Lisa Cypers Kamen, M.A. is an applied positive psychology coach, author,
documentary filmmaker, and radio show host specializing in sustainable wellbeing and lifestyle management. Additionally, she is an experienced spokesperson and brand ambassador for corporations including The Florida Department of Citrus and Katie K Activewear.
Lisa’s global consulting practice focuses on mission-driven addiction and trauma recovery supporting clients in balancing their minds, bodies and emotions resulting in greater overall wellbeing and the transformation of Post-Traumatic Stress (PTS) into Post-Traumatic Growth (PTG). Through her work, clients are empowered and supported to achieve increased self-mastery, optimal functioning and to reclaim their lives.
Lisa is a 'reformed clinically depressed person' who leads by example the virtues of a balanced mind, body, spirit, and soul. She is a health advocate for depression/mental health, addiction, healthy aging, optimal lifestyle, and more.
Breck Gamel, is a patient advocate and blogger at http://initforbennett.com. She is a mother of three young children, including Bennett, her seven year old with cystic fibrosis. Breck advocates for patients alongside the Cystic Fibrosis Foundation. Breck is leader within the Cystic Fibrosis Learning Network and co-chairs the Cystic Fibrosis Foundation's Patient and Family Research Advisory Council.
I offer B2B companies in the healthcare space content that is well-researched, audience-focused, and compelling. My goal is to help you grow your business using effective content marketing strategies. As a nurse with clinical, sales, and marketing experience, I specialize in product and technology solutions designed to improve the delivery of healthcare.
Senior Transformation Specialist and Social Firebrand, Stotsky has represented companies including GE Healthcare, e-MDs, digiChart, BCBST and HMS/MEDHOST. She received GE Healthcare's CIS Award, led EMR adoption efforts, directed rollout of the 1st HIE in the state of TN, and was a member of HIMSS Standards and Interoperability Workgroup for Stage 1 Meaningful Use.
Stotsky is consistently named as one of “20 Health IT Influencers to Watch” by Healthcare IT Leaders. Most know her as @EMRAnswers, where she has been a social firebrand since 2009. A Social Ambassador at HIMSS global conference for the last four years, she is a frequent contributor to media pubs, & discussions as a respected HC strategist. Over 19,500 targeted followers,
An outspoken advocate, and caregiver, she speaks about Patient Safety and Care Coordination, She walks as patient #117 in The Walking Gallery of Healthcare. She Is on the HC Advisory Council at Fogo Data Centers, & current Board member S4PM.
I have worked with many different types of companies doing professional consulting work using my influence as an advocate to guide companies on how best to construct their information/product towards a specific patient population. I am a very seasonsed presenter on patient related and scientific topics as well. I am available for consulting, speaking, advisory boards. I also am a Graduate student in Biomedical Research and I have expertise in health & medical writing and scientific consulting. I have written for health and science web sites about many different topics including Inflammatory Bowel Disease, Clinical Trials and Scientific Research.. I have consulted on advisory boards as a scientific consultant as well using my knowledge of science and patient advocacy to help companies.
An action catalyst empowering people traveling together toward best health (patients, caregivers, and clinicians) Danny wears many hats in healthcare: pt with MS, caregiver, nurse, informaticist and QI leader. His current work focuses on communication at transitions of care, person-centered health planning, informed decision-making, and technology supporting solutions created by and for people at the center. He advises entrepreneurs about strategy, infrastructure, and user-friendly workflows and technology. He teaches and coaches front-line managers. He serves as a patient/caregiver stakeholder representative on Technical Expert Panels for Shared Decision Support and PCORnet and sits on the Steering Committee for the AHRQ-supported Clinical Decision Support Learning Network. He reviews PCORI research funding applications and serves as co-chair of PCORI’s Communication and Dissemination Advisory Panel. He blogs weekly at www.health-hats.com.
In the early 90s I went from my healthcare journalism background to both print and online marketing. I have a special expertise in reaching America's aging population, their families and caregivers. For 10 years I've had a Boomers & Beyond section on my website. I write and plan for this growing arena working with Fortune 500, non-profits, hospitals and many others....helping them win awards, gain recognition. You'll see much more as you continue.
I have suffered with autoimmune illness, specifically rheumatoid arthritis, for over thirty years now. Since the age of nine, I have fought the illness and have both won and lost many battles. Joint replacements, deathly infections, and even a heart attack - I've seen and done it all. In this time, I have also written an autobiography, created a very successful blog, and I star in a short monthly podcast. I have become a valuable member of the online autoimmune and "spoon" community, and I am acquainted with not only patients but many doctors, professionals, and organizations as well. If you are looking for rheumatoid arthritis and/or autoimmune illness expertise, look no further.
I am a freelance health and science writer for hire. I help businesses get results with quality content. I create compelling content that has a proven track record of driving online engagement.
I can help you reach the right audience, create better content, raise brand awareness and make more money. I can translate complex health and science topics into plain language.
I have a Bachelor of Science degree from Butler University and graduated summa cum laude with a double major in biology and chemistry. I have extensive online writing experience. I have published on Yahoo! News, CNN iReport, Lifescript.com, The Huffington Post and many other publications.
I am a freelance journalist specializing in researching and writing about health related issues. My interest in this field began when I was diagnosed with a little known chronic blood disorder (ITP) and had to do the research to find out exactly what I had. I am also a full-time caregiver for my disabled husband and have interviewed health professionals and other caregivers to succeed at this task.
