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Digital Health, Human-Centered Design, and Patient Advocacy

Los Angeles, CA


AVAILABILITY: 21-30 hours/week

Industry Experience
Education Entertainment Healthcare - Advocacy Healthcare - Online Communities Healthcare - Pharmaceutical Technology
Areas Of Expertise
Business Development Consumer Engagement Consumer Insights Copywriter Crowdsourcing Editor Event Planner Online Moderation Peer Support Product & App Testing Product Development Program Development Project Management Proofreader Social Media Social Networking Strategy
Health Perspective
Patient Advocate
Health Conditions
Breast Cancer Cancer Clinical Trials Endometriosis Post-Traumatic Stress Disorder Women's Health
Precision Medicine Advocate Program Lead at Cure Forward
July 2016 – Present

Engage, educate, and empower cancer patients and patient communities via social media, national advocacy, and other channels about precision medicine, clinical trials, patient-centricity, and utilizing data to help make treatment decisions.

Direct content strategy, content development, and editorial for pioneering team of Precision Medicine Advocates and the Always Forward Blog.

Curate and moderate two monthly tweetchats —
Clinical Trials Social Media (#CTSM) and Cure Chat (#CureChat) — multiple-stakeholder, interactive conversations bringing to life and demystifying concepts in the clinical trial ecosystem. Proposed and executed highly successful Featured Guest storytelling initiatives for both chat series, resulting in appearances by leaders in cancer advocacy, science, and the pharmaceutical industry.

Cure Forward is an oncology startup that empowers patients to use their genomic data to better understand their cancer and treatment options.

Advisor at CanSurround
January 2015 – Present

Consult on patient-centered design, content, communication, strategy and social media for oncology digital health startup focused on the emotional health of cancer patients/survivors and their loved ones. Guided the company to win the 2015 Doctors 2.0 & You International Digital Health Contest.

At CanSurround, we believe there is needless distress in the cancer experience and that patients, and the circle of people supporting them, deserve better attention to their emotional well being during the cancer journey and beyond. CanSurround is a comprehensive web and mobile based emotional support program intended to reach masses of people who would not otherwise get psychosocial help. CanSurround will guide people toward choices that reduce distress and foster personal growth and healing.

Stanford Medicine X: Social Media Producer & Community Organizer at Stanford University School of Medicine
September 2014 – June 2015

As Social Media Producer: Discussion moderator for Massive Open Online Course (MOOC) in Patient Engagement Design for Medicine X, the world's premier patient-centered conference on emerging technology and medicine. Responsibilities included:

Engaged as a course leader in discussion forums with students; provided guidance and insights; contributed timely original content.
Facilitated constructive engagement and conversation.
Flagged/reported challenging situations and followed up as necessary.
Curated thought-provoking and interesting comments for weekly featured recaps.

As Community Organizer for the Los Angeles Region was responsible for design, development, curation, production and moderation of Stanford Medicine X Pop-Up event in Los Angeles on Patient-Centered Design, which included speakers: Stuart Karten Design founder, Stuart Karten, and ePatient, Nicole Estanol.

Stanford Medicine X, Member ePatient Advisory Board at Stanford University School of Medicine
September 2012 – September 2014

Collaborated to design, curate and develop the Stanford Medicine X 2013 and 2014 Conference's ePatient Programs, ePatient Track and Patient NeXt Symposium.

Collaborated to recruit, select and mentor participants. Facilitated in-person and virtual workshops.

Main stage presenter at Stanford Medicine X 2013.

Creator and moderator of panel "Creating Patient-Physician Synergy Via Social Media" at Stanford Medicine X 2013.

Curator and moderator of "MedX Live!" Google Hangouts and Tweetchats.

Guest lecturer, Stanford School of Medicine, "Engage and Empower Me," January 2014.

Medicine X is a catalyst for new ideas about the future of medicine and health care. The Medicine X initiative is designed to explore the potential of social media and information technology to advance the practice of medicine, improve health, and empower patients to be active participants in their own care. The “X” is meant to evoke a move beyond numbers and trends—it represents the infinite possibilities for current and future information technologies to improve health.

Other, Communication, Popular Culture, Art & Technology
Annenberg School For Communication at USC
Los Angeles, CA, United States

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