Tami Stackelhouse encourages hope and healing as a coach, author, speaker, and founder of the International Fibromyalgia Coaching Institute. A fibromyalgia patient herself, Tami has gone from disabled to thriving. Her compassion, gentle support, and fun coaching style help women with fibromyalgia take back control of their lives.
A Certified Health Coach and member of the Leaders Against Pain Action Network, Tami is the author of the best-selling books "The Fibromyalgia Coach" and "Take Back Your Life". She has been an instructor, presenter, panelist and writer for organizations such as the National Fibromyalgia & Chronic Pain Association, Oregon Health & Science University, The Frida Center for Fibromyalgia, Oregon Fibromyalgia Information Foundation, and Molly’s Fund Fighting Lupus. She has founded two non-profit organizations, including the Sherri Little Foundation which provides micro-grants to chronic pain patients. She serves as mentor to the FibroAcademy support group.
I have either worked for or with service companies selling to the life sciences industry for over 25 years. My specialty is understanding the needs of target audiences across the clinical and commercial continuum and introducing new companies and/or solutions to address unmet needs. When my young adult son was diagnosed with a rare disease I immersed myself in the rare disease community, working as a liaison between industry, patient advocates, healthcare associations, government and academia. I consider myself a lifelong learner and spend significant time staying current on the challenges and successes of the healthcare landscape as well as new technologies impacting the future, such a artificial intelligence, telehealth and blockchain. While I have a particular interest in cluster headaches (especially chronic since that is my son's diagnosis), I can work effectively for almost any company hoping to bring transformative change to healthcare by including the patient's voice. .
A passionate professional with over ten years of healthcare operations experience, together with lived experience as a chronic pain patient and as a postpartum depression survivor, advocate and independent researcher I can bring a wealth of knowledge and insight to your next project. My expertise includes work in patient engagement and co-creation, peer support implementation, maternal mental health, mental health treatment modalities, social media outreach and engagement, online patient communities, and significant understanding in the social/cultural influences to mental health, addiction and chronic pain.
My preferred consulting engagements include planning, strategy and implementation of patient engagement, providing direction as to understanding disease pathways, stigma/shame related to mental health diagnosis and chronic pain along with research/writing opportunities.
I became ill in 2001 and over 4 years saw 51 specialists that could not diagnose my illness. I was handed a Medline study from Christopher Reeves' Neurologist and was told to find the surgeon that performed that study. It lead me to Pittsburgh & Dr Peter Jannetta, Godfather of Modern Neurosurgery. He saved me from becoming a quadriplegic & worse. I never imagined I would develop multiple Rare Diseases at 31 yrs old, I had to learn to live a new limited life and the only way to start was with knowledge, then with helping others when I was well enough, and I have never stopped. I am a Leader in the Rare Disease Community, a Healthcare Activist, and Lobbyist. I have been fortunate to work with 1000's of Rare Disease Patients, Health and Disease Organizations and Foundations, Healthcare Stakeholders, and learned from them all. Now I try and improve Healthcare one day and project at a time.
Lead the Continuous Improvement program at a multi-national med tech firm. Teach powerful operational excellence methodologies, including designing systems focused on customer value, and training trainers for effective & broad standardization of best practices. Expert in coaching leaders & team members to develop skill in scientific problem-solving. Technical background in Quality Engineering & Mathematics.
Since 2012, collaborated with hundreds of healthcare professionals to drive favorable outcomes for my medically complex son. Experience includes thousands of hours spent in inpatient settings on both coasts of the US, and countless hours working to manage care at home. Through repeated success in the face of terrible odds, developed a deep passion for co-produced care leveraging the unique assets that patients/carers and professionals each bring to the table.
Eager to help any organization seeking to move in this direction.
I am a nurse and respiratory therapist. My daughter has a progressive heart disease and while being her healthcare support I have found myself being an advocate for many others. I am now doing this as a career. My mission is to be able to accompany the client through their illness or wellness to a meaningful experience.
Office visit companion
Care plan review and advising
Locating specialist for needed care
Audit medical billing and/or intervention as requested
Coordinate home care to aid in keeping client grounded in their environment
Evaluating facility needs if home care is not feasible
Acquiring durable medical equipment when applicable
Community Development and Business Management are among the educational knowledge and skills that are utilized to support the Ostomy community. As a permanent Ostomate, Certified Patient Navigator, and Advocate, I can meet with patients in a highly diverse environment, offering care to them as a PERSON.
