-30 hours/week

I have worked with many different types of companies doing professional consulting work using my influence as an advocate to guide companies on how best to construct their information/product towards a specific patient population. I am a very seasonsed presenter on patient related and scientific topics as well. I am available for consulting, speaking, advisory boards. I also am a Graduate student in Biomedical Research and I have expertise in health & medical writing and scientific consulting. I have written for health and science web sites about many different topics including Inflammatory Bowel Disease, Clinical Trials and Scientific Research.. I have consulted on advisory boards as a scientific consultant as well using my knowledge of science and patient advocacy to help companies.

Meridith

Cancer patient caregiver, RA patient, Mental heath advocate

Meridith
Anxiety
Arthritis
Caregiving
Depression
Gastrointestinal Diseases
IBD (Inflammatory Bowel Disease)
Mental Health
Rheumatoid Arthritis
Other
Public Relations
Reporter
Delray Beach, FL
available as required

I would like to speak to groups about staying positive during a loved ones fight with cancer. I have Depression and Anxiety and want to openly speak about it, helping others. I also have Rheumatoid arthritis for 20 years.

Olivia

Health Advocate with a Health and Wellness Background

Olivia
IBD (Inflammatory Bowel Disease)
Irritable Bowel Syndrome
Ulcerative Colitis
Naperville , IL
available less than 10 hours/week

I have had Inflammatory Bowel Disease, specifically Ulcerative Colitis, since 2009. I completed a Bachelor's degree in Health and Wellness in 2016. While facing multiple symptoms during my undergraduate study, I received continuous assistance from the Student Office of Access and Wellness. I shared my academic story of managing Inflammatory Bowel Disease while completing my undergraduate study. The University that I attended published my story through social media outlets to encourage other individuals with disabilities to accomplish their academic goals. During my undergraduate experience I contributed to the University's Health Promotion Quarterly Newsletter. For the Health Promotion Quarterly Newsletter I would write articles on Health Promotion topics that were relevant to the student body. I have previously volunteered some of my time to the Crohn's and Colitis Foundation.

Sarah Rae

Founder and writer of Living Life IBD Style, Patient Advocate, Certified Nurses Assistant

Sarah Rae
Anemia
Anxiety
Autoimmune Diseases
Crohn's Disease
Depression
Gastrointestinal Diseases
IBD (Inflammatory Bowel Disease)
Blogger
Peer Support
Social Media
Linwood, NC
available as required

As a patient , myself, I believe my Expertise involves a wide range. I am the founder of a blog called Living Life IBD Style, I share with others my story and knowledge of both Crohn's and Ulcerative Colitis. I also touch on Anemia, Dehydration, Ostomies, Anxiety and Depression and soon I want to write about fitness and nutrition as well, from my point of view and research. Everyone's body is different when it come to how it handles any situation. I also work in health care, currently I am a Certified Nurses Assistant and work within a nursing and rehabilitation center. I am working towards becoming an Registered Nurse. I help out within the CCFA local chapter here in NC, I attend conferences to learn new information on IBD, Education programs as well as our walks we plan. I love to research and learn as much as I can about my illness plus others and am very passionate and dedicated.

Chase

Drug Discovery and Public Health Professional; Founder and Editor of GUTS (guts.blog)

Chase
Crohn's Disease
IBD (Inflammatory Bowel Disease)
Blogger
Clinical Research
Project Management
McLean, VA
available 10-20 hours/week

I am a life sciences and public health research professional living with Crohn's Disease since I was a teenager. I am experienced in the field of Inflammatory Bowel Disease and immune mediated disease research, as well as novel drug discovery and development. I have a keen knowledge of the pros and cons of the various treatments for IBD and new therapeutics in development. My pride and passion is my ability to discuss and educate on key IBD issues and health science to both layman and experts. I thrive in the presentation setting and cherish the opportunity have interpersonal engagements with patients and professionals in the fight with IBD and autoimmunity.

