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Aging-Peds-Parenting for RedCrow Fracture

Breck

Cystic Fibrosis Advocate

Breck
Caregiving
Children's Health
Cystic Fibrosis
Mental Health
Parenting and Family Health
Rare Diseases
Blogger
Peer Support
Reporter
Social Media
Social Networking
Hewitt, TX
available 10-20 hours/week

Breck Gamel, is a patient advocate and blogger at http://initforbennett.com. She is a mother of three young children, including Bennett, her seven year old with cystic fibrosis. Breck advocates for patients alongside the Cystic Fibrosis Foundation. Breck is leader within the Cystic Fibrosis Learning Network and co-chairs the Cystic Fibrosis Foundation's Patient and Family Research Advisory Council.

Linda

Social Firebrand, Patient Advocate, Healthcare Transformation Specialist

Linda
Aging/Senior Health
Anxiety
Caregiving
CFS (Chronic Fatigue Syndrome)
Children's Health
COPD (Chronic Obstructive Pulmonary Disease)
Dementia
Thyroid Cancer
Blogger
Business Development
Clinical Research
Consumer Insights
Digital Marketing
Influencer Marketing
Marketing
Product Development
Social Media
Usability Testing
UX/User Design
1 More 1 Less
Nashville, TN
available 10-20 hours/week

Senior Transformation Specialist and Social Firebrand, Stotsky has represented companies including GE Healthcare, e-MDs, digiChart, BCBST and HMS/MEDHOST. She received GE Healthcare's CIS Award for outstanding achievement in Sales directed the the rollout of the 1st HIE in the state of Tennessee, and was a working member of HIMSS Standards and Interoperability Workgroup for Stage 1 Meaningful Use.

Stotsky is consistently named as one of “20 Health IT Influencers to Watch” by Healthcare IT Leaders. Most know her as @EMRAnswers, where she has been a social firebrand since 2009. A Social Ambassador at HIMSS national conference for the last three years, she is a frequent contributor to HealthcareIT News and,HIMSS Media,,

An outspoken advocate, and caregiver, she speaks about Patient Safety and Care Coordination, She walks as patient #117 in The Walking Gallery of Healthcare. She was recently named to the Healthcare Advisory Council at Fogo Data Centers. Volunteer e-Patient at s4PM.

Lisa

Founder of Harvesting Happiness & Creator of Harvesting Happiness Talk Radio ~ Positive Lifestyle Management

Lisa
Aging/Senior Health
Alternative Medicine
Brain Health
Caregiving
Depression
Healthy Living
Menopause
Mental Health
Parenting and Family Health
Sexual Health
Thyroid Diseases
Women's Health
2 More 2 Less
Blogger
Business Development
Executive Coach
Influencer Marketing
Marketing
Other
Program Development
Reporter
Social Media
Social Networking
Strategy
1 More 1 Less
Los Angeles, CA
available as required

Lisa Cypers Kamen, M.A. is an applied positive psychology coach, author,
documentary filmmaker, and radio show host specializing in sustainable wellbeing and lifestyle management. Additionally, she is an experienced spokesperson and brand ambassador for corporations including The Florida Department of Citrus and Katie K Activewear.

Lisa’s global consulting practice focuses on mission-driven addiction and trauma recovery supporting clients in balancing their minds, bodies and emotions resulting in greater overall wellbeing and the transformation of Post-Traumatic Stress (PTS) into Post-Traumatic Growth (PTG). Through her work, clients are empowered and supported to achieve increased self-mastery, optimal functioning and to reclaim their lives.

Lisa is a 'reformed clinically depressed person' who leads by example the virtues of a balanced mind, body, spirit, and soul. She is a health advocate for depression/mental health, addiction, healthy aging, optimal lifestyle, and more.

Daniel

Author, Columnist, Raconteur

Daniel
Heart Disease
Osteoporosis
Pain (Chronic Pain, Joint Pain, Back Pain)
Rheumatoid Arthritis
Blogger
Reporter
garden city, NY
available 10-20 hours/week

I have suffered with autoimmune illness, specifically rheumatoid arthritis, for over thirty years now. Since the age of nine, I have fought the illness and have both won and lost many battles. Joint replacements, deathly infections, and even a heart attack - I've seen and done it all. In this time, I have also written an autobiography, created a very successful blog, and I star in a short monthly podcast. I have become a valuable member of the online autoimmune and "spoon" community, and I am acquainted with not only patients but many doctors, professionals, and organizations as well. If you are looking for rheumatoid arthritis and/or autoimmune illness expertise, look no further.

