My name is Ashley Boynes-Shuck. I live with several autoimmune diseases and musculoskeletal disorders, in addition to chronic migraine syndrome. I began my work as patient advocate and patient leader about a decade ago as a Community Development Director for the Arthritis Foundation. Since then, I've cultivated an online persona called Arthritis Ashley, a Facebook community for young people with arthritis called Rheum to Grow, and I have amassed 40,000+ followers across all of my social networks. I have authored 3 published books, two of which are health memoirs, and am a certified health coach. I've consulted with pharmaceutical companies on marketing and advertising. I have served as a Community Manager and Content Director for an arthritis-friendly pharma website. And Oprah Winfrey has even tweeted me about my advocacy work! Currently, I consult with the Autoimmune Registry working on patient engagement and social media efforts, and I am an arthritis reporter for Healthline.com.
AVAILABILITY: 40+ hours/week
At the Autoimmune Registry (a 501c3 nonprofit,) I aim to cultivate a social media presence and direct patients to sign up for the registry. The goal of the registry is to collect patient data and eventually connect researchers with patients in order to conduct more autoimmune-related clinical trials.
At the Arthritis Foundation, I used blogging and social media to connect with arthritis patients, which garnered myself and our chapter of the AF several recognitions and awards. I also assisted with our podcast, helped to plan events, and came up with creative marketing and peer-to-peer outreach ideas. As a patient I was able to offer a unique perspective on life with arthritis ... which I've had since childhood.
During my contract with Energy BBDO, I served as a Community Manager and Content Developer for Arthriving, an arthritis-friendly website sponsored by Aleve. I sourced and managed content and wrote copy for the site, as well as assisting with some marketing efforts.
As an integral part of the marketing team, I was a Community Manager for GiftCards.com and MyCoupons.com. My focus was on social media and philanthropic outreach.
I am a reporter on rheumatoid arthritis topics for the website, Healthline.com, which garners over 4 million unique views per month. I produce 3-5 research-based, arthritis-related articles per month, which are often among the top-read and most-shared Healthline articles