I have used my skill at searching out answers to write articles for newspapers, blogs, websites, etc on various health related topics.
Sarah Hackley is most known for her work as a patient advocate spreading awareness of life with chronic migraine. She has been featured on numerous health blogs and is a regular contributor for Migraine.com, where she utilizes her personal experiences and educational background in neuropsychology to educate others on issues affecting the migraine community. She also is the author of two self-empowerment books, "Finding Happiness with Migraines: A Do It Yourself Guide" and "Preparing to Fly: Financial Freedom from Domestic Abuse." She also speaks, writes, and coaches patients on how to live fully and joyfully with chronic illness. Additional information can be found on her website: www.sarahhackley.com.
I am a volunteer mentor and coach for the National Psoriasis Foundation, providing guidance for those who are newly diagnosed. I have lived with psoriasis for more than 15 years. I started my blog, Homegrown Houston, as a platform for fashion, marriage and motherhood while offering a style resource for those living with psoriasis. I live by the motto, “I don't let psoriasis define who I am. I define who I am and how I live my life.”
Developing and managing online communities and handling issues, creative program development for specific needs, establishing and running a successful non-profit online, creating a "brand" for an organization, awareness months/weeks/days, utilizing social media, engaging patients, volunteer management. I have a number of conditions, a few leading to my need for a five organ transplant (full GI tract) in 2006. I founded G-PACT at the age of 23, 16 years ago. Since then we have grown to become the leading international non-profit for the conditions we cover. I was an art major with no business training. My ability to be creative, think outside the box, and recognize unique needs patients have and find ways to address them have all contributed to our strength. I express myself well through writing and art. I think patients need leaders who truly understand them and don't just hear facts. Patients want a cure, but they also want people who care, have humor, and are down to earth.
I am a nurse and respiratory therapist. My daughter has a progressive heart disease and while being her healthcare support I have found myself being an advocate for many others. I am now doing this as a career. My mission is to be able to accompany the client through their illness or wellness to a meaningful experience.
Office visit companion
Care plan review and advising
Locating specialist for needed care
Audit medical billing and/or intervention as requested
Coordinate home care to aid in keeping client grounded in their environment
Evaluating facility needs if home care is not feasible
Acquiring durable medical equipment when applicable
Ken Taylor has be a caregiver since 2003 for his wife who has multiple chronic pain diseases. Ken is a former licensed insurance agent. Ken worked in the banking industry for 12 years at MCM, Bank of America, Wells Fargo, and Neiheisel Law Firm. Currently, Ken is a broadcast engineer for Dish Network. Ken also serves as the VP of the International Pain Foundation, is on the board of advisers for Pain Pathways Magazine, is the graphics editor for iPain Living Magazine. Ken serves on several pain advocacy coalitions including the Consumer Pain Advocacy Task Force and State Pain Policy Advocacy Network. He is an Amazon best selling author, motivational speaker, and Reality TV Personality sharing his story of caregiving and helping others better understand the healthcare system.
I have worked with, and have been, a health consumer for more than 20 years. My expertise is in strategically creating tech projects for communities united by a health issue, interest or concern. I can help with gathering communities of users and early adopters to product develop, test and market/distribute.
Bonnie and her team consults with entrepreneurs and startups developing products and services to improve all aspects of autoimmune care. Our mission is to exploit the convergence of digital tech with science and patient activism to publicize the invisible epidemic, reimagine research and empower patient communities, to advance towards individualized autoimmune diagnosis, treatment, coaching and care coordination. Our vision is to help patients progress from managing disease to living their healthiest selves and preventing disease in their children and grandchildren. Over the past two years, Bonnie has interviewed 200+ start-up companies and presented at or attended 50+ digital health meetings, speaking on behalf of the 50M+ autoimmune patients around the world. With a unique body of experience as a healthcare provider, researcher, analyst and patient, Bonnie can help you bridge the autoimmune abyss.
My passion is to write, research and share information to empower others in the multiple sclerosis community. I write for MultipleSclerosis.net, MultipleSclerosis News Today, and my personal blog InsideMyStory.com. My interests in MS research led to my role as a merit reviewer with the Patient Centered Outcome Reach Institute, and the DoD. I am associated with the Accelerated Cure Project for MS and the PCORI funded Patient Powered Research Network (PPRN) and I serve as the Lead Patient Representative and Chair of the iConquerMS™ Governing Board.
I take pride in disseminating credible information to my communities whether it be in small in-person or one-on-one conversations, online within patient forums, through Facebook groups, or at national conference presentations. Knowledge is meant to be shared and I am fortunate to be afforded the opportunity to do so. I remain open to new ideas and opportunities for advocacy work and patient representation in all areas of the MS community
Senior Digital Director with 7+ years of agency experience in the pharma/healthcare space, and 20+ years of project management and quality assurance experience built on a strong engineering background. Successfully built, trained, and managed digital teams within the multi-disciplinary agency setting, delivering hundreds of projects on a multitude of digital platforms. Focused on refining the digital development process to implement organizational change, and measurably reduce overall costs and process lead times. Able to effectively communicate and present complex technology to audiences of all levels including peers, executives, and clients.
My aspirations are to continue crafting my passions for online marketing, leading others, fundraising, and building and strengthening interpersonal relationships. I have experience with event planning, public speaking, digital and print marketing, social media marketing, social teaching/training, and fundraising.
I am available for opportunities in organizing an awareness/education campaign, developing written content, social media including online moderation, public speaking, and peer support programs. I'm looking forward to working with you!