Sarah

Author, Health Writer, and Patient Advocate for Migraine and Mental Health

Sarah
Alternative Medicine
Anxiety
Bipolar Disorder
Birth Control
Caregiving
Child Behavior Disorders
Children's Health
Chronic Illness
Depression
Disabilities
Epilepsy
Healthy Living
Learning Disorders
Mental Health
Migraine
Pain (Chronic Pain, Joint Pain, Back Pain)
Parenting and Family Health
Post-Traumatic Stress Disorder
Pregnancy
Seasonal Allergy
Seizures
Sexual Health
Skin Health/Diseases
Women's Health
14 More 14 Less
Blogger
Business Development
Consumer Engagement
Copywriter
Digital Marketing
Editor
Finance
Human Resources
Influencer Marketing
Marketing
Online Moderation
Operations
Project Management
Proofreader
Reporter
Social Media
6 More 6 Less
Dripping Springs, TX
available as required

Sarah Hackley is most known for her work as a patient advocate spreading awareness of life with chronic migraine. She has been featured on numerous health blogs and is a regular contributor for Migraine.com, where she utilizes her personal experiences and educational background in neuropsychology to educate others on issues affecting the migraine community. She also is the author of two self-empowerment books, "Finding Happiness with Migraines: A Do It Yourself Guide" and "Preparing to Fly: Financial Freedom from Domestic Abuse." She also speaks, writes, and coaches patients on how to live fully and joyfully with chronic illness. Additional information can be found on her website: www.sarahhackley.com.

Aaron

Graduate Student in Biomedical Research & Patient Advocate

Aaron
Crohn's Disease
IBD (Inflammatory Bowel Disease)
Osteoporosis
Blogger
Clinical Research
Editor
Other
Product & App Testing
Proofreader
Social Media
Social Networking
Jackson, MS
available 21-30 hours/week

I have worked with many different types of companies doing professional consulting work using my influence as an advocate to guide companies on how best to construct their information/product towards a specific patient population. I am a very seasonsed presenter on patient related and scientific topics as well. I am available for consulting, speaking, advisory boards. I also am a Graduate student in Biomedical Research and I have expertise in health & medical writing and scientific consulting. I have written for health and science web sites about many different topics including Inflammatory Bowel Disease, Clinical Trials and Scientific Research.. I have consulted on advisory boards as a scientific consultant as well using my knowledge of science and patient advocacy to help companies.

Danny

Founder Health Hats

Danny
Addiction
Alternative Medicine
Autoimmune Diseases
Children's Health
Developmental Disabilities
Health Public Policy
Men's Health
Mental Health
Multiple Sclerosis
Pain (Chronic Pain, Joint Pain, Back Pain)
Blogger
Business Development
Clinical Research
Consumer Engagement
Editor
Executive Coach
Mobile App Development
Peer Support
Project Management
Strategy
Usability Testing
1 More 1 Less
Arlington, MA
available 10-20 hours/week

An action catalyst empowering people traveling together toward best health (patients, caregivers, and clinicians) Danny wears many hats in healthcare: pt with MS, caregiver, nurse, informaticist and QI leader. His current work focuses on communication at transitions of care, person-centered health planning, informed decision-making, and technology supporting solutions created by and for people at the center. He advises entrepreneurs about strategy, infrastructure, and user-friendly workflows and technology. He teaches and coaches front-line managers. He serves as a patient/caregiver stakeholder representative on Technical Expert Panels for Shared Decision Support and PCORnet and sits on the Steering Committee for the AHRQ-supported Clinical Decision Support Learning Network. He reviews PCORI research funding applications and serves as co-chair of PCORI’s Communication and Dissemination Advisory Panel. He blogs weekly at www.health-hats.com.

