The time zone in your profile is set to while your local time zone looks like . Would you like to update your time zone or keep the existing?




Cancer Survivorship Professional, Cancer Advocate and Patient Navigator, Digital Communities Expert

North Richland Hills, TX


I am a professional cancer survivorship expert working at a leading lung cancer non profit. I have been a patient advocate for over 14 years.
I have the unique past experience of being both a cancer patient and a lung cancer caregiver and I represent the voice of the patient and caregiver in all that we do as a Foundation. I am the founder of the Lung Cancer Support Community, helped start the first lung cancer 5K and in-person support group and a recipient of numerous awards and articles. I sat on the board of Global Resource for Advancing Cancer Education, past LiveSTRONG Leader, current member of AONN, ASCO and VMCC as well as collaborate with national organizations and healthcare providers across the country gaining valuable insight and knowledge. I contribute to articles & blogs and have been asked to speak at events with a special interest in cancer survivorship, patient support, caregiving, cancer advocacy training & the use of social media to promote good works.

AVAILABILITY: as required

Industry Experience
Education Healthcare - Advocacy Healthcare - Online Communities Healthcare - Patient & Family Advisory Councils Healthcare - Research Healthcare - Technology Professional Services Other
Areas Of Expertise
Blogger Consumer Engagement Event Planner Online Moderation Other Peer Support Program Development Social Media Social Networking
Health Perspective
Patient Caregiver Advocate Other
Health Conditions
Cancer Caregiving Cervical Cancer Chronic Illness Cirrhosis Clinical Trials Diabetes - Type 2 Liver Diseases Lung Cancer Thyroid Diseases Women's Health
Vice President Support and Survivorship at LUNGevity Foundation
May 2010 – Present

Creating and managing the Foundation’s support programs, services and resources that help patients, caregivers and healthcare providers. Building and sustaining collaborations and partnerships with other organizations and healthcare providers and a robust online lung cancer community over multiple targeted and personalized platforms. I also manage advocates, advocacy opportunities and volunteers. I am also the Foundation's social media strategist, developing and executing social media campaigns.

November 2002 – Present

I am the co-creator of Lung Cancer Support Community (LCSC). That non profit's website was the first of its kind to provide active chat forums and an online lung cancer support network for lung cancer patients and their family members. Today the message boards are an active service of LUNGevity Foundation and it holds over 404,000 posts.

  • NSCLC EGFR+ Patients

    04/21/2017 - 05/15/2017


    Fixed price

    $2,500.00 earned

  • Understanding the Lung Cancer Patient Journey

    05/31/2017 - 06/12/2017


    Fixed price

    $1,250.00 earned

    Katie Brown is a joy with which to work. She was quick and responsive to our project needs, and was able to connect us with amazing resources in the lung cancer community. I would highly recommend Katie and hope to work with her again in the future.

  • Non Small Cell Lung Cancer Patient and Caregiver Interviews

    09/26/2017 - 10/10/2017


    Fixed price

    $1,750.00 earned

    We loved working with Katie!

  • Show all reviews

I'm ready to explore the Experts network

Get Started

I'm a Patient Expert

Apply to Become an Expert