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Family Caregiver Voice in Policy, Healthcare Transformation, and Health Research

Ashburn, VA


I am a seasoned advocate focused on person-centered healthcare transformation. I am known for my ability to collaborate, solve problems, and connect the dots. Having cared for multiple parents with dementia, I have a 360 degree view of healthcare, social services, and the challenges faced by patients and their families. My areas of focus include: health policy, health literacy, health content development, health IT usability, communication, and training. I serve as Patient Research Partner and Ambassador for the Patient Centered Outcomes Research Institute (PCORI), and Adviser for the National Alzheimer’s & Dementia Patient & Caregiver-Powered Research Network. I am a former Executive in Residence for the Healthcare Information Management and Systems Society (HIMSS) Foundation, Institute for e-Health Policy. My mission is to make healthcare and health research easier for patients and family caregivers.

AVAILABILITY: 21-30 hours/week

Industry Experience
Healthcare - Advocacy Healthcare - Biotechnology Healthcare - Online Communities Healthcare - Patient & Family Advisory Councils Healthcare - Policy Healthcare - Research Healthcare - Technology
Areas Of Expertise
Clinical Research Consumer Engagement Consumer Insights Digital Marketing Online Moderation Peer Support Product & App Testing Social Media Social Networking Usability Testing UX/User Design
Health Perspective
Patient Caregiver Advocate
Health Conditions
Aging/Senior Health Alzheimer's Disease Brain Health Breast Cancer Caregiving Dementia Health Public Policy Pain (Chronic Pain, Joint Pain, Back Pain)
June 2013 – Present

Connected Health Resources engages patients and families in health management, care transitions, medication management, ongoing treatment and recovery. The Community Health Gateway delivers plain-language and multilingual tools and resources to patients and family caregivers that improve engagement in chronic care and after acute-care facility discharge. The Gateway also promotes integration of healthcare, social services, and community supports – improving patient outcomes.

October 2009 – Present

Areas of Expertise: Business analysis, Health information technology, Project/program management, Business process re-engineering, Health literacy, Speaking/presentations, Communication, Health policy analysis, Strategic planning, Consumer/patient engagement, Patient generated health data, Health content development, Program/product design, Social media, Training, and Usability. Clients include: ONC, CMS, HIMSS, and Yale.

Bachelors, Biology and Biotechnology
University of Nebraska - Omaha
Omaha, NE, United States

Certificate, UNIX/C/C++
George Washington University
Washington, DC, United States

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