I'm an Patient Advocate and a Patient Expert. I work with patients. I volunteer to help patients. I represent patients through advocacy work both locally and on Capital Hill. I'm the Founder and CEO of a patient organization. Most importantly I am a patient.
I represent patientsgive the patient perspective and ensure that the patient voice is taken into consideration during the entire product development process. I participate in patient required Consumer Reviews, Patient roundtables, advisory boards. I'm
I am a health care consultant with expertise in kidney disease awareness, prevention, support and advocacy, patient engagement, and patient-centered care.
Additional details can be found on my LinkedIn page https://www.linkedin.com/in/dave-white-80014712/
I am available to serve as a
Patient Subject Matter Expert
Patient Project Advisor / Project Associate
Speaker / Presenter / Writer
I am a professional speaker and author. I am frequently requested by medical/nursing associations to share my unique story to help medical professionals better understand the patient's perspective and techniques that can be best utilized to connect with a patient. Also, this summer I release a podcast entitled "People You Should Know". The vast majority of episodes will focus on a guest who is currently battling an illness or a patient who has overcome great odds. The podcast aims to not only raise awareness for unique research opportunities, but also to serve as an outlet for patient advocacy.
How I Am Interested in Collaborating with Companies:
-Presenting keynote presentations at internal or external events
-Endorsements on the "People You Should Know" podcast
-Patient advocacy panels
-Other creative collaborations
I have been involved in the rare disease space for five years and am the former Executive Director of the Atypical HUS Foundation. I have built relationships with multiple biotech leaders throughout the rare disease space and engaged a community to be proactive and take part in their disease and drug discovery. As a Global Genes Foundation Alliance Member and NORD Foundation Member, I have attended conferences put on by both several times and been involved in speaking, multiple panels and projects. I have built relationships with numerous other rare disease foundation leaders. As Executive Director for the Atypical HUS Foundation, I created a patient registry, built partnerships with labs and biotechs, oversaw budgets and day to day activities, organized and hosted booths at ASN and ASH, established a medical advisory board and planned several national family conferences.
As an advocate I have spoken across the country at multiple rare disease events and participated in panels, lobbied on behalf of rare disease on Capitol Hill, and helped create Utah Rare, a coalition of rare disease stakeholders and host of annual rare disease symposiums. I have a strong pulse on the needs of the rare disease community, how to incorporate the patient perspective and how to build relationships with industry leaders. My background before rare disease was as an Editor and Copywriter. I have excellent communication skills, can easily interact with others and create long-standing relationships.
Always in Hope,
Upcoming Speaking Engagements
Utah Rare Disease Symposium - Salt Lake City, UT
CBI 19th Patient Assistance & Access Program- Baltimore, MD
Complement-based Drug Development Summit Europe - London
World Orphan Drug Congress- Washington, D.C.
Entrepreneur and Senior Executive focused on delivering innovative solutions to the healthcare market. Founder of CircleLink Health, and HCCP which leveraged services and technology to improve care delivery for providers. Led multi-million dollar global initiatives with domain expertise in healthcare, care management, practice management, healthcare information technology and reimbursement services with experience transferring cross-industry best practices. MBA in banking, finance and investments with early career in financial analysis provides business focus to IT healthcare career. Twenty years’ executive leadership and management consulting experience, including working with large and small providers, payers, pharmaceuticals, ACOs and healthcare technology companies.
I have spent over 10 years as a Federal government contractor in Washington, D.C with Booz Allen Hamilton. Before that, I was a Legislative Analyst for Honda for four and a half years, and worked at a prominent polling firm and as a press/research intern at Common Cause, a non-profit organization.
My most recent role is Founder of The Patient Advocate's Chronicle, a patient advocacy blog. Content is based on nearly 35 years as a patient (meningitis, paralysis, Type 1 diabetes, kidney disease, asthma, anemia, and retinopathy to name the major conditions), a parent who was in-house counsel to a Fortune 500 insurance company's group life and health portfolio, a network of a dozen or more providers, and a specialty in legislative in policy/legislative analysis and strategy. I aim to help patients like me become their own advocates.