I went from pediatric cardiac patient to pediatric cardiac nurse, and somewhere along the way I was diagnosed with a slew of other diseases- systemic lupus (with many overlapping autoimmune diseases), cervical cancer, and had a double mastectomy after a pre-cancerous lump was found in my breast. Fun times.
When my nursing career had to be put on hold due to my deteriorating health, I began a new career as a patient advocate/influencer. I started my blog, Luck Fupus, in 2012, and have since used that as a platform to travel the country and share my (crazy) story, discuss hot button topics like patient centricity and transparency, and be the voice for patients. I've received scholarships to attend and speak at a variety of healthcare conferences including Stanford MedicineX, PCORI Annual Summit, MMM Transforming Healthcare, Patients as Partners and many more.
AVAILABILITY: 10-20 hours/week
Founder and author of the blog Luck Fupus; a blog that details the day-to-day and long term struggles of life with multiple chronic illnesses. I provide relevant data, including information about clinical trials, on a number of diseases.
Clinical Registered Nurse
Experience in cardiac ICU, surgical/trauma, apheresis,phone triage nursing