Wendy

20+ Years Leader in Patient Ed

Wendy
Aging/Senior Health
Alzheimer's Disease
Aneurysms
Caregiving
Dementia
Diabetes - Type 2
Epilepsy
Fitness
Glaucoma
Gout
Healthy Living
Melanoma
Men's Health
Menopause
Mental Health
Obesity
Osteoporosis
Sleep and Sleep Disorders
Stroke
Women's Health
10 More 10 Less
Blogger
Business Development
Consumer Engagement
Copywriter
Digital Marketing
Editor
Marketing
Online Moderation
Program Development
Public Relations
Reporter
Social Media
Strategy
3 More 3 Less
Baltimore, MD
available as required

In the early 90s I went from my healthcare journalism background to both print and online marketing. I have a special expertise in reaching America's aging population, their families and caregivers. For 10 years I've had a Boomers & Beyond section on my website. I write and plan for this growing arena working with Fortune 500, non-profits, hospitals and many others....helping them win awards, gain recognition. You'll see much more as you continue.

Lana

Freelance Health and Science Writer for Hire

Lana
Aging/Senior Health
Autoimmune Diseases
Cancer
Chronic Illness
Depression
Health Public Policy
Healthy Living
Nutrition
Pain (Chronic Pain, Joint Pain, Back Pain)
Parenting and Family Health
Women's Health
1 More 1 Less
Blogger
Clinical Research
Consumer Engagement
Consumer Insights
Copywriter
Crowdsourcing
Digital Marketing
Editor
Influencer Marketing
Peer Support
Proofreader
Public Relations
Reporter
Social Media
Social Networking
Strategy
6 More 6 Less
Indianapolis, IN
available 40+ hours/week

I am a freelance health and science writer for hire. I help businesses get results with quality content. I create compelling content that has a proven track record of driving online engagement.

I can help you reach the right audience, create better content, raise brand awareness and make more money. I can translate complex health and science topics into plain language.

I have a Bachelor of Science degree from Butler University and graduated summa cum laude with a double major in biology and chemistry. I have extensive online writing experience. I have published on Yahoo! News, CNN iReport, Lifescript.com, The Huffington Post and many other publications.

Renee

Advocate, Mentor and Resource Specialist With a Heart

Renee
Aging/Senior Health
Anxiety
Arthritis
Caregiving
Chronic Illness
COPD (Chronic Obstructive Pulmonary Disease)
Dystonia
Fibromyalgia
Heart Disease
Mental Health
Neuromuscular Disorders
Stroke
2 More 2 Less
Event Planner
Health Data Tracking
Peer Support
Social Networking
Ocala , FL
available less than 10 hours/week

I am educated in Health Information Management with a minor in Human Services. My specialization is in mental health, but I also work with disabled students My current position involves mentoring and intake under the direction of a Licensed Mental Health Counselor. I have experience with movement disorders, mental health for first responders, FERPA and HIPAA. I also am a certified coder/biller. My main focus is to direct the individual to the proper resources which are available.

Karen

Karen Ryan, NNCP, RHN

Karen
ADHD (Attention Deficit/Hyperactivity Disorder)
Anxiety
Bipolar Disorder
Child Behavior Disorders
Children's Health
Depression
Mental Health
Nutrition
Clinical Research
Consumer Engagement
Editor
Other
Peer Support
Social Media
Vancouver, 02
available 10-20 hours/week

Karen Ryan is a seasoned nutritionist as well as an ADHD and mental wellness practitioner for school-aged children, teens and adults. She is a firm believer in the correlation between food and mood and that a clean diet is the best medicine for sound health of body and mind. Guided by her extensive education, research, and experience in clinical and holistic nutrition, Karen dedicates her focus to helping all people, especially children and teens with ADHD, eat healthier and live happier. Karen also works with youth and adults who struggle in areas such as anxiety, bipolar disorder and depression.

Karen believes in empowering her clients through education and informed choices and works closely with each and every one of them to ensure the development of a treatment plan that can be easily followed to ensure success.

Karen is also the founder of The ADDvocates and vancouverADHD as well as the author of “ADHD is Not a Four Letter Word.