Maria

Founder, My Life as a Puddle / Hyperhidrosis, Ulcerative Colitis, Hashimoto's Advocate

Maria
Autoimmune Diseases
Depression
Gastrointestinal Diseases
IBD (Inflammatory Bowel Disease)
Mental Health
Rare Diseases
Skin Health/Diseases
Ulcerative Colitis
Blogger
Business Development
Consumer Engagement
Copywriter
Digital Marketing
Editor
Influencer Marketing
Marketing
Proofreader
Public Relations
Social Media
Social Networking
Strategy
3 More 3 Less
Loveland, CO
available less than 10 hours/week

PASSIONATE & CREATIVE WRITER, EDITOR, CONTENT STRATEGIST

Deliver quality, professional communication skills in a fast-paced environment. Successfully write marketing, communications, and web content for brands, brand ambassadors, products, service lines and key launches. A proven record in writing, planning, and leading communication strategies in support of business goals and objectives. A self-starter and team player, able to manage multiple projects, prioritize deadlines and plan from concept to launch and final analysis of ROI.

Randi

Co-founder, Help Me Health

Randi
Aging/Senior Health
Crohn's Disease
IBD (Inflammatory Bowel Disease)
Business Development
Consumer Engagement
Consumer Insights
Human Resources
Strategy
available as required

Engaging healthcare employees in re-imagining the patient experience.

Help Me Health transforms how healthcare thinks about and delivers patient experiences to achieve better outcomes and a better bottom line.

* Impactful and memorable keynote speeches, customized to key themes
* Buzz workshops for conferences designed for attendee interaction
* Training sessions for all employees to create commitment not only compliance with redesigning processes for improved patient experience

Rebecca

IBD Caregiver, Mental Health Advocate

Rebecca
Anxiety
Crohn's Disease
Depression
IBD (Inflammatory Bowel Disease)
Irritable Bowel Syndrome
Ulcerative Colitis
Blogger
Copywriter
Digital Marketing
Editor
Influencer Marketing
Public Relations
Reporter
Social Media
Social Networking
Strategy
PORT CHESTER, NY
available less than 10 hours/week

Personally and professionally, I have almost 10 years experience in patient advocacy, as both a caregiver for a Crohn's patient and an advocate for mental illness as a patient with panic disorder. Professionally, my background is in advocacy/public policy and communications, with a focus on the government and nonprofit sector. I am also an experienced reporter, ghost writer, and blogger, with writing appearing in The Huffington Post, Newsday, Hartford Courant, and more.

Kenzie

Founder of Life According to Kenz, Writer, Rheumatoid Arthritis and Mental Health Activist, Social Work Student

Kenzie
Anxiety
Crohn's Disease
Depression
Dystonia
Endometriosis
Fibromyalgia
IBD (Inflammatory Bowel Disease)
Lyme Disease
Pain (Chronic Pain, Joint Pain, Back Pain)
Psoriasis
Rheumatoid Arthritis
1 More 1 Less
Blogger
Peer Support
Social Media
Social Networking
St Paul, MN
available 10-20 hours/week

Worked closely with other advocates and patients through various social media outlets and my own website. Mastered community engagement, led support groups/patient chats, presented at several conferences, and participated in a plethora of paid writing opportunities.

Casey

Founder, LifetimePatient

Casey
Anxiety
Asthma
Autoimmune Diseases
Birth Control
Carpal Tunnel Syndrome
Chronic Illness
Cirrhosis
Fitness
Gastrointestinal Diseases
Hepatitis
IBD (Inflammatory Bowel Disease)
Liver Diseases
Obesity
Organ Transplantation
Pain (Chronic Pain, Joint Pain, Back Pain)
Ulcerative Colitis
6 More 6 Less
Blogger
Business Development
Clinical Research
Event Planner
Operations
Peer Support
Program Development
Project Management
Social Media
Hayward, CA
available 40+ hours/week

I am a chronic illness and invisible illness blogger and advocate. I have professional experience in the nonprofit and medical field, surrounding operations, administration, and project management.

As a long time chronic illness patient, my passion is to enable other patients to take control of their health journey and advocate for their needs. I am a big believer that life is what you make of it, and a person's health is directly impacted by how engaged they choose to be. I have a growing social media following on primarily Instagram, and am working on launching my website, Lifetime Patient.

I would like to collaborate with companies to provide insight on upcoming campaigns or products, participate in patient advisory boards, and lead presentations and/or speaking engagements. I want to provide a solid, trustworthy voice for not only the patient community but affect change in the professional medical community and today's ever-changing healthcare field.