I can help with Pre-op visits, Post-op visits, help with access to supplies and care once released from the hospital, and other related support that may be needed along the way.
I work to bridge communications between the various medical teams, the patient, insurance, and the other caregivers and loved ones.
I can offer answers to most of the non-medical ostomy-related questions someone may have; speaking from experience as a fellow Ostomate.
Erin Gilmer is a patient advocate who spent her legal career in health law and policy including working with government, non profit, and startups. She advocates around the country to provide a voice for those who struggle with various health and economic issues.
*Note: While I am a licensed attorney in Texas, I am not offering legal services here via WegoHealth Experts.
I volunteered for the National Adrenal Disease Foundation for 4 years. I have learned so much about Adrenal Insufficiency by living with the disease and helping others live with the disease too. I am an expert patient. Since April 2016, I've been making educational videos, raising awareness, offering support, helping others in need (both patients and caregivers) and providing assistance where needed because there are not enough medical professionals that know enough give patients details they need and we are losing too many! I am available to assist with education and advocacy, and open to other assignments.
Due to having someone very close to me with a serious mental illness, I have been extensively trained to facilitate support groups and educate people with a mental illness and caregivers. Having suffered trauma myself, I understand both. I also strongly believe in the mind/body/spirit connection and how each greatly impacts the other. I am a great advocate and supporter.
Developing and managing online communities and handling issues, creative program development for specific needs, establishing and running a successful non-profit online, creating a "brand" for an organization, awareness months/weeks/days, utilizing social media, engaging patients, volunteer management. I have a number of conditions, a few leading to my need for a five organ transplant (full GI tract) in 2006. I founded G-PACT at the age of 23, 16 years ago. Since then we have grown to become the leading international non-profit for the conditions we cover. I was an art major with no business training. My ability to be creative, think outside the box, and recognize unique needs patients have and find ways to address them have all contributed to our strength. I express myself well through writing and art. I think patients need leaders who truly understand them and don't just hear facts. Patients want a cure, but they also want people who care, have humor, and are down to earth.
Strategy, management, monitoring, creation, and scheduling of social media channels and applicable content.
Editor; graphics, overall editorial calendar, and management of all blog authors.
Creation of social media corporate strategy, as well as social media training modules for internal education and overall brand vision.
Management of paid search, paid social media, goal conversions, and SEO/SEM with Google AdWords, Google Analytics, and Social Media Advertising platforms.
Content Management, editing, and creation for external-facing website; proficient in Sitecore CMS.
Digital marketing analytics strategy, reporting, and recommendations with the following tools and tactics: social media metrics, paid search metrics, email marketing metrics, website metrics, from Google Analytics, Google AdWords, Hootsuite Ads, Exact Target, and Facebook Ads Manager.
I am a freelance health and science writer for hire. I help businesses get results with quality content. I create compelling content that has a proven track record of driving online engagement.
I can help you reach the right audience, create better content, raise brand awareness and make more money. I can translate complex health and science topics into plain language.
I have a Bachelor of Science degree from Butler University and graduated summa cum laude with a double major in biology and chemistry. I have extensive online writing experience. I have published on Yahoo! News, CNN iReport, Lifescript.com, The Huffington Post and many other publications.
Over 30 years' experience managing pain, coaching world class athletes to keep motivation through injuries and trauma, leading edge of pain treatment options. Former professional football player speaks on personal insights on pain, patient experiences, and trends with a comedic flair.
I have been an advocate with a number of different organizations since 2013. During that time I have contributed to dozens of publications about my life with chronic illnesses. I have received a letter of recommendation from one of the organizations that I work for and have also been described as one of the top 5 volunteers in the organization. I am very active on social media and currently have a blog that I am working on. I write stories and contribute them to a webpage along with others who suffer from psoriatic disease. I have attended: 2015 Arthritis Foundation Advocacy Summit, FDA Patient Focus Drug Development meeting, HealtheVoices Conference, National Psoriasis Foundation Capitol Hill Fly-In, NPF Volunteer Conference. I have contributed to: Women's Health, HealthCentral, HealthMonitor, HealthGrades, Psoriasis Advance,etc
I have been diagnosed, and am being treated for, psoriasis, psoriatic arthritis, endometriosis, chronic fatigue syndrome, fibromyalgia, and chronic pain.
