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Rare Disease Patient in the Real World.

Egg Harbor City, NJ


I work as a TV Station Manager for a local government access channel in NJ and assist with High School internships in TV Production & Advertising. I own and operate a freelance photography, video, and graphic design company (Film Reel Productions).

In my spare time, I support the Gaucher Disease community and advocate for patients and families with rare diseases/genetic disorders. I livestream weekly on ZubiaLive where reach a national audience on rare disease topics ("rare15") #rare15chat. I have experience with social media, crowdsourcing, and PR/advertising.

*Nominee for WEGO Health Award (2017):
"Healthcare Collaborator: Patient"
"Best Kept Secret"
*Patient Leader Hero*

*Technology Trainer (Talent/Producer) for
*Vlogger/Host on - [rare 15]

AVAILABILITY: 10-20 hours/week

Industry Experience
Education Healthcare - Online Communities Healthcare - Patient & Family Advisory Councils Healthcare - Pharmaceutical Professional Services Technology
Areas Of Expertise
Blogger Clinical Research Consumer Insights Crowdsourcing Digital Marketing Other Peer Support Public Relations Reporter Social Media Social Networking
Health Perspective
Patient Advocate
Health Conditions
Bone Diseases Chronic Illness Gaucher's Disease Pain (Chronic Pain, Joint Pain, Back Pain) Parkinson's Disease Rare Diseases Seasonal Allergy Women's Health
Leanna's earlier works noted at LinkedIn

Please visit LinkedIn for a more complete snapshot of my Employment History and Accomplishments.

Masters, Instructional Technology
Stockton University
Galloway, NJ, United States

Bachelors, Liberal Arts and Sciences
Stockton University
Galloway, NJ, United States

  • Crowdsourced Survey Recruitment for Gaucher's Patients

    10/31/2016 - 12/20/2016


    Fixed price

    $10,000.00 earned

    Leanna was attentive, detail-oriented, and a pleasure to work with.

  • Patient Interviews: What Can Pharma Companies Do Better?

    08/02/2017 - 08/03/2017


    Fixed price

    $100.00 earned

  • Record your own video responses to questions about health websites

    09/17/2017 - 09/21/2017


    Fixed price

    $200.00 earned

    We hired Leanna to record video answers for a few questions. Her videos were high quality and insightful and she was as pleasure to work with. Leanna would be an asset to any team. Great job Leanna!

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