Culver City, CA
Health Activist / Patient Advocate / Speaker / Patient Engagement / Brand Ambassador
Currently representing the Lupus community as the "Face of Lupus" for the International Pain Foundation.
My story "Living Well with Lupus" isa chapter in Jan Oldenburg's book "Participatory Healthcare" about patient engagement in today's healthcare system.
Presented at the 2016 "Connected Health Conference" for the "Patients as Innovators and Partners" panel.
The British Medical Journal published my article on the impact of Social Media in Patient Communities.
Represented the Lupus Foundation of America and the Lupus Research Institute as a empowered patient advocate on Capitol Hill.
Actively participated in advocacy in person & online.
Shared my story at #TEDMED on stage "Great Challenges" ambassador
Presented iat Lincoln Center on Community Engagement as a Brand Ambassador.
Moderated a panel of patient activists and shared my Lupus journey at the 92nd Street Y in New York City.
AVAILABILITY: 31-40 hours/week
After living with Lupus (as well as Osteoarthritis, Fibromyalgia, Rheumatoid Arthritis, IBS, APS and Chronic Pain) for decades. Amanda's struggles made her advocate for herself; now she also advocates for others. Amanda is the International Pain Foundation’s “Face of Lupus” and raises awareness from New York to Los Angeles for the Lupus Research Alliance. As she says, “connecting and collaborating are the keys to transforming healthcare”. As @LAlupusLady online she openly shares her perspectives of the patient journey. Her story “Living Well with Lupus” is a chapter in Jan Oldenburg’s newest book “Participatory Healthcare.” Amanda has shared her story on conference stages, on Capitol Hill and on stage at the 92nd Street Y in New York City. Lead by passion she trongly believe in that patient engagement is a vital tool is shifting the Healthcare paraadigm.