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Hemophilia Patient Advocate

Kansas City, MO


I have worked in the hemophilia world for about 3 years at a specialty pharmacy in Kansas City, MO. I am currently in Pharmacy School pursuing my Doctorate in Pharmacy (PharmD) at the University of Missouri - Kansas City School of Pharmacy. I am a patient with Severe Hemophilia A and have made it a goal to attend as many hemophilia-related events as I possibly can. Aside from my work "behind the counter," I am also an avid public speaker and have spoken in front of large crowds on behalf of the Hemophilia community in an attempt to spear awareness. My most recent endeavor was speaking at a standing-room-only event at the National Hemophilia Foundation's annual conference. Aside from that, I am also well known for a TEDx talk I gave titled "Infusing Hope."

AVAILABILITY: as required

Industry Experience
Healthcare - Advocacy Healthcare - Online Communities Healthcare - Pharmaceutical Professional Services Technology
Areas Of Expertise
Influencer Marketing Mobile App Design Other Social Media Social Networking
Health Perspective
Patient Advocate
Health Conditions
Arthritis Hemophilia
Intern Pharmacist at Alber's Medical Pharmacy
November 2011 – Present

I have gone from being a Technician to an intern pharmacist as I pursue my dream of becoming a PharmD.

Public Speaker at TEDx
December 2015 – December 2015

I gave a TEDx speech in front of a crowd of ~600 people about my journey with hemophilia, titled "Infusing Hope"

August 2016 – August 2016

I gave a speech at the annual NHF conference on behalf of Biogen, IDEC to help spread positive encouragement to all in attendance.

Other, PharmD
University of Missouri - Kansas City School of Pharmacy
August 2015 – Present
Kansas City, MO, United States

Other, Chemistry/Business
University of Missouri - Kansas City
August 2013 – May 2015
Kansas City, MO, United States

  • Hemophilia patient / caregiver - knows the online community / social media space well

    03/14/2017 - 07/26/2017


    2 hours


    $167.50 earned

    Highly engaging, open and personable.
    Interesting personal story.
    Knowledgeable about haemophilia and the online space.

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