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Top Chronic Pain Experts

Barby

President International Pain Foundation, Author, 850+ media appearances, Webfluential Verified Content Creator

Barby
Alternative Medicine
Arthritis
Autoimmune Diseases
Breast Cancer
Caregiving
Chronic Illness
Clinical Trials
Complex Regional Pain Syndrome
Depression
Dystonia
Endometriosis
Epilepsy
Eye Health/Diseases
Food Allergy
Gastrointestinal Diseases
Heart Disease
IBD (Inflammatory Bowel Disease)
Learning Disorders
Migraine
Pain (Chronic Pain, Joint Pain, Back Pain)
Rare Diseases
Reflex Sympathetic Dystrophy
Thyroid Diseases
Ulcerative Colitis
Women's Health
15 More 15 Less
Blogger
Business Development
Editor
Event Planner
Health Data Tracking
Influencer Marketing
Marketing
Mobile App Design
Mobile App Development
Online Moderation
Operations
Peer Support
Product & App Testing
Project Management
Public Relations
Reporter
Social Media
Social Networking
Strategy
9 More 9 Less
San Tan Valley, AZ
available less than 10 hours/week

I advocate for all challenged with chronic pain as well as their family, caregivers, healthcare professionals & public. My speaking engagements, media interviews, and books on chronic pain inspire patient engagement filled with HOPE & motivation. I have been battling chronic pain since 1997. First with endometriosis. Then in 2002, I developed Reflex Sympathetic Dystrophy (RSD), RA, hypothyroid, migralepsy, TMJ and more. My content creation offers practical advice, tips and tricks for better daily living and resolutions to the challenges of living with chronic pain. I have had a medical journey with twist and turns and now educate others on navigating the minefield of the healthcare system. I serve on multiple pain advisory boards and coalitions. WEGO Awards 2012 Ms Congeniality, 2016 Lifetime Achievement, 2016 Best Team Performance. For more information on me check out www.barbyingle.com

Kayla

Writer + Marketer + Web Designer + Business Consultant + Advocate (Living with MS)

Kayla
Autoimmune Diseases
Chronic Illness
Depression
Endometriosis
Healthy Living
Multiple Sclerosis
Pain (Chronic Pain, Joint Pain, Back Pain)
Seasonal Allergy
Women's Health
Blogger
Business Development
Clinical Research
Consumer Engagement
Consumer Insights
Copywriter
Crowdsourcing
Digital Marketing
Editor
Health Data Tracking
Influencer Marketing
Marketing
Mobile App Design
Online Moderation
Peer Support
Product & App Testing
Product Development
Project Management
Proofreader
Reporter
Social Media
Social Networking
Strategy
Usability Testing
UX/User Design
15 More 15 Less
Fergus Falls, MN
available 21-30 hours/week

In addition to being a "professional patient" living with MS and chronic pain, I have a varied career that includes writing, marketing, web design, education, and consulting. My perspective as a patient makes me particularly interested in helping businesses in the healthcare industry with their messaging and methods of reaching out to, interacting with, and supporting patients.

I can also make a mean veggie stir fry and talk about books for hours.

Leanna

Rare Disease Patient in the Real World.

Leanna
Bone Diseases
Chronic Illness
Gaucher's Disease
Pain (Chronic Pain, Joint Pain, Back Pain)
Parkinson's Disease
Rare Diseases
Seasonal Allergy
Women's Health
Blogger
Clinical Research
Consumer Insights
Crowdsourcing
Digital Marketing
Other
Peer Support
Public Relations
Reporter
Social Media
Social Networking
1 More 1 Less
Egg Harbor City, NJ
available 10-20 hours/week

I work as a TV Station Manager for a local government access channel in NJ and assist with High School internships in TV Production & Advertising. I own and operate a freelance photography, video, and graphic design company (Film Reel Productions).

In my spare time, I support the Gaucher Disease community and advocate for patients and families with rare diseases/genetic disorders. I livestream weekly on ZubiaLive where reach a national audience on rare disease topics ("rare15") #rare15chat. I have experience with social media, crowdsourcing, and PR/advertising.