Kendra

Executive Director & Founder, EDS Wellness, Certified Health Education Specialist (C.H.E.S.), RYT 200

Kendra
Acne
ADHD (Attention Deficit/Hyperactivity Disorder)
Alternative Medicine
Anxiety
Arthritis
Atrial Fibrillation
Autoimmune Diseases
Birth Control
Brain Health
CFS (Chronic Fatigue Syndrome)
Children's Health
Chronic Illness
Clinical Trials
Complex Regional Pain Syndrome
Ehlers Danlos Syndrome
Endometriosis
Eye Health/Diseases
Fibromyalgia
Fitness
Gastrointestinal Diseases
Health Public Policy
Healthy Living
Heart Health
Irritable Bowel Syndrome
Learning Disorders
Mental Health
Pain (Chronic Pain, Joint Pain, Back Pain)
Parenting and Family Health
Plastic Surgery and Reconstruction
Post-Traumatic Stress Disorder
Postural Orthostatic Tachycardia Syndrome
Seasonal Allergy
Sexual Health
Women's Health
24 More 24 Less
Blogger
Business Development
Editor
Marketing
Program Development
Project Management
Social Media
Strategy
Bethesda, MD
available 21-30 hours/week

Kendra holds a BS in Public Health from the University of Maryland. She has extensive knowledge on the complexities of living with chronic medical conditions & lifestyle management strategies from working in pharmaceutical & medical sales, through the development and implementation of various health education programs, through medical writing & publishing. Kendra has been active in the EDS community for over ten years. It was through Kendra’s life, and professional experiences, that she founded EDS Wellness, including Wellapalooza Integrative Wellness Conferences (& retreats!), Moving Naturally w/ Hypermobility Seminars, “Just 5 Minutes,” "Invisible Strength," & the EDS Ride for a Cause.

Kendra is the Executive Director & Founder, EDS Wellness, Inc. She also started 2 other small businesses -- one in medical sales and one in book publishing. She is a Certified Health Education Specialist (C.H.E.S.), a 200hr Certified Yoga Instructor and Restorative Exercise Specialist.

Deb

Consumer Engagement, Health Strategist, Landscape Analysis, User Centered Tech Design

Deb
Aging/Senior Health
Birth Control
HIV/AIDS
Mental Health
Parenting and Family Health
Sexual Health
Women's Health
Blogger
Consumer Engagement
Consumer Insights
Copywriter
Digital Marketing
Online Moderation
Product & App Testing
Social Media
Oakland, CA
available 31-40 hours/week

I have worked with, and have been, a health consumer for more than 20 years. My expertise is in strategically creating tech projects for communities united by a health issue, interest or concern. I can help with gathering communities of users and early adopters to product develop, test and market/distribute.

Randi

Co-founder, Help Me Health

Randi
Aging/Senior Health
Crohn's Disease
IBD (Inflammatory Bowel Disease)
Business Development
Consumer Engagement
Consumer Insights
Human Resources
Strategy
available as required

Engaging healthcare employees in re-imagining the patient experience.

Help Me Health transforms how healthcare thinks about and delivers patient experiences to achieve better outcomes and a better bottom line.

* Impactful and memorable keynote speeches, customized to key themes
* Buzz workshops for conferences designed for attendee interaction
* Training sessions for all employees to create commitment not only compliance with redesigning processes for improved patient experience

Holly

President and CEO Pink Fortitude, LLC

Holly
Addison's Disease
ADHD (Attention Deficit/Hyperactivity Disorder)
Autoimmune Diseases
Breast Cancer
Cancer
CFS (Chronic Fatigue Syndrome)
Chronic Illness
Food Allergy
Healthy Living
Nutrition
Parenting and Family Health
Thyroid Diseases
Women's Health
3 More 3 Less
Blogger
Business Development
Influencer Marketing
Project Management
Social Media
Social Networking
Strategy
Alexandria, VA
available as required

Holly Bertone, CNHP, PMP, is an author, blogger, and healthy living advocate. She is the President and CEO of Pink Fortitude, LLC. Holly is a breast cancer and Hashimoto’s survivor and turned these two significant health challenges into an enterprise of healthy living. She inspires others with her quick wit and brutal honesty.

Tracy

Rare Disease EPatient Experienced in Managed Healthcare, Rare Diseases and Clinical Research Advisor.