I write and speak about mental illness, chronic pain, and women's health issues. I launched my website, Fashionably ill ®, in 2012 and am a contributor to The Huffington Post and Ask a Bipolar. I frequently speak at conferences, universities, and other events - my 2015 TEDx Talk, "How to Get Stuff Done When You Are Depressed," recently surpassed 250,000 views. I have a book on the same subject as my TEDx Talk coming out. I used to work in mental health nonprofit. In my free time, I give makeovers to women with illnesses including cancer, MS, lupus, among others. My skills include: writing copy for campaigns (awareness or policy campaigns), story telling, and public speaking. NBC News did an extensive profile on my advocacy work. I live well with bipolar 2, myasthenia gravis, polycystic ovarian syndrome, asthma, and psoriasis. I graduated from Northwestern University with a B.S. in Communications & a Second Major in Political Science.
I am a seasoned advocate focused on person-centered healthcare transformation. I am known for my ability to collaborate, solve problems, and connect the dots. Having cared for multiple parents with dementia, I have a 360 degree view of healthcare, social services, and the challenges faced by patients and their families. My areas of focus include: health policy, health literacy, health content development, health IT usability, communication, and training. I serve as Patient Research Partner and Ambassador for the Patient Centered Outcomes Research Institute (PCORI), and Adviser for the National Alzheimer’s & Dementia Patient & Caregiver-Powered Research Network. I am a former Executive in Residence for the Healthcare Information Management and Systems Society (HIMSS) Foundation, Institute for e-Health Policy. My mission is to make healthcare and health research easier for patients and family caregivers.
Health Activist / Patient Advocate / Speaker / Patient Engagement / Brand Ambassador
Currently representing the Lupus community as the "Face of Lupus" for the International Pain Foundation.
My story "Living Well with Lupus" isa chapter in Jan Oldenburg's book "Participatory Healthcare" about patient engagement in today's healthcare system.
Presented at the 2016 "Connected Health Conference" for the "Patients as Innovators and Partners" panel.
The British Medical Journal published my article on the impact of Social Media in Patient Communities.
Represented the Lupus Foundation of America and the Lupus Research Institute as a empowered patient advocate on Capitol Hill.
Actively participated in advocacy in person & online.
Shared my story at #TEDMED on stage "Great Challenges" ambassador
Presented iat Lincoln Center on Community Engagement as a Brand Ambassador.
Moderated a panel of patient activists and shared my Lupus journey at the 92nd Street Y in New York City.
Jewels is an Arizona based RN with 21 years of experience. She’s a passionate patient advocate, health consultant, freelance health writer, and long distance cyclist. Dedicated to improving the patient experience, Doskicz combines her unique perspective as both professional and patient. She moderates the #DCDE diabetes Twitter chat and blogs at shesugar.com, a resource for people living with type 1 diabetes and celiac disease. Both she and her daughter live healthfully with multiple autoimmune diseases.
I am a public health professional with analytics experience working for hospital systems and health insurance companies. I am very familiar with how these entities determine and process coverage, coding and payment of services. I'm offering my expertise to help patients navigate the complex healthcare system as a virtual health companion. I will produce a detailed guide on coverage, payment and services patients can expect for their healthcare journey, and suggest the best pathways to mitigate headaches and stress!
Wanting to use my 2 Bachelor's degrees, Criminal Justice and the other Paralegal Studies, I spent about 8 years working in top Chicago law firms as a litigation paralegal in Intellectual Property, Toxic Tort, Class Action, as well as insurance defense, and police brutality; So, in addition to my year of law school, I have a pretty broad scope of legal experience to offer.
After my legal career, my mental health social media career began at Ask A Bipolar, blogging and marketing, while also blogging for International Bipolar Foundation., I started my own website so I could blog and help others by using my own journey through bipolar disorder, eating disorders, etc.. This gave me a lot of social media.experience.
Now, I am the C.O.O. of Hope Xchange . We do peer to peer mentoring, mental health advocacy and suicide prevention. As COO, I have learned a plethora of things regarding running a non profit and other upper management skills needed to run an organization.