*Nominee for WEGO Health Award (2017):
"Healthcare Collaborator: Patient"
"Best Kept Secret"
*Patient Leader Hero*

*Technology Trainer (Talent/Producer) for TeacherCoach.com
*Vlogger/Host on ZubiaLive.net - [rare 15]

Sarah

Communications Consultant

Sarah
Caregiving
Chronic Illness
Other
Pain (Chronic Pain, Joint Pain, Back Pain)
Rare Diseases
Restless Legs Syndrome
Stroke
Thyroid Diseases
Blogger
Consumer Insights
Copywriter
Editor
Marketing
Online Moderation
Other
Peer Support
Program Development
Proofreader
Public Relations
Reporter
Social Media
Social Networking
4 More 4 Less
Charlotte, NC
available 10-20 hours/week

Sarah E. Kucharski is a consultant, public speaker and advocate fostering the patient voice in medicine through storytelling, social media and design thinking for innovation. Her special interests include narrative medicine, patient engagement, the patient experience, the doctor-patient relationship, the patient-caregiver relationship, chronic illness, end-of-life issues, clinical trials, health literacy, and social media's ability to connect for peer-to-peer support and medical education.

Her professional experience includes 17 years in public relations, news reporting, magazine writing, and editing for print and online publications. She has a B.A. in journalism, a M.A. in liberal studies, and a certificate from Columbia University's Narrative Medicine program.

Shane

Founder of the Speaking to the Heart Radio Network

Shane
Addiction
Anxiety
Brain Health
Chronic Illness
Depression
Disabilities
Mental Health
Migraine
Other
Pain (Chronic Pain, Joint Pain, Back Pain)
Stroke
1 More 1 Less
Blogger
Editor
Event Planner
Executive Coach
Influencer Marketing
Peer Support
Proofreader
Public Relations
Social Media
Social Networking
Strategy
1 More 1 Less
Troy, NY
available 40+ hours/week

In 2012, I decided to utilize my expertise in process management along with my advocacy for Mental Health Issues from a patient's point of view. I have been a Keynote Speaker on subjects such as depression, borderline personality disorder, addiction and post-traumatic stress disorder. In 2013, I wrote a motivational piece titled "Arisen Strength". The piece took a journey from despair to strength, and then from strength to purpose in helping others. In 2014, I created a motivational podcast called "Arisen Strength" aimed to help others be more than the challenges they face. In 2015. I developed an internet radio network to showcase awareness and support for all types of challenges.

I can provide, but not limited to:

> Radio Advertising (Audio and Digital)
> A platform to bring awareness to a cause, condition or brand
> Professional interviews
> Professional audio and video editing
> Professional voice-over
> Audio Narration (Audiobooks Podcast, Educational Materials)

Danny

Founder Health Hats

Danny
Addiction
Alternative Medicine
Autoimmune Diseases
Children's Health
Developmental Disabilities
Health Public Policy
Men's Health
Mental Health
Multiple Sclerosis
Pain (Chronic Pain, Joint Pain, Back Pain)
Blogger
Business Development
Clinical Research
Consumer Engagement
Editor
Executive Coach
Mobile App Development
Peer Support
Project Management
Strategy
Usability Testing
1 More 1 Less
Arlington, MA
available 10-20 hours/week

An action catalyst empowering people traveling together toward best health (patients, caregivers, and clinicians) Danny wears many hats in healthcare: pt with MS, caregiver, nurse, informaticist and QI leader. His current work focuses on communication at transitions of care, person-centered health planning, informed decision-making, and technology supporting solutions created by and for people at the center. He advises entrepreneurs about strategy, infrastructure, and user-friendly workflows and technology. He teaches and coaches front-line managers. He serves as a patient/caregiver stakeholder representative on Technical Expert Panels for Shared Decision Support and PCORnet and sits on the Steering Committee for the AHRQ-supported Clinical Decision Support Learning Network. He reviews PCORI research funding applications and serves as co-chair of PCORI’s Communication and Dissemination Advisory Panel. He blogs weekly at www.health-hats.com.

Shannan

Patient Advocate

Shannan
Arthritis
Autoimmune Diseases
Chronic Illness
Fibromyalgia
Food Allergy
Health Public Policy
Healthy Living
Infertility
Pain (Chronic Pain, Joint Pain, Back Pain)
Rheumatoid Arthritis
Skin Cancer
Thyroid Diseases
Women's Health
3 More 3 Less
Blogger
Clinical Research
Consumer Engagement
Health Data Tracking
Human Resources
Online Moderation
Peer Support
Social Media
Social Networking
Staten Island, NY
available as required

A dedicated licensed social worker in New York City and active advocate with the Arthritis Foundation with a passion for sharing her story as a patient living with Juvenile Idiopathic/Rheumatoid Arthritis since a toddler and being a voice for children and young people struggling with navigating their lives and medical care with rheumatoid arthritis including addressing the shortage of pediatric rheumatologists across the nation. She has advocated on Capital Hill and her state of New York's capital as a voice for patients. Additionally, a certified yoga instructor and a recent graduate of the Yoga for Arthritis teacher training program that she is bringing to her current clients and developing an accessible program with her current employer.
I am available for speaking engagements, patient panels, writing, fundraising, advocacy, blogging, and much more.