Simon

Patient Leader and Doctoral Researcher in Child and Family Health

Simon
Arthritis
Chronic Illness
Crohn's Disease
Fibromyalgia
IBD (Inflammatory Bowel Disease)
Irritable Bowel Syndrome
Psoriasis
Psoriatic Arthritis
Rheumatoid Arthritis
Seasonal Allergy
Clinical Research
Consumer Engagement
Consumer Insights
Digital Marketing
Marketing
Mobile App Development
Project Management
Social Media
Social Networking
Strategy
Leeds, ENG
available less than 10 hours/week

I am a passionate advocate and activist for people living with musculoskeletal conditions, working with a number of national and international organisations as a guest speaker, freelance consultant and adviser. I am also a doctoral researcher in child and family health in the United Kingdom, where my research interests include self-management in children with long-term conditions and public involvement in research. I hold a first class BSc (Hons) degree in Biomedical Sciences with Industrial/Professional Experience.

I am available to speak at events as an empowered patient and early career researcher. I am also available in a consultant capacity to shape research proposals, study designs, plans for public involvement and for engaging members of the public in science and medicine. I am also experienced in using social media, having presented lectures and facilitated workshops on using social media for health purposes.

Arielle

Founder, The Happy Tummy

Arielle
Autoimmune Diseases
Celiac Disease
Crohn's Disease
Food Allergy
Healthy Living
IBD (Inflammatory Bowel Disease)
Irritable Bowel Syndrome
Mental Health
Oral Health
Polycystic Ovarian Syndrome
Psoriasis
Severe Allergy
Sleep and Sleep Disorders
Ulcerative Colitis
Women's Health
5 More 5 Less
Blogger
Marketing
Peer Support
Social Media
Social Networking
available less than 10 hours/week

I offer support to those suffering from chronic digestive illness through my website http://nomorebellyaches.com as well as social media.

Maggie

Founder of Let's Talk IBD, Registered Nurse

Maggie
Crohn's Disease
IBD (Inflammatory Bowel Disease)
Blogger
Social Media
Social Networking
Ottsville, PA
available 10-20 hours/week

Inspired by my Crohn's disease and my ileostomy bag, I created Let's Talk IBD, an online YouTube community discussing the difficulties and triumphs with chronic illness.

Adjusting to life well with an ostomy, I went on to become a registered nurse. I currently work as a pediatric GI nurse at one of the nation's top pediatric hospitals.

I have the ability to create educational and informative videos, blog posts, and graphics as well as consult for companies interested in patient perspective of chronic illness.

Megan

Co-Founder, Creative, The Great Bowel Movement

Megan
IBD (Inflammatory Bowel Disease)
Ulcerative Colitis
Blogger
Consumer Engagement
Digital Marketing
Marketing
Other
Social Media
Milwaukee, WI
available 10-20 hours/week

Both professionally and in the advocacy space, I use my marketing background to bring brands, messages, and products to life. I, along with my partner Andrea Meyer, grew The Great Bowel Movement to become an empowered community of IBD patients, affecting both the state of awareness among the general public, and empowering other advocates to find their voices and step up to make a difference for the community. Our brand is unique in the space, geared to lift up individuals, resulting in an empowered patient community, fostering both acceptance and openness about life with IBD. In my full time job, I work as a marketing specialist for a local manufacturing company. My roles include web design and SEO, digital and print design, video production, and more. I believe that brand is the personification of all the things a company our cause stands for, and I love bringing them to live in a complex and authentic way through these tools.

Erin

Founder InsideOut Ostomy

Erin
Anxiety
Depression
IBD (Inflammatory Bowel Disease)
Infertility
Ulcerative Colitis
Blogger
Finance
Peer Support
Social Media
Social Networking
Gosnells, 08
available less than 10 hours/week

I am new to the blogging, key speaker scene with a passion for health advocacy in the ulcerative colitis, ostomy, chronic illness, multiple surgery, anxiety, depression and infertility areas.

Sahara

#IBDSuperHeroes

Sahara
IBD (Inflammatory Bowel Disease)
Ulcerative Colitis
Blogger
Business Development
Consumer Engagement
Consumer Insights
Digital Marketing
Influencer Marketing
Marketing
Social Media
Social Networking
Strategy
Chesterfield, AE
available 10-20 hours/week

IBD advocate working in social media marketing role.
Raising awareness of Crohn's Disease and Ulcerative Colitis.