Tracy
Acne
Acromegaly
Addison's Disease
ADHD (Attention Deficit/Hyperactivity Disorder)
Aging/Senior Health
ALS (Amyotrophic Lateral Sclerosis)
Alternative Medicine
Alzheimer's Disease
Anemia
Aneurysms
Aphasia
Arrhythmia
Arthritis
Asthma
Atrial Fibrillation
Autism Spectrum Disorders
Autoimmune Diseases
Beta Thallasemia
Birth Defects
Blood Disorders
Bone Diseases
Brain Health
Breast Cancer
Cancer
Carcinoid Syndrome
Caregiving
Celiac Disease
Cerebral Palsy
Chronic Illness
Clinical Trials
Colorectal (Colon) Cancer
Complex Regional Pain Syndrome
COPD (Chronic Obstructive Pulmonary Disease)
Crohn's Disease
Cushing's Disease
Cystic Fibrosis
Dementia
Diabetes
Disabilities
Duchenne Muscular Dystrophy
Dystonia
Ehlers Danlos Syndrome
Epilepsy
Eye Health/Diseases
Fibromyalgia
Fitness
Food Allergy
Gastrointestinal Diseases
Gaucher's Disease
GIST
Health Public Policy
Healthy Living
Hearing Disorders and Deafness
Heart Disease
Heart Health
Hemophilia
Hepatitis
HIV/AIDS
Irritable Bowel Syndrome
Liver Diseases
Lupus
Lyme Disease
Migraine
Multiple Sclerosis
Muscular Dystrophy
Myelo Dysplastic Syndrome
Neuromuscular Disorders
Nutrition
Oral Health
Organ Transplantation
Osteoporosis
Pain (Chronic Pain, Joint Pain, Back Pain)
Pancreatic Neuroendocrine Tumors
Parenting and Family Health
Parkinson's Disease
Polycystic Ovarian Syndrome
Post-Traumatic Stress Disorder
Postural Orthostatic Tachycardia Syndrome
Primary Biliary Cholangitis
Psoriasis
Psoriatic Arthritis
Pulmonary Fibrosis
Rare Diseases
Reflex Sympathetic Dystrophy
Restless Legs Syndrome
Rheumatoid Arthritis
Seizures
Severe Allergy
Sexual Health
Sickle Cell Disease
Sjogren's Syndrome
Skin Health/Diseases
Sleep and Sleep Disorders
Stroke
Thyroid Diseases
Tuberous Sclerosis Complex
Ulcerative Colitis
Wegener's Granulomatosis
Women's Health
89 More 89 Less
Blogger
Business Development
Clinical Research
Consumer Engagement
Consumer Insights
Health Data Tracking
Human Resources
Mobile App Development
Online Moderation
Peer Support
Program Development
Project Management
Social Media
Social Networking
Strategy
Usability Testing
6 More 6 Less
Chesterfield, VA
available 31-40 hours/week

I became ill in 2001 and over 4 years saw 51 specialists that could not diagnose my illness. I was handed a Medline study from Christopher Reeves' Neurologist and was told to find the surgeon that performed that study. It lead me to Pittsburgh & Dr Peter Jannetta, Godfather of Modern Neurosurgery. He saved me from becoming a quadriplegic & worse. I never imagined I would develop multiple Rare Diseases at 31 yrs old, I had to learn to live a new limited life and the only way to start was with knowledge, then with helping others when I was well enough, and I have never stopped. I am a Leader in the Rare Disease Community, a Healthcare Activist, and Lobbyist. I have been fortunate to work with 1000's of Rare Disease Patients, Health and Disease Organizations and Foundations, Healthcare Stakeholders, and learned from them all. Now I try and improve Healthcare one day and project at a time.


Jim

Digital Director

Jim
Fitness
Healthy Living
Men's Health
Nutrition
Other
Parenting and Family Health
Digital Marketing
Mobile App Design
Mobile App Development
Project Management
Social Media
Usability Testing
UX/User Design
Mount Prospect, IL
available as required

Senior Digital Director with 7+ years of agency experience in the pharma/healthcare space, and 20+ years of project management and quality assurance experience built on a strong engineering background. Successfully built, trained, and managed digital teams within the multi-disciplinary agency setting, delivering hundreds of projects on a multitude of digital platforms. Focused on refining the digital development process to implement organizational change, and measurably reduce overall costs and process lead times. Able to effectively communicate and present complex technology to audiences of all levels including peers, executives, and clients.