Sarah

Author, Health Writer, and Patient Advocate for Migraine and Mental Health

Sarah
Alternative Medicine
Anxiety
Bipolar Disorder
Birth Control
Caregiving
Child Behavior Disorders
Children's Health
Chronic Illness
Depression
Disabilities
Epilepsy
Healthy Living
Learning Disorders
Mental Health
Migraine
Pain (Chronic Pain, Joint Pain, Back Pain)
Parenting and Family Health
Post-Traumatic Stress Disorder
Pregnancy
Seasonal Allergy
Seizures
Sexual Health
Skin Health/Diseases
Women's Health
14 More 14 Less
Blogger
Business Development
Consumer Engagement
Copywriter
Digital Marketing
Editor
Finance
Human Resources
Influencer Marketing
Marketing
Online Moderation
Operations
Project Management
Proofreader
Reporter
Social Media
6 More 6 Less
Dripping Springs, TX
available as required

Sarah Hackley is most known for her work as a patient advocate spreading awareness of life with chronic migraine. She has been featured on numerous health blogs and is a regular contributor for Migraine.com, where she utilizes her personal experiences and educational background in neuropsychology to educate others on issues affecting the migraine community. She also is the author of two self-empowerment books, "Finding Happiness with Migraines: A Do It Yourself Guide" and "Preparing to Fly: Financial Freedom from Domestic Abuse." She also speaks, writes, and coaches patients on how to live fully and joyfully with chronic illness. Additional information can be found on her website: www.sarahhackley.com.

Tanya

Product and Program Manager, Customer Insights and Engagement

Tanya
Breast Cancer
Fitness
Melanoma
Neuroendocrine Cancer
Pain (Chronic Pain, Joint Pain, Back Pain)
Pancreatic Neuroendocrine Tumors
Women's Health
Consumer Engagement
Consumer Insights
Executive Coach
Human Resources
Online Moderation
Peer Support
Product Development
Program Development
San Mateo, CA
available 40+ hours/week

A scientist by training, and entrepreneur by operation. A results-driven product and customer experience specialist, with a fiercely passionate focus on developing human-centered, engaging and meaningful solutions for the people who need them use them.

Draws on a rich background in product strategy, biology, research, and human and organization behavior, to lead teams that turn ideas into something valuable, tangible and meaningful.

Breast cancer survivor, life-long competitive athlete, and constant learner.

Specialty:
"Why-based" focused leadership, with the patience and curiosity to learn the important stuff and the urge to execute with discipline.

Carly

Chronic Illness Advocate

Carly
Anxiety
Chronic Illness
Crohn's Disease
Fibromyalgia
Pain (Chronic Pain, Joint Pain, Back Pain)
Blogger
Clinical Research
Consumer Engagement
Consumer Insights
Copywriter
Crowdsourcing
Editor
Baltimore, MD
available 10-20 hours/week

Translating my personal experience with 20 years of chronic illness to help others. Specializing in writing, strategy, product/process design, user experience, support group management, social media.

Daniel

Author, Columnist, Raconteur

Daniel
Heart Disease
Osteoporosis
Pain (Chronic Pain, Joint Pain, Back Pain)
Rheumatoid Arthritis
Blogger
Reporter
garden city, NY
available 10-20 hours/week

I have suffered with autoimmune illness, specifically rheumatoid arthritis, for over thirty years now. Since the age of nine, I have fought the illness and have both won and lost many battles. Joint replacements, deathly infections, and even a heart attack - I've seen and done it all. In this time, I have also written an autobiography, created a very successful blog, and I star in a short monthly podcast. I have become a valuable member of the online autoimmune and "spoon" community, and I am acquainted with not only patients but many doctors, professionals, and organizations as well. If you are looking for rheumatoid arthritis and/or autoimmune illness expertise, look no further.

Charlotta

Patient Expert Consultant, Founder and Advocate

Charlotta
Arrhythmia
Arthritis
Autoimmune Diseases
Bone Diseases
Cataract
Chronic Illness
Food Allergy
Heart Disease
Kidney Disease
Liver Diseases
Lupus
Pain (Chronic Pain, Joint Pain, Back Pain)
Skin Health/Diseases
Thyroid Diseases
4 More 4 Less
Consumer Engagement
Consumer Insights
Event Planner
Health Data Tracking
Peer Support
Social Media
Social Networking
Brooklyn, NY
available 40+ hours/week

I'm an Patient Advocate and a Patient Expert. I work with patients. I volunteer to help patients. I represent patients through advocacy work both locally and on Capital Hill. I'm the Founder and CEO of a patient organization. Most importantly I am a patient.