Shelley

Founder of stomainateacup, Making Ostomies Cool & Sheppey Ostomy and IBD support group.

Shelley
Arthritis
Carpal Tunnel Syndrome
Endometriosis
IBD (Inflammatory Bowel Disease)
Ulcerative Colitis
Blogger
Online Moderation
Peer Support
Social Media
Social Networking
available less than 10 hours/week

I have extensive knowledge of the UK health system for both patients with Inflammatory Bowel Disease and Ostomies.

I have a large online following through Facebook, Twitter & Instagram and not only blog for associated organisations & companies, but offer one to one support to many patients.

I have a passion for pre & post op support, with the aim of reducing mental health issues further down the line.

The one to one support, in-depth information and suitable guidance for pre & post op ostomy patients isn't being sufficiently provided. The NHS is so stretch and can often only care on a clinical level. Patients in this area require much more from the service, so I voluntarily bridge the gap in my local area & online.

I'm happy to do public speaking or discuss my journey, if in context.

Jana

Founder & Author, The Owlf Blog, A Crohn’s Quality of Life-style blog

Jana
Anxiety
Asthma
Chronic Illness
Crohn's Disease
Depression
Gastrointestinal Diseases
IBD (Inflammatory Bowel Disease)
Mental Health
Pain (Chronic Pain, Joint Pain, Back Pain)
Seasonal Allergy
Blogger
Consumer Insights
Peer Support
Social Media
Hellertown, PA
available 10-20 hours/week

I am a Crohn’s disease patient, advocate and chronic illness blogger. I facilitate a support group with the Crohn’s and Colitis Foundation in my local area. I blog about pursuing the best quality of life possible while managing chronic illness. I’ve gained lots of knowledge about Inflammatory Bowel Disease, the medical field and insurance policies through living it and continual research. I am open to testing out products that would benefit chronic illness patients. I would enjoy working closely with healthcare providers, insurers, and other medical professionals so that they better understand the needs and concerns of patients living with invisible illnesses.

Fabio

Influencer-Powered Clinical Trial Recruitment Expert

Fabio
ADHD (Attention Deficit/Hyperactivity Disorder)
Aging/Senior Health
Alzheimer's Disease
Anxiety
Aphasia
Arthritis
Asthma
Atrial Fibrillation
Autoimmune Diseases
Bipolar Disorder
Blood Disorders
Bone Cancer
Brain Cancer
Brain Health
Breast Cancer
Cancer
Caregiving
Cervical Cancer
Cholesterol
Chronic Illness
Clinical Trials
Colorectal (Colon) Cancer
Crohn's Disease
Cushing's Disease
Cystic Fibrosis
Dementia
Depression
Diabetes
Diabetes - Type 1
Diabetes - Type 2
Duchenne Muscular Dystrophy
Epilepsy
Fibromyalgia
Gastrointestinal Diseases
Gaucher's Disease
GIST
Heart Disease
Heart Health
Hepatitis C
HIV/AIDS
IBD (Inflammatory Bowel Disease)
Irritable Bowel Syndrome
Liver Cancer
Lung Cancer
Lupus
Lymphoma
Melanoma
Men's Health
Menopause
Mental Health
Migraine
Multiple Sclerosis
Myeloma
Neuromuscular Disorders
Non-Hodgkin's Lymphoma
Ovarian Cancer
Pain (Chronic Pain, Joint Pain, Back Pain)
Pancreatic Neuroendocrine Tumors
Parenting and Family Health
Parkinson's Disease
Pregnancy
Prostate Cancer
Psoriasis
Psoriatic Arthritis
Rare Diseases
Rheumatoid Arthritis
Schizophrenia
Seasonal Allergy
Seizures
Sexual Health
Sickle Cell Disease
Sleep and Sleep Disorders
Stroke
Ulcerative Colitis
Women's Health
65 More 65 Less
Costa Mesa, CA
available 40+ hours/week

I have been working with patient communities and health activists for 20+ years, helping dozens of companies (including biotech, pharma, recruitment firms and CROs) recruit patients for clinical trials through influencer-driven innovative digital programs. If you're interested in adding a patient influencer strategy to your recruitment efforts, please contact me.


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