Cindy

Strategic Partnerships Lead, 2020 Mom-National Coalition of Maternal Mental Health

Cindy
Acne
Alternative Medicine
Anxiety
Birth Control
Caregiving
Children's Health
Cholesterol
Depression
Eating Disorders
Eye Health/Diseases
Gastrointestinal Diseases
Mental Health
Parenting and Family Health
Post-Traumatic Stress Disorder
Pregnancy
Seasonal Allergy
Sexual Health
Skin Health/Diseases
Sleep and Sleep Disorders
Thyroid Diseases
Women's Health
11 More 11 Less
Consumer Engagement
Consumer Insights
Marketing
Online Moderation
Peer Support
Program Development
Public Relations
Social Media
Social Networking
Strategy
Phoenix, AZ
available as required

Cindy Herrick is a mom, teacher, musician, researcher, entrepreneur, maternal mental health (MMH) advocate. Her own experience with severe maternal mental health illness in 2012 sparked her desire to bring awareness and change to the maternal mental health system. She has been involved in several MMH and postpartum depression advisory panels and has been advocating for legislature and policy change on a state and national level. Cindy's main interest have been on developing patient centered evidenced based research and documenting the benefit of structured peer specialist training in the work of MMH. She has also been working to "mainstream" maternal mental health into the mental health system and to promote the interdisciplinary nature of the disease. She has been at the forefront of fighting the stigma against mental illness and changing the narrative on the stigmatized image of a mom struggling with mental illness.

MaDonna

Advocating Healthcare Consultants

MaDonna
Addiction
ADHD (Attention Deficit/Hyperactivity Disorder)
Aging/Senior Health
Alternative Medicine
Arthritis
Autoimmune Diseases
Birth Defects
Bone Diseases
Cancer
Caregiving
Children's Health
Diabetes
Healthy Living
Heart Disease
Heart Health
Infertility
Men's Health
Pain (Chronic Pain, Joint Pain, Back Pain)
Parenting and Family Health
Pregnancy
Rare Diseases
Sexual Health
Sleep and Sleep Disorders
Smoking Cessation
Thyroid Diseases
Women's Health
16 More 16 Less
Health Data Tracking
Program Development
Public Relations
Peewee Valley, KY
available 31-40 hours/week

I am a nurse and respiratory therapist. My daughter has a progressive heart disease and while being her healthcare support I have found myself being an advocate for many others. I am now doing this as a career. My mission is to be able to accompany the client through their illness or wellness to a meaningful experience.

Services include:
Office visit companion
Care plan review and advising
Locating specialist for needed care
Audit medical billing and/or intervention as requested
Coordinate home care to aid in keeping client grounded in their environment
Evaluating facility needs if home care is not feasible
Acquiring durable medical equipment when applicable

Scott

Physcian, Executive, Entrepreneur, Healer, Leader and Sharer

Scott
Addiction
Aging/Senior Health
Alternative Medicine
Anxiety
Chronic Illness
COPD (Chronic Obstructive Pulmonary Disease)
Diabetes
Eating Disorders
Fitness
Healthy Living
Heart Disease
High Risk Pregnancy
Men's Health
Mental Health
Neuromuscular Disorders
Nutrition
Obesity
Pain (Chronic Pain, Joint Pain, Back Pain)
Parenting and Family Health
Pregnancy
Sleep and Sleep Disorders
Stroke
12 More 12 Less
Business Development
Clinical Research
Consumer Engagement
Copywriter
Finance
Health Data Tracking
Influencer Marketing
Operations
Product Development
Program Development
Project Management
Proofreader
Strategy
3 More 3 Less
Leawood, KS
available 10-20 hours/week

Experience in healthcare practice, anesthesia, pain management, peri-operative medicine, critical care, obstetrics, all surgeries and all ages.
Well versed in helping others with health and wellness through lifestyle, nutrition, activity, mental and physical health management.
Business development, strategic oversight and advising, finance, marketing, growth, and leadership.
Looking for advising, consulting, panels, research, collaboration, and leadership sharing roles in all areas of health, wellness, clinical practice, patient care and management, technology solutions, business models, caregiver solutions, health care business, health care policy, health care reform, education, design and payment.


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