I represent patientsgive the patient perspective and ensure that the patient voice is taken into consideration during the entire product development process. I participate in patient required Consumer Reviews, Patient roundtables, advisory boards. I'm

Jessica

Health Activist, Writer, TEDx Speaker (www.jessicagimeno.com)

Jessica
Asthma
Autoimmune Diseases
Bipolar Disorder
Chronic Illness
Pain (Chronic Pain, Joint Pain, Back Pain)
Polycystic Ovarian Syndrome
Psoriasis
Strategy
Des Plaines, IL
available less than 10 hours/week

I write and speak about mental illness, chronic pain, and women's health issues. I launched my website, Fashionably ill ®, in 2012 and am a contributor to The Huffington Post and Ask a Bipolar. I frequently speak at conferences, universities, and other events - my 2015 TEDx Talk, "How to Get Stuff Done When You Are Depressed," recently surpassed 250,000 views. I have a book on the same subject as my TEDx Talk coming out. I used to work in mental health nonprofit. In my free time, I give makeovers to women with illnesses including cancer, MS, lupus, among others. My skills include: writing copy for campaigns (awareness or policy campaigns), story telling, and public speaking. NBC News did an extensive profile on my advocacy work. I live well with bipolar 2, myasthenia gravis, polycystic ovarian syndrome, asthma, and psoriasis. I graduated from Northwestern University with a B.S. in Communications & a Second Major in Political Science.

Lana

Freelance Health and Science Writer for Hire

Lana
Aging/Senior Health
Autoimmune Diseases
Cancer
Chronic Illness
Depression
Health Public Policy
Healthy Living
Nutrition
Pain (Chronic Pain, Joint Pain, Back Pain)
Parenting and Family Health
Women's Health
1 More 1 Less
Blogger
Clinical Research
Consumer Engagement
Consumer Insights
Copywriter
Crowdsourcing
Digital Marketing
Editor
Influencer Marketing
Peer Support
Proofreader
Public Relations
Reporter
Social Media
Social Networking
Strategy
6 More 6 Less
Indianapolis, IN
available 40+ hours/week

I am a freelance health and science writer for hire. I help businesses get results with quality content. I create compelling content that has a proven track record of driving online engagement.

I can help you reach the right audience, create better content, raise brand awareness and make more money. I can translate complex health and science topics into plain language.

I have a Bachelor of Science degree from Butler University and graduated summa cum laude with a double major in biology and chemistry. I have extensive online writing experience. I have published on Yahoo! News, CNN iReport, Lifescript.com, The Huffington Post and many other publications.

Marie

Patient, Fitness Industry Professional, and Educator

Marie
Anxiety
Arthritis
Autoimmune Diseases
Brain Health
Chronic Illness
Depression
Fitness
Healthy Living
Pain (Chronic Pain, Joint Pain, Back Pain)
Psoriatic Arthritis
Rheumatoid Arthritis
Skin Cancer
2 More 2 Less
Event Planner
Executive Coach
Other
Peer Support
Program Development
Philadelphia, PA
available 21-30 hours/week

In the year before being diagnosed with rheumatoid arthritis in 2010, I lived in such severe pain, I still cannot properly find words to describe it. I wanted to die. One morning in February of 2010, I awoke and I could not lift my body, arms, and I was pale and lifeless. After an emergency visit to my general doctor and blood work, I was contacted and told an emergency appointment was scheduled for me at a rheumatologist. Within 2 days, I was diagnosed with severe rheumatoid arthritis and it was suggested I apply for disability. Gradually adapting a positive mindset, clean eating, and a consistent progressive exercise program, I regained wellness and re-entered the fitness industry. I would like to help motivate others and help others understand what living with RA and chronic pain management is like.

Charis

Writer, Speaker; BeingCharis.com: "A voice for many"

Charis
Arthritis
Chronic Illness
Depression
Pain (Chronic Pain, Joint Pain, Back Pain)
Post-Traumatic Stress Disorder
Blogger
Consumer Engagement
Editor
Online Moderation
Peer Support
Proofreader
Social Media
Usability Testing
Sacramento, CA
available less than 10 hours/week

I am a speaker, writer, and advocate who uses many platforms to raise awareness for people with ankylosing spondylitis (AS). As a former college athlete and current professional model, I have a compelling story that is entertaining and emotional.
I have testified on bills in California State Health Committees, met with congressional representatives, spoken on panels, and given talks at both public and private events about living with AS. Additionally, I use my fashion image as a platform to drive awareness.
I am comfortable engaging with members of the media, pharmaceutical companies, and nonprofit organizations about all topics related to chronic disease, including lifestyle and disease management, legislation, education and awareness.
Given these experiences and more, I am equipped to offer a range of services including public speaking (able to travel), being a poster child for campaigns, writing columns or blog posts, participating in fashion shows or art photo shoots, and more.

