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Passionate "Actively Engaged Patient"

Culver City, CA


Health Activist / Patient Advocate / Speaker / Patient Engagement / Brand Ambassador

Currently representing the Lupus community as the "Face of Lupus" for the International Pain Foundation.
My story "Living Well with Lupus" isa chapter in Jan Oldenburg's book "Participatory Healthcare" about patient engagement in today's healthcare system.
Presented at the 2016 "Connected Health Conference" for the "Patients as Innovators and Partners" panel.
The British Medical Journal published my article on the impact of Social Media in Patient Communities.
Represented the Lupus Foundation of America and the Lupus Research Institute as a empowered patient advocate on Capitol Hill.
Actively participated in advocacy in person & online.

Shared my story at #TEDMED on stage "Great Challenges" ambassador
Presented iat Lincoln Center on Community Engagement as a Brand Ambassador.
Moderated a panel of patient activists and shared my Lupus journey at the 92nd Street Y in New York City.

AVAILABILITY: 31-40 hours/week

Industry Experience
Education Entertainment Healthcare - Advocacy Healthcare - Online Communities Healthcare - Patient & Family Advisory Councils Healthcare - Research Professional Services
Areas Of Expertise
Blogger Consumer Engagement Consumer Insights Digital Marketing Event Planner Influencer Marketing Marketing Online Moderation Peer Support Public Relations Reporter Social Media Social Networking Strategy
Health Perspective
Patient Caregiver Advocate
Health Conditions
Alternative Medicine Arthritis Blood Disorders Caregiving Chronic Illness Depression Fibromyalgia Fitness Gastrointestinal Diseases Health Public Policy Healthy Living Heart Health Irritable Bowel Syndrome Lupus Mental Health Nutrition Pain (Chronic Pain, Joint Pain, Back Pain) Rare Diseases Women's Health
Health Activist and Advocate at LA Lupus Lady
May 2008 – Present

After living with Lupus (as well as Osteoarthritis, Fibromyalgia, Rheumatoid Arthritis, IBS, APS and Chronic Pain) for decades. Amanda's struggles made her advocate for herself; now she also advocates for others. Amanda is the International Pain Foundation’s “Face of Lupus” and raises awareness from New York to Los Angeles for the Lupus Research Alliance. As she says, “connecting and collaborating are the keys to transforming healthcare”. As @LAlupusLady online she openly shares her perspectives of the patient journey. Her story “Living Well with Lupus” is a chapter in Jan Oldenburg’s newest book “Participatory Healthcare.” Amanda has shared her story on conference stages, on Capitol Hill and on stage at the 92nd Street Y in New York City. Lead by passion she trongly believe in that patient engagement is a vital tool is shifting the Healthcare paraadigm.

Bachelors, Broadcast Communications Management
San Francisco State University
September 1990 – June 1992
San Francisco, CA, United States

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