MaDonna

Advocating Healthcare Consultants

MaDonna
Addiction
ADHD (Attention Deficit/Hyperactivity Disorder)
Aging/Senior Health
Alternative Medicine
Arthritis
Autoimmune Diseases
Birth Defects
Bone Diseases
Cancer
Caregiving
Children's Health
Diabetes
Healthy Living
Heart Disease
Heart Health
Infertility
Men's Health
Pain (Chronic Pain, Joint Pain, Back Pain)
Parenting and Family Health
Pregnancy
Rare Diseases
Sexual Health
Sleep and Sleep Disorders
Smoking Cessation
Thyroid Diseases
Women's Health
16 More 16 Less
Health Data Tracking
Program Development
Public Relations
Peewee Valley, KY
available 31-40 hours/week

I am a nurse and respiratory therapist. My daughter has a progressive heart disease and while being her healthcare support I have found myself being an advocate for many others. I am now doing this as a career. My mission is to be able to accompany the client through their illness or wellness to a meaningful experience.

Services include:
Office visit companion
Care plan review and advising
Locating specialist for needed care
Audit medical billing and/or intervention as requested
Coordinate home care to aid in keeping client grounded in their environment
Evaluating facility needs if home care is not feasible
Acquiring durable medical equipment when applicable

JP

#1 Best Selling Author, Blogger, and Invisible Illness Advocate

JP
Arthritis
Caregiving
Children's Health
Chronic Illness
Fibromyalgia
Migraine
Pain (Chronic Pain, Joint Pain, Back Pain)
Rheumatoid Arthritis
Women's Health
Blogger
Social Media
Social Networking
Mountain, WI
available less than 10 hours/week

As a person living with the migraine disease, cluster headaches, fibromyalgia, and rheumatoid arthritis I've learned the skills, confidence, and knowledge needed to play an active role as a patient advocate. Twice, I lobbied on Capitol Hill as a migraine and cluster headache patient during Headache On The Hill. I've also had the opportunity to appear on HuffPost Live and Al Jazerra, where I spoke openly about my neurological disorders. Besides being a full-time patient, invisible illness advocate, and contributing writer for the Today Parenting Team; I am a caregiver to a teenager living with abdominal and chronic migraine. Due to my son's unpredictable health, I even learned how to work efficiently with our school district to ensure my teen has the appropriate academic accommodations.

Jodi

Putting the HIP back into hip replacements

Jodi
Arthritis
Pain (Chronic Pain, Joint Pain, Back Pain)
Thyroid Diseases
Women's Health
Blogger
Digital Marketing
Social Media
Social Networking
Santa Monica, CA
available as required

Event Speaker, Consultant and Patient Advocate
My mission as a patient advocate is to be proactive, by educating and empowering other patients to best utilize the vast amount of tools right at their fingertips, and to build communities that educate and inspire. Understanding that everyone is a patient, being increasingly aware of healthcare advancements, the changing medical landscape and technology developments…I encourage collaboration, education and having the voice of the patient loudly be heard.

ZOANN

Patient Information Specialist

ZOANN
Anxiety
Arthritis
Asthma
Carpal Tunnel Syndrome
Cataract
Chronic Illness
Cushing's Disease
Depression
Disabilities
Fibromyalgia
Glaucoma
Obesity
Oral Health
Pain (Chronic Pain, Joint Pain, Back Pain)
Post-Traumatic Stress Disorder
Rare Diseases
Restless Legs Syndrome
Seasonal Allergy
Sleep and Sleep Disorders
9 More 9 Less
Project Management
EVERETT, WA
available less than 10 hours/week

My expertise is in health research, specifically in giving specific medical research assistance to patients with new diagnoses. I have multiple chronic health issues including (but not limited to) asthma, Cushing’s Syndrome, peripheral neuropathy, and fibromyalgia. Though I have a Master’s degree in public health, I often find it hard to convince medical personnel that I am an expert in and thoroughly understand my medical conditions. Meeting health challenges with humor is very important to me; I have found that laughter is indeed the